LGMD2D Foundation

09/30/2026

💚 Today is LGMD Awareness Day! 💚

Today, our community comes together across the world to raise awareness for all forms of Limb-Girdle Muscular Dystrophy (LGMD) — different types, different journeys, but one shared hope for a future with treatments and cures.

For those living with LGMD2D/R3 and every form of LGMD, awareness matters. Research matters. Advocacy matters. Time matters.

Today we stand with every LGMD patient, family, researcher, clinician, advocate, and organization working toward that future.

Stronger Together for LGMD.

09/24/2026

🌧 IMPORTANT FORE THE CURE UPDATE 🌧

After careful consideration and based on the expected nor’easter, in partnership with Stanley Golf Course, we have made the difficult decision to postpone the entire 2nd Fore the Cure LGMD2D Golf Tournament originally scheduled for this Saturday.

The safety of our guests, golfers, volunteers, and staff is incredibly important to us, and with the anticipated weather conditions, we believe postponing is the safest and best decision for everyone.

📅 NEW DATE: Saturday, June 5, 2027
📍 Stanley Golf Course | New Britain, CT

We know many of you have made plans to join us, and we truly appreciate your understanding as we make this difficult change. All current registrations and sponsorships will carry over to the new date.

If the new date does not work for you or different accommodations are needed, please reach out to us directly, and we will be happy to work with you.

Thank you to our golfers, sponsors, donors, volunteers, friends, and family for your incredible support and understanding. While the weather may change our plans, it won’t stop our mission. 💚

We look forward to coming together on June 5 for an incredible day supporting treatments and a cure for LGMD2D/R3!

09/18/2026

📣 Just 3 MORE DAYS to register for the 2nd Fore the Cure LGMD2D Golf Tournament ! 📣

Registration closes end of day Monday, September 21 — don’t miss your chance to be part of this special day!

Join us Saturday, September 26 at Stanley Golf Course in New Britain, CT. Check-in starts at 10:30am, cocktail hour starts at 5pm, dinner is at 6pm. Come play, join us for dinner, or bring the family — kids are welcome!

Every dollar raised helps us continue the fight to accelerate treatment development, bringing us one step closer for those living with LGMD2D/R3. 💚

Learn more: https://lgmd2d.org/2026-golf-tournament-ct

Register to join us: https://www.eventbrite.com/e/fore-the-cure-2026-lgmd2d-golf-tournament-at-stanley-golf-course-tickets-1988839382130?aff=oddtdtcreator

Join us for the LGMD2D Golf Tournament in 2026 to raise awareness and funds for Limb-Girdle Muscular Dystrophy research.

09/16/2026

Yesterday, our LGMD community came together on Capitol Hill with one powerful message: our voices matter, and time matters.

We shared our stories, advocated for continued innovation and investment in rare disease research, and reminded lawmakers that behind every policy decision are real people and families waiting for treatments.

We are incredibly thankful to the House and Senate offices from Florida, Connecticut, Massachusetts, North Carolina, and Colorado who took the time to sit with us, listen, and engage with our stories and priorities.

And we are especially grateful to the patients and families who traveled to Washington, D.C., and came together to ensure the voice of the LGMD community is heard.

Together, we are turning our stories into action and pushing for a future with treatments. 💚🇺🇸

09/11/2026

Today, we remember the lives lost, stand with the families who lost loved ones, and honor the bravery and sacrifice of the first responders. We will never forget. 🇺🇸

09/10/2026

A HUGE THANK YOU to the incredible sponsors of our 2nd Fore the Cure LGMD2D Golf Tournament !

This event would not be possible without the generosity of the businesses, families, and friends who continue to stand beside us in this fight. Every sponsorship gets us one step closer to the treatment our community is waiting for.

THERE IS ONLY 11 DAYS LEFT TO REGISTER!!

Join us:
Saturday, September 26
Stanley Golf Course | New Britain, CT
Registration closes September 21st!

https://lgmd2d.org/2026-golf-tournament-ct

Whether you're golfing, joining us for dinner, or simply supporting the cause, don’t miss out on being part of this fun and special day!

To every sponsor, donor, and registrant who has stepped up for our families: THANK YOU. 💚

08/29/2026

LAST CHANCE! Registration closes TOMORROW!

Join us this September for the 2026 Hope In Motion Virtual 5K for LGMD2D/R3 and walk, run or roll from wherever you are—all while helping move research and treatments forward for LGMD2D/R3.

Every registration supports our mission and brings greater hope to families living with this rare, progressive muscle disease.

👟 Walk. Run. Roll.
🌎 Anywhere. Anytime.
💚 Together, we can make a difference.

Register today before it’s too late!

https://lgmd2d.org/2026-hope-in-motion-5k

08/26/2026

ONE MONTH TO GO! HAVE YOU REGISTERED YET?

We’re officially just one month away from the 2nd Fore the Cure LGMD2D Golf Tournament !

📅 Saturday, September 26, 2026
📍 Stanley Golf Course | New Britain, CT

Join us for a day of golf, dinner, raffles, a silent auction and—most importantly—coming together to help drive research and treatments forward for LGMD2D/R3.

🏌️ Golf
🍽️ Dinner Reception
🎁 Raffles & Silent Auction
💚 Sponsorships & Donations

Every swing brings us closer. Every dollar makes a difference.

Use the QR code to register, sponsor or donate today or: lgmd2d.org/2026-golf-tournament-ct