Pediatric Palliative Care Coalition

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Pittsburgh, PA
Pediatric Palliative Care Coalition

Working together for children with medical complexity
http://www.ppcc-pa.org/

05/12/2026

We hope you will join us TOMORROW, March 13, 2026 at Noon EST for our PPCC Firefly Chat -Honoring Grief, Supporting Caregivers: Life After the Death of a Child with Medical Complexity.

During this Chat, two bereaved mothers and a bereavement social worker will highlight what grief can look like and how the grief and bereavement process can be addressed with a greater sense of understanding and compassion.

Firefly Chats are FREE, but registration is required.

https://us02web.zoom.us/webinar/register/WN_tzFRAxnKSPuI6qRn4SON2A #/registration

04/23/2026

Your experience matters—and it can help improve care for children and families across Southwestern Pennsylvania.

PPCC is seeking to connect virtually with mothers, grandmothers, sisters, aunts, and other female caregivers in Southwestern PA caring for children with medical complexity who currently use pediatric supportive, palliative, or hospice care or qualify for these services.

The information gathered supports further development of pediatric supportive, palliative, and hospice care programs for children and their families in southwestern Pennsylvania communities, as well as to enhance PPCC’s advocacy efforts throughout the state.

Learn more at https://redcap.lehigh.edu/surveys/?s=7ECJTNKC739EJXET

Please share with anyone who may be interested!

04/14/2026

Register today for the April 23rd PPC Webinar - Adolescent Palliative Care: Who Decides?

In this webinar, Dr. Macauley discuss tools for supporting and working with adolescent patients facing serious illness. This presentation will help clinicians understand the unique aspects of adolescence so that this group can receive optimal care and attention.

https://mailchi.mp/ppcc-pa/april-2026-ppc-webinar-5864508

03/03/2026

Register today for the March 2026 PPC Webinar on March 17, 2026 - The Calm and the Storm: Hypothermic Dysautonomia Througha Palliative Care Lens.

In this webinar, Dr. Vallely will review the pathophysiology of "cold" storming in children with SNI using case studies. He will also discuss dynamic goals assessment for this problem and describe how partnership with a child’s community can inform management.

https://mailchi.mp/ppcc-pa/march-2026-ppc-webinar

02/24/2026

🆕 Pediatric e-Journal Issue #82 | Trauma and Trauma-Informed Care
The latest edition of the Pediatric e-Journal is available now! The focus of this issue is trauma and trauma-informed care, specifically as they involve patients and family members.

The eJournal is available to everyone and can be downloaded from the Alliance website: https://allianceforcareathome.org/pediatric-care/pediatric-e-journal/

This e-Journal is produced by the Pediatric e-Journal Workgroup and is a program of the National Alliance for Care at Home. Archived issues of this publication are also available on the Alliance website.

02/16/2026

There is still time to register for Thursday's PPC Webinar - Sorry/Not Sorry: Identifying Emotions in Ourselves to Deepen Compassionate Communication with Others.

Pediatric palliative medical providers care for patients and families facing stressful and emotionally overwhelming illnesses, treatments and prognosis. This session explores methods for communicating with compassion while cushioning the emotional and spiritual well-being of medical providers.

https://www.tfaforms.com/5203862

02/11/2026

We hope you will join us TOMORROW, February 11, 2026 at Noon EST for our first PPCC Firefly Chat of the year.

During this Firefly Chat, a parent caregiver and a hospice social worker will discuss the emotional, spiritual, physical and logistical challenges caregivers encounter every day. Information will be shared about creating a network of support to help improve quality of life and bring joy to the child and family. In addition, the presenters will highlight resources and share tips for families striving to create a nurturing and inclusive home environment.

This event is free of charge, but registration is required.

https://us02web.zoom.us/webinar/register/WN_08DNDbZYQBKxypjUrcsVZA #/registration

02/10/2026

Register today for the 2026 PPC Webinar on February 19, 2026 - Sorry/Not Sorry: Identifying Emotions in Ourselves to Deepen Compassionate Communication with Others.

Pediatric palliative medical providers care for patients and families facing stressful and emotionally overwhelming illnesses, treatments and prognosis. This session explores methods for communicating with compassion while cushioning the emotional and spiritual well-being of medical providers.

02/06/2026

We hope you will join us Wednesday, February 11, 2026 at Noon EST for our first PPCC Firefly Chat of the year.

During this Firefly Chat, a parent caregiver and a hospice social worker will discuss the emotional, spiritual, physical and logistical challenges caregivers encounter every day. Information will be shared about creating a network of support to help improve quality of life and bring joy to the child and family. In addition, the presenters will highlight resources and share tips for families striving to create a nurturing and inclusive home environment.

This event is free of charge, but registration is required.

https://us02web.zoom.us/webinar/register/WN_08DNDbZYQBKxypjUrcsVZA #/registration

01/20/2026

There is still time to register for our first PPC Webinar of 2026: Shifting Goals of Care When Prognosis is Uncertain in Pediatric Palliative Care.

This presentation will utilize an impactful clinical case to demonstrate the importance of ongoing assessment of a family’s understanding and goals of care. Additionally, presenters will describe strategies to address family distress in the face of unclear prognostic information and to navigate shifting goals of care as patients near end of life.

Learn more at https://www.ppcwebinars.org/

Address

Pittsburgh, PA

Telephone

+14129638243

Website

http://www.ppcc-pa.org/

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