10/16/2026
Tomorrow, we’re going PURPLE for Penelope! 💜
One of our fellow advocates, Kenna, is asking our community to help raise awareness for Rett Syndrome in honor of her daughter, Penelope.
Penelope is 5 years old and has TCF20, a rare genetic disorder that presents with a phenotype of atypical Rett syndrome. She is nonverbal and communicates using an eye-gaze device, and she works incredibly hard every day.
Tomorrow, October 16, wear purple to help us show Penelope and her family just how much support surrounds them. 💜
Wear purple. Take a picture. Share it. Help raise awareness.
💜 For Penelope
💜 For Rett Syndrome Awareness
💜 For research, inclusion, and every family navigating a rare diagnosis