Friends of Essential Thrombocythemia, Inc dba Friends of ET Research

06/12/2026

Great news regarding the Taiwan approval of Besremi for ET patients:

https://www.businesswire.com/news/home/20260610421769/en/PharmaEssentia-Announces-Taiwan-Approval-of-BESREMi-for-Essential-Thrombocythemia-Marking-First-Global-Approval-in-ET?fbclid=IwdGRleASY19VleHRuA2FlbQIxMQBzcnRjBmFwcF9pZA8xNzM4NDc2NDI2NzAzNzAAAR5NW6Djky9T-zZ0uwY_ewkn1WnHbJ1d6r073B9zjRb8KBsyci_JpWlIFXge1A_aem_LqIWDI0HR8ynl8hjwQXbQw

PharmaEssentia USA Corporation, a subsidiary of PharmaEssentia Corporation (TWSE: 6446), a global biopharmaceutical innovator based in Taiwan leveraging deep...

06/11/2026

Register for this event at the link previously posted!

06/11/2026

MPN Carolinas Panel Discussion. It’s an online webinar so it’s easy to attend.

MPN Advocacy & Education International will host numerous MPN Specialists from the Carolinas for a special two-hour event to answer questions and provide the latest news in myeloproliferative neoplasms.

06/02/2026

For those of you that have the CALR mutation, there is a webinar for you tomorrow at 10 am EDT, 9 am CT. Speaker is Dr. Robert Kralovics. Even if you can’t watch it live, it will be available to you as a recording if you register first.

Title: The Science of CALR: From Mutation Discovery to Emerging Therapeutic Strategies Date and Time: June 3, 2026, at 9:00 AM - 10:30AM in U.S. Central Time (CDT) Description: MPN United; Building Capacity for Global Impact The MPN United Webinar Series is a global, collaborative education initiati...

05/31/2026

Interesting graphics:

05/28/2026

Let’s remember all those who are fighting blood cancers today. And continue to be optimistic that cures will be coming to us soon.

05/27/2026

MPN Advocacy and Education presents an MPN Patient Workshop of the Carolinas on August 19th at 1 pm EDT. There will be at least 6 different Doctors on the panel. You can register below for this in-person meeting/forum. You will not regret attending. Agenda and topics will be announced soon.

MPN Advocacy & Education International will host numerous MPN Specialists from the Carolinas for a special two-hour event to answer questions and provide the latest news in myeloproliferative neoplasms.

05/20/2026

Welcome to our many new followers. We hope you will learn some new information about ET here. Feel free to respond to our posts if you wish.

05/07/2026

Webinar recording of Dr Ellen Ritchie discuss cardiac health and MPN patients. Courtesy of MPN Advocacy and Education

https://www.youtube.com/watch?app=desktop&v=EO7vHMqlsBo&ra=m&fbclid=IwVERFWARphO1leHRuA2FlbQIxMQBzcnRjBmFwcF9pZA8xNzM4NDc2NDI2NzAzNzAAAR7_ViZuhaYdPXWMGE7IxsLVdEolxeLbLIo1WjgFx8ZUgAAp8NUZ7kaZOTwqwA_aem_eknb7KDXGYum2ON1qXxShw

MPN Advocacy & Education International hosted a webinar with Dr. Ellen Ritchie to discuss the importance of cardiac health for MPN patients.

04/25/2026

Courtesy of PVReporter.com:

https://pvreporter.com/breakthrough-calr-therapy-shows-high-response-rate-in-et/?fbclid=IwdGRleARYvuVleHRuA2FlbQIxMQBzcnRjBmFwcF9pZA8xNzM4NDc2NDI2NzAzNzAAAR7WC0O5VznvUl9UgA7lb04fhcCq8TpoQjosQNNPDa2e17JB9WbO07bta4hxfg_aem_n-SQfktoO4ETmyAWhyUwJQ

Incyte’s INCA033989 targets CALR mutations in ET patients, delivering high response rates and potential disease modification with minimal side effects.