United Mitochondrial Disease Foundation

United Mitochondrial Disease Foundation The United Mitochondrial Disease Foundation provides research and support for the mito community. On a larger scale, organ systems begin to fail.
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ABOUT MITOCHONDRIAL DISEASE
Every 30 minutes, a child is born who will develop a mitochondrial disease by age 10, although the actual number of children born with the disease is thought to be much higher. In fact, recent research indicates that one in 200 people harbor a genetic mutation that can lead to mitochondrial disease in them or their offspring. Most patients suffer symptoms for years bef

ore they are accurately diagnosed with a mitochondrial disease. Mitochondrial diseases result from the failure of the mitochondria, which is located in the cells of our bodies. Mitochondria are responsible for creating more than 90% of the energy needed to sustain life and support growth. When mitochondria fail, less energy is produced causing cell injury or cell death. The disease is often debilitating. In some cases, it may result in death. Adult onset is becoming more and more common. There is no cure for mitochondrial disease.

We’re one month out from UMDF’s Energy for Life Walk in the Minneapolis suburb of St. Louis Park, MN on Saturday, August...
07/15/2026

We’re one month out from UMDF’s Energy for Life Walk in the Minneapolis suburb of St. Louis Park, MN on Saturday, August 15 at Wolfe Park. Whether you register as a walker, donate to support a team, or become a sponsor, every step taken brings more energy, hope, and momentum to thousands of patients and families nationwide.

There’s still time to be part of it. Register, donate, and learn more about corporate sponsorship opportunities by visiting: energyforlifewalk.org/minnesota.

07/14/2026

ACTION NEEDED! Saol Therapeutics has shared the New Drug Application for DCA to treat PDCD has officially been resubmitted to the FDA with "additional analyses and data." This review could take as long as six months, but with the process already approaching 600 days, we need your help to shorten that timeframe. PDCD families don’t have time to wait. Use this link to encourage your House member and Senators to ask the FDA to prioritize a timely DCA review.

Click here to take action --> https://bit.ly/4gDwzSm



Mitoaction, Cure MITO Foundation, Hope for PDCD Foundation, The Elizabeth Watt PDCD Research Fund

We’re always looking for meaningful ways to strengthen connections within the community. If you attended 2026 and wo...
07/14/2026

We’re always looking for meaningful ways to strengthen connections within the community. If you attended 2026 and would like to be connected with a UMDF Support Ambassador, we invite you to complete a brief survey so we can learn more about your needs and help connect you with the support that’s right for you. https://www.surveymonkey.com/r/mitomed2026Ambass

Catch up with the latest news in the space in UMDF’s July newsletter. Read the latest from with a full recap from Or...
07/13/2026

Catch up with the latest news in the space in UMDF’s July newsletter. Read the latest from with a full recap from Orlando, current research opportunities, and ways to get involved with UMDF this summer through our Energy for Life Walks.

To read the newsletter: https://umdf.org/july26_newsletter/
To sign up: https://umdf.org/newsletter-signup/

Participate in studies to help researchers better understand mitochondrial disease. UMDF maintains an ongoing list of st...
07/12/2026

Participate in studies to help researchers better understand mitochondrial disease. UMDF maintains an ongoing list of studies that you might be eligible to participate in as a patient or caregiver. To learn more about available research opportunities including the MNGIE & POLG Natural History Studies, Merlin study on fatigue and muscle weakness, and more, visit: https://umdf.org/studiesandsurveys/

This month, UMDF is proud to host a Primary Co-Enzyme Q10 Deficiency (PCQD) Listening Session with the FDA. Seven famili...
07/11/2026

This month, UMDF is proud to host a Primary Co-Enzyme Q10 Deficiency (PCQD) Listening Session with the FDA. Seven families will share their lived experiences with PCQD, helping elevate the voices of patients and caregivers directly to regulators. While the session is not open to the public, a report highlighting key takeaways will be released in the coming months. You can learn more about UMDF’s regulatory work at umdf.org/advocacy.

Thank you to our listening session partner, Mitoaction.

Connect with patients and families in the community at one of UMDF’s weekly virtual Support Meetings. Visit our events...
07/10/2026

Connect with patients and families in the community at one of UMDF’s weekly virtual Support Meetings. Visit our events calendar for login details for each meeting and join us. https://umdf.org/events-calendar/

Congratulations to Hugh McKinney, recipient of this year’s UMDF Heartstrings Award! The Heartstrings Award recognizes a ...
07/09/2026

Congratulations to Hugh McKinney, recipient of this year’s UMDF Heartstrings Award! The Heartstrings Award recognizes a child or teen who has made a meaningful impact through fundraising and support of UMDF. Hugh’s dedication honors the memory of his late brother, Henry, and continues to inspire hope throughout the mitochondrial disease community. Watch Hugh’s acceptance speech alongside his family, here: https://umdf.org/the-heartstrings-award/

Join us in congratulating the Kallaos family — William, Connie, Bill Jr., Bonnie, Olivia, and Liam — on being the recipi...
07/08/2026

Join us in congratulating the Kallaos family — William, Connie, Bill Jr., Bonnie, Olivia, and Liam — on being the recipients of this year's UMDF Energy Award! The Energy Award honors those who embody the spirit and mission of UMDF. Inspired by Olivia's journey with Leigh syndrome, the Kallaos family's dedication to advancing hope, awareness, and progress continues to make a lasting impact on the mito community. Watch their acceptance award video and learn more about their journey here: https://umdf.org/the-energy-award/

Congratulations to Chelsea Newberry, this year’s recipient of UMDF’s LEAP Award. LEAP stands for Living, Encouraging, Ac...
07/07/2026

Congratulations to Chelsea Newberry, this year’s recipient of UMDF’s LEAP Award. LEAP stands for Living, Encouraging, Achieving and Persisting, and Chelsea exemplifies these characteristics every day as a UMDF Support Ambassador and someone navigating a disease and a cancer diagnosis. Watch Chelsea’s acceptance speech at here: https://umdf.org/the-leap-award/

Address

8085 Saltsburg Road, Suite 201
Pittsburgh, PA
15239

Opening Hours

Monday 8am - 5pm
Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 5pm

Telephone

+14125734090

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