Community Liver Alliance

06/04/2026

06/03/2026

📢 Your Voice Can Help Shape the Future of Liver Care

What outcomes matter most to people living with liver disease?

The International Consortium for Health Outcomes Measurement (ICHOM) is developing a global set of patient-centered outcome measures for liver disease—and they want to hear from patients, caregivers, and advocates.

This important initiative aims to ensure that healthcare providers around the world measure what matters most to patients, including:
✅ Quality of life
✅ Disease progression
✅ Treatment outcomes
✅ Clinical complications
✅ Overall well-being

By taking a few minutes to complete this survey, you can help improve liver care, increase transparency, and ensure future healthcare decisions reflect the real experiences of people affected by liver disease.

📝 Take the survey here:
https://ichom.co1.qualtrics.com/jfe/form/SV_cCvnDgLFhhsseAm

⏰ Survey closes June 20.

Your experience matters. Your voice matters. Help shape the future of liver health worldwide.

Qualtrics sophisticated online survey software solutions make creating online surveys easy. Learn more about Research Suite and get a free account today.

06/03/2026

Did you know ..... Join our MASH Challenge Today.

06/02/2026

🌟 Partner Spotlight: Carla Sofronski & Pennsylvania Harm Reduction Network (PAHRN)

Meet Carla Sofronski, Co-Founder and Executive Director of the Pennsylvania Harm Reduction Network (PAHRN), a statewide organization dedicated to advancing harm reduction through education, advocacy, and coalition building.

As a person in long-term recovery, Carla's work is deeply personal. PAHRN works to ensure people who use drugs are treated with dignity and have access to life-saving resources, while addressing critical public health issues such as hepatitis C prevention, liver health, overdose prevention, and access to care.

Carla believes that harm reduction is healthcare and that reducing stigma is essential to improving health outcomes. Through partnerships, education, and advocacy, PAHRN is helping build more equitable systems of care where individuals can access support without barriers or judgment.

The Community Liver Alliance is proud to partner with organizations like PAHRN that are advancing liver health, prevention, and community wellness across Pennsylvania.

Learn more at www.pahrn.org

05/30/2026

As we wrap up Hepatitis Awareness Month, it’s important to remember that viral hepatitis continues to disproportionately impact Hispanic and Latino communities, where barriers to awareness, screening, diagnosis, and treatment can contribute to delayed care and poorer health outcomes. National Hispanic Hepatitis Awareness Day was created to help shine a light on these disparities, promote testing and vaccination, and encourage culturally responsive education and community engagement.

At the Community Liver Alliance, we believe awareness is the first step toward prevention, early detection, and better liver health for all. Together, we can help reduce stigma, expand access to care, and ensure that every community has the resources and information needed to protect their health. 💚

05/29/2026

Exciting news in the fight against chronic hepatitis B. GSK announced new data showing that bepirovirsen achieved functional cure rates in patients with chronic hepatitis B, representing a significant step forward in a disease area where treatment has traditionally required lifelong management. Researchers and advocates across the liver community are hopeful that advances like this could help transform future care and improve outcomes for millions of people worldwide living with hepatitis B. 💙

At the Community Liver Alliance, we remain committed to raising awareness, supporting patients, and sharing important developments in liver health research. Progress like this highlights why continued investment in education, advocacy, research, and early detection matters.

05/27/2026

We'll see you there. Save the Date

05/27/2026

Register now!

🗣 Free Webinar | "Assessing Liver Disease: What Do All These Tests Mean?"

Join us on Wednesday, June 17th at 8pm ET for a free virtual talk presented by Dr. Benjamin Shneider.

At the 2023 PFIC Family & Scientific Conference, Dr. Shneider delivered one of the most popular sessions, breaking down the stages of PFIC disease progression and explaining the tests doctors use to monitor it, in lay-friendly terms anyone can understand. Now, in preparation for this summer's conference, he's back with a virtual update!

🗓️ Wednesday, June 17 | 8pm ET 💻 Free & open to all
🔗 Register here or use the link our bio: https://us06web.zoom.us/meeting/register/hIaX_fsnTDu6x6CB8_DcMg #/registration

About the speaker: Dr. Shneider is the Service Chief of Pediatric Gastroenterology, Hepatology and Nutrition at Texas Children's Hospital and a Professor of Pediatrics at Baylor College of Medicine. He has spent much of his career researching and treating cholestatic liver diseases like PFIC.