Children's Brittle Bone Foundation

Children's Brittle Bone Foundation The Children's Brittle Bone Foundation is a 100% volunteer organization that supports families with Osteogenesis Imperfecta (Brittle Bone Foundation).

The Children's Brittle Bone Foundation is a 501(c)3 non-profit and 100% volunteer organization that has been raising money for Osteogenesis Imperfecta related causes since 1990. The mission of the Children’s Brittle Bone Foundation is to provide funds for research into the causes, diagnosis, treatment, prevention, and eventual cure for Osteogenesis Imperfecta (OI), while supporting programs that i

mprove the quality of life for people afflicted with OI, promote awareness, and educate the public. Since 1990 we have raised over $6M directly and have been instrumental in getting nearly $19M awarded by the NIH in grants for our research related programs.

03/28/2020

If you are an OI community member who has received a confirmed diagnosis of COVID-19 or are presumed positive by a medical professional, please contact us at [email protected]. Please share if you have mild, moderate, or severe OI and any other information you feel comfortable sharing.

Ordering lunch or dinner? Consider supporting some of the great restaurants that have supported the CBBF over the years!...
03/24/2020

Ordering lunch or dinner? Consider supporting some of the great restaurants that have supported the CBBF over the years! The Claim Company of Northbrook Inovasi Lou Malnati's Pizzeria Morton's The Steakhouse Main Street Social Papa Willie's BBQ Salt Creek Tacos Volare Restaurant Chicago Alex's Washington Gardens Wildfire Lincolnshire

02/11/2019

ATTENTION: Impact Grant Application Deadline Extended to Tuesday, Feb. 19!
To learn more about the Jeanie Coleman CBBF Impact Grant program or to apply today, visit www.oif.org/impactgrant. Please contact [email protected] if you have any questions.

01/31/2019

The Jeanie Coleman Impact Grant program helps individuals living with OI fund projects, receive services, or purchase equipment that might not be covered by savings, other programs, or insurance.
Applications are available until February 12, 2019 at www.oif.org/impactgrant

08/08/2018

Thank you to all who came out to support the 27th Annual CBBF Golf & Food Classic! We had a record setting yea! We are so thankful and are looking forward to putting this money to good use!

Special thanks to our fantastic black tee sponsors: Wintrust, Guarantee Trust Life Insurance Company, and The Mazzetta Company

The big day is here! Help us raise awareness and money! Check out the updated video below
08/06/2018

The big day is here! Help us raise awareness and money! Check out the updated video below

The mission of the Children’s Brittle Bone Foundation is to provide funds for research into the causes, diagnosis, treatment, prevention, and eventual cure f...

Mereo BioPharma is sponsoring a multicenter international clinical trial to study the effects of anti-sclerostin therapy...
12/05/2017

Mereo BioPharma is sponsoring a multicenter international clinical trial to study the effects of anti-sclerostin therapy drug setrusumab (previously called BPS804) on bone in OI. The study has now started recruiting patients at multiple sites in the United States, Canada and Europe. Adults between 18 and 75 years old who have a diagnosis of OI Types I, III, or IV are eligible for this 1 year clinical research study, which aims to enroll up to 140 patients.

Visit the FDA Clinical Trials Website or the company’s Study Website (www.asteroidstudy.com) to learn more, find your nearest study location, and register your interest in participation. If you have any additional questions, please email [email protected]. Their study contacts will be able to tell you more about the clinical research study, review eligibility criteria, and find a site near you.

Some pictures from last week's Inaugural Casino & Poker night! Thanks again to our sponsors Porsche Exchange Bub City Da...
11/07/2017

Some pictures from last week's Inaugural Casino & Poker night! Thanks again to our sponsors Porsche Exchange Bub City Dana Rebecca Designs Rivers Casino A Toast to Travel, LLC Cook-Illinois Corporation

11/03/2017

Thanks to everyone who came out and supported our Inaugural Casino & Poker Night! We appreciate you!!!

Address

7701 95th Street
Pleasant Prairie, WI
53158

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