United Mitochondrial Disease Foundation

United Mitochondrial Disease Foundation The United Mitochondrial Disease Foundation provides research and support for the mito community. On a larger scale, organ systems begin to fail.
(2)

ABOUT MITOCHONDRIAL DISEASE
Every 30 minutes, a child is born who will develop a mitochondrial disease by age 10, although the actual number of children born with the disease is thought to be much higher. In fact, recent research indicates that one in 200 people harbor a genetic mutation that can lead to mitochondrial disease in them or their offspring. Most patients suffer symptoms for years bef

ore they are accurately diagnosed with a mitochondrial disease. Mitochondrial diseases result from the failure of the mitochondria, which is located in the cells of our bodies. Mitochondria are responsible for creating more than 90% of the energy needed to sustain life and support growth. When mitochondria fail, less energy is produced causing cell injury or cell death. The disease is often debilitating. In some cases, it may result in death. Adult onset is becoming more and more common. There is no cure for mitochondrial disease.

Conference 2026 is looking for volunteers! Interested in joining UMDF in Orlando, FL between June 17-20? We’re seeking...
05/14/2026

Conference 2026 is looking for volunteers! Interested in joining UMDF in Orlando, FL between June 17-20? We’re seeking volunteers to help with registration, event set-up, and much more. This is a great opportunity for high schoolers, college students, and retirees. For more information, visit: https://tinyurl.com/yk87b7rw

It’s estimated to take the average mitochondrial disease patient up to 8 years to get a correct diagnosis – which means ...
05/13/2026

It’s estimated to take the average mitochondrial disease patient up to 8 years to get a correct diagnosis – which means years of uncertainty, setbacks, and missed opportunities for care.

Through UMDF’s new strategic plan, we’re working to change that by expanding programs and initiatives that improve diagnosis and access to quality care for everyone affected by disease.

But we can’t do it alone. Your support of our Spring Appeal can help bring answers, support, and hope to families still searching for them.

To donate, visit: https://umdf.donordrive.com/SpringAppeal/donate

Make an impact and join sponsors like Leslie Engle, one of the sponsors behind UMDF’s Team Activate at this year’s 2026 ...
05/13/2026

Make an impact and join sponsors like Leslie Engle, one of the sponsors behind UMDF’s Team Activate at this year’s 2026 Bank of America Chicago Marathon.

For Leslie, Vice President and COO at Team Recovery, the decision to become a sponsor is deeply personal -- her son is running on behalf of her and the entire mitochondrial disease community. Her sponsorship is a meaningful way to stand behind him while supporting everyone still searching for answers, treatments, and hope for the future.

The sponsorship deadline for this year’s marathon is June 1. To learn more about available sponsorship opportunities, contact Tara Gallessich at [email protected].

We’re in the final stretch before our Energy for Life Walk in St. Louis on Saturday, May 16. There’s still time to regis...
05/12/2026

We’re in the final stretch before our Energy for Life Walk in St. Louis on Saturday, May 16. There’s still time to register, donate, or join us in person, as we come together to move the mitochondrial disease community forward, one step at a time.

To register, visit: energyforlifewalk.org/stlouis

At this year’s Conference 2026 in Orlando, FL, patients and affected families are invited to join a special program fo...
05/11/2026

At this year’s Conference 2026 in Orlando, FL, patients and affected families are invited to join a special program focused on Leigh syndrome.

On June 18 from 3:30 – 6:00 pm, leading mitochondrial experts will share Leigh Syndrome focused guidance on navigating complex care decisions, emerging treatments, and day-to-day management. The session will conclude with a live Q&A, giving families and caregivers the opportunity to connect directly with experts.

To learn more about the Leigh Syndrome Family Programming visit: https://umdfconference.org/leigh-syndrome-family-programming/

This , we honor every mother, caregiver, and mother figure whose love shows up in countless ways. To the mom’s celebrat...
05/10/2026

This , we honor every mother, caregiver, and mother figure whose love shows up in countless ways. To the mom’s celebrating, grieving, advocating, remembering, and loving, we see you and are holding space for you today and every day.

You’ve got mail. The May edition of the UMDF newsletter is live and full of exciting news and updates for the communit...
05/09/2026

You’ve got mail. The May edition of the UMDF newsletter is live and full of exciting news and updates for the community. To read the latest happenings including what you need to know ahead of 2026, upcoming virtual webinars, our Spring Appeal, and so much more, visit: https://umdf.org/may26_newsletter/

Not signed up for our newsletter? Sign up to stay in the know: https://umdf.org/newsletter-signup/

Join UMDF each week at one of our Virtual Support Meetings to connect with patients and families navigating a diagnosi...
05/08/2026

Join UMDF each week at one of our Virtual Support Meetings to connect with patients and families navigating a diagnosis. Visit our events calendar for upcoming meetings and login details. https://umdf.org/events-calendar/

05/07/2026

Ready, set…scroll! UMDF’s mobile app for this year’s Conference 2026 is now live and is where you’ll find easy access to things you need to know about attendees, speakers, exhibitors, sessions, and more. Download the app for IOS and Android today to join the conference community online!

From no treatments to real breakthrough’s, this is what progress looks like. Since UMDF’s inception 30 years ago, the mi...
05/06/2026

From no treatments to real breakthrough’s, this is what progress looks like. Since UMDF’s inception 30 years ago, the mitochondrial disease community has seen meaningful advancements, including two new approved therapies that are bringing hope to patients and families.

When you support our Spring Appeal, you’re allowing us to build on that momentum by helping UMDF invest in research, expand impact, and work toward a future free from the challenges of mitochondrial disease.

To donate, visit: https://umdf.donordrive.com/SpringAppeal/donate

On , we honor the individuals who are at the heart of every patient’s journey. Thank you nurses for all that you do to ...
05/06/2026

On , we honor the individuals who are at the heart of every patient’s journey. Thank you nurses for all that you do to care for patients and families in the community, and the impact you make every day. Give a shoutout to a nurse who’s made a difference in your life and tag us on social media so we can reshare!

Address

8085 Saltsburg Road, Suite 201
Pittsburgh, PA
15239

Opening Hours

Monday 8am - 5pm
Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 5pm

Telephone

+14125734090

Website

Alerts

Be the first to know and let us send you an email when United Mitochondrial Disease Foundation posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to United Mitochondrial Disease Foundation:

Shortcuts

Featured

Share

Category