The VEDS Movement

10/16/2026

It must be VEDS Action Month! We got over 500 reactions on our posts last week! Thanks everyone for your support! 🎉 Let’s keep sharing! ❤️

10/15/2026

$255,000 in gifts. Two $125,000 VEDS research grants. Applications are now open.

In loving memory of Bella Welch, her family has made an extraordinary investment in VEDS research, honoring her life and legacy by advancing discoveries that could improve and save lives.

Learn more about Bella's story, this meaningful legacy gift, and how researchers can apply by January 25, 2027.

Bella's family has honored her with gifts totaling $255,000, establishing a memorial research grant in her name.

10/15/2026

IT’S HERE! ❤️ The fall edition of Connective Issues has arrived!

Don't miss:

🔬Latest research grant investment
💝Supporting health at every age
☑️Beyond the common outward signs

Read it now: marfan.org/connective-issues

Stay tuned for more from the fall issue in the weeks ahead!

10/14/2026

💡 Are you a scientist with an idea that could move research forward?

The next big discovery starts with a question, an idea or a new approach. We offer several awards to help advance innovative concepts and support the next generation of investigators.

Two research grants have a deadline of OCTOBER 19. LEARN MORE AND APPLY TODAY: https://marfan.org/research/grants/

🔬 Innovators Award — $100,000 over two years to explore innovative concepts with the potential to improve human health.

🧬 Career Development Award — $100,000 over two years to help early-career investigators generate preliminary data and build toward future research funding.

Know a researcher who should apply? Please share!

10/14/2026

During VEDS Action Month 2026, this week is for the people who answer the call: EMTs, nurses, emergency physicians, radiologists, surgeons, OBs and every clinician who might meet a patient with Vascular Ehlers-Danlos syndrome (VEDS).

This week's ask: share VEDS911.com with your doctor, ER team, firehouse, or local EMT. Or, commit to bring it to your next appointment.

10/11/2026

New merch drop! Congratulations to our Community-Tee Adult Category design winner Isabella. Her V Matters design for 2026 is now available in our store.

You can find it in tees, sweatshirts, hoodies, tank tops and more.

https://www.bonfire.com/the-v-matters-2026-community-designed-tee/?productType=bacf6cd6-b53d-469c-ab96-02afe5b15f71

Get yours today!

Tomorrow, will announce our youth design winner! D

Buy The V Matters 2026 Community-Designed Tee merchandise that supports THE MARFAN FOUNDATION INC .. Featuring Athletic Heather Premium Unisex Tees, professionally printed in the USA.

10/10/2026

At the VEDS Movement, we convene experts to connect with community. And that makes all the difference. Especially when it comes to helping children with VEDS. Right now in London, our Living Better symposium is happening. Managing VEDS in Children was presented by Dr. Elena Cervi, MD, PhD, Great Ormond Street Hospital, London.

"I’m here to raise awareness and give support to children and families affected by connective tissue conditions. I think the Marfan Foundation has done amazing work in the US raising awareness and providing information and support to the families living with the conditions, something that we are working on improving in the UK and Europe so I think it is important that we try and work together to support the families," said Dr. Cervi pictured here and with Dr. Bart Loeys while presenting the talk.

We're here for the VEDS community around the world. You are not alone.

If you'd like to support future educational programs like this one, please visit marfan.org/impact

10/09/2026

Convening scientists = hope. Thank you Jared Griffin and Annabelle's Challenge Vascular EDS Charity for the kind words and for being great friends to both The VEDS Movement and The Marfan Foundation https://www.facebook.com/share/v/1JeBpGWdFx/?mibextid=wwXIfr

10/09/2026

One letter. A different emergency.

When a person living with Vascular Ehlers-Danlos Syndrome or a loved one says "VEDS" instead of "EDS," they can help care teams know to look for artery and organ tears, and to choose tests and treatments with extra care.

Learn more at VEDS911.com

Know the V. Say the V. Share this with someone who needs to know. Movement

An emergency field guide for First Responders and ED Personnel on recognizing and managing life-threatening complications of Vascular Ehlers-Danlos Syndrome (VEDS).