09/19/2026
Morning of a medically complex, neuro-spicy mama: 😃☕️
✅ Took a deep dive into updated research on trials, potential ways to alter/help the dystrophin gene, new technology on the horizon, and the companies, hospitals & organizations working on it.
✅ Decided I was empowered and would be Superwoman by adding change views on structural/environmental builds, teach universal design on top of my current list: care for my family, help run a family business, run a nonprofit, advocate for my son’s rare disease, work on my own mental health, manage every family schedule, learn everything about the different abilities in my house, AND help create a more inclusive school district…etc. 😂
✅ Took care of the animals.
✅ Picked up the kids from Grandma’s. ❤️ (Thank you, Mom, for giving me an evening off and enough brain power to think about all of this.)
✅ Starbucks drive-thru for essential coffee + cake pops.
✅ Went inside Starbucks with a 6-year-old in a wheelchair, a 3-year-old, and a 7-year-old on the spectrum because they forgot ONE cake pop. The drive-thru line had tripled, so that was no longer an option. 😅
✅ Administered all medications and supplements required for everyone in the house to function. (This takes WAY longer than you’d think.)
✅ Played outside while actively planning and measuring an in-depth ramp off our playset so my son with Duchenne can get to the top and go down the slide. I’ve done this at least 20 times over the past few months.
Then realized, for the 21st time, that I cannot simultaneously go to the store, buy the supplies, build the ramp, and manage three screaming, miserable children. 🤦🏻♀️
✅ Answered approximately 5 million and one questions from my oldest son.
✅ Emailed a town official about accessible parking for a celebration later today—because I’d like to bring my three kids by myself for their approximately 20-minute window of tolerance before we’re all completely overstimulated and need to leave. 😂
And now…the coffee is done.
Time to clean the house and do all the other “normally expected” things a mom must do. 😃☕️
What have YOU done this morning?
Stephanie Howie
