The TBCK Foundation

The TBCK Foundation We are a non-profit dedicated to advancing research, advocacy, and education for TBCK Syndrome.

❄️🏨 Don’t Forget to Book Your Hotel! 🏨❄️The countdown to TBCK Conference 2026: Snowflakes in July is on! Stay close to a...
07/02/2026

❄️🏨 Don’t Forget to Book Your Hotel! 🏨❄️

The countdown to TBCK Conference 2026: Snowflakes in July is on! Stay close to all the conference fun by reserving your room in our hotel block at the Hyatt Regency Aurora-Denver Conference Center.

While you’re making your travel plans, don’t forget to grab your tickets for the Black Ties for Rare Gala 2026! Whether you’re attending the conference, the gala, or both, we can’t wait to see our rare disease community come together for an unforgettable weekend.

🏨 Hotel Booking:
https://www.hyatt.com/events/en-US/group-booking/DENHY/G-7FCR

🎟️ Black Ties for Rare Gala Tickets:
https://www.eventbrite.com/e/black-ties-for-rare-gala-2026-tickets-1983497714057?aff=oddtdtcreator

🔗 Quick Access Link:
https://flowcode.com/p/eG8R4b5ULX

❄️ Conference Dates: July 17–19, 2026
✨ Gala: July 19, 2026

We can’t wait to make memories, build connections, and celebrate our incredible TBCK community together. 💙🩷💛

❄️ When you purchase a personalized snowflake, your name (or the name of someone you love) will be displayed on our conf...
07/01/2026

❄️ When you purchase a personalized snowflake, your name (or the name of someone you love) will be displayed on our conference wall and at our Black Ties for Rare Disease Gala. Your personalized message will join with hundreds of others in a stunning visual tribute to the rare disease community. Together, we aren’t just snowflakes — we start an avalanche!
Every dollar helps us make sure no rare family feels alone.
Choose your snowflake tier and add your name, or honor someone special to grow an avalanche of care.
$100 — Gold Snowflake | Premier recognition + name on display + listed in the event program
$75 — Blue Snowflake | Name on display + listed in the event program
$50 — Pink Snowflake | Name on display
$25 — Teal Snowflake | Name on display
Every snowflake is rare. Every gift matters. Let’s create an avalanche.
https://tbckfoundation-bloom.kindful.com/?campaign=1416075

✨ Colorado, we’re coming! ✨This July, we’re bringing the rare disease community together for an unforgettable weekend of...
06/30/2026

✨ Colorado, we’re coming! ✨

This July, we’re bringing the rare disease community together for an unforgettable weekend of connection, education, advocacy, and celebration. 💙🩷💛

📍 TBCK Conference 2026
🗓️ July 17–19
📍 Children’s Hospital Colorado

Then join us for…

🖤 Black Ties for Rare: A Gala for Rare Disease
🗓️ July 19 | 5:00–10:00 PM
📍 Hyatt Regency Aurora–Denver

Whether you’re attending the conference, the gala, or both, we’d love to see you there! Every rare disease family, advocate, clinician, researcher, and supporter is welcome. Together, we can make a difference. 💜

🎟️ TBCK Conference Registration:
https://flowcode.com/p/eG8R4b5ULX

🎟️ Black Ties for Rare Gala Tickets:
https://www.eventbrite.com/e/black-ties-for-rare-gala-2026-tickets-1983497714057?aff=oddtdtcreator

Whether you’ve shared your family’s journey, participated in a parade, hosted a fundraiser, raised awareness online, wor...
06/28/2026

Whether you’ve shared your family’s journey, participated in a parade, hosted a fundraiser, raised awareness online, worn your TBCK gear, or simply had a conversation that helped someone learn about TBCK syndrome—we want to celebrate YOU! 💛🩷

Advocacy looks different for every family, and that’s what makes our community so special.

📸 Share your photos, videos, events, fundraisers, media appearances, awareness campaigns, or any way you’ve been advocating for TBCK syndrome. We’d love to feature and celebrate the amazing work happening around the world!

Drop your photos in the comments, tag us, or send us a message. Let’s inspire one another and continue raising awareness—together. 🦓💙

❄️🏨 Don’t Forget to Book Your Hotel! 🏨❄️The countdown to TBCK Conference 2026: Snowflakes in July is on! Stay close to a...
06/23/2026

❄️🏨 Don’t Forget to Book Your Hotel! 🏨❄️

The countdown to TBCK Conference 2026: Snowflakes in July is on! Stay close to all the conference fun by reserving your room in our hotel block at the Hyatt Regency Aurora-Denver Conference Center.

While you’re making your travel plans, don’t forget to grab your tickets for the Black Ties for Rare Gala 2026! Whether you’re attending the conference, the gala, or both, we can’t wait to see our rare disease community come together for an unforgettable weekend.

🏨 Hotel Booking:
https://www.hyatt.com/events/en-US/group-booking/DENHY/G-7FCR

🎟️ Black Ties for Rare Gala Tickets:
https://www.eventbrite.com/e/black-ties-for-rare-gala-2026-tickets-1983497714057?aff=oddtdtcreator

🔗 Quick Access Link:
https://flowcode.com/p/eG8R4b5ULX

❄️ Conference Dates: July 17–19, 2026
✨ Gala: July 19, 2026

We can’t wait to make memories, build connections, and celebrate our incredible TBCK community together. 💙🩷💛

TBCKFamily RareButNotAlone SeeYouInDenver

Happy Father’s Day to the incredible TBCK dads! 💙Today, we celebrate the fathers who show up for every therapy session, ...
06/21/2026

Happy Father’s Day to the incredible TBCK dads! 💙

Today, we celebrate the fathers who show up for every therapy session, hospital stay, milestone, and challenge. Thank you for your love, advocacy, patience, and unwavering support.

As we honor these amazing dads, help us create an Avalanche of Care. Every snowflake added to our wall honors someone rare and helps support families affected by TBCK syndrome.

❄️ Dedicate a snowflake today:
https://tbckfoundation-bloom.kindful.com/?campaign=1416075

To all the TBCK dads—we see you, appreciate you, and celebrate you today and every day. 💚

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Chicago, IL

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+12699213455

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