TBCUnited

10/14/2026

As gatherings with family and friends pick up this fall, many people with AGS feel a quiet kind of stress. One patient in our AGS study shared that their family tries to accommodate but just does not understand.

If that is you, we see you. Good intentions are not the same as understanding, and explaining your condition again and again is exhausting.

Here is what we hope you hear. Your needs are real, even when the people who love you are still learning.

If someone you love has AGS, start by asking how you can help. Then listen to their answer.

Learn more at TBCUnited.org
Jennifer Platt, DrPH | Founder and Co-Executive Director, TBC United

10/10/2026

If you have ever sat in an exam room knowing more about your condition than the person treating you, you are not alone. One patient in our AGS study said it plainly.

This is not about blaming providers. Alpha-gal syndrome is still unfamiliar to many of them, and patients are often the first to connect the dots. But you should not have to teach your own care team.

That is why this work matters to me. At Tick-Borne Conditions United, we work to bridge the gaps between patients, providers, and the clinical evidence so you can find care from someone who recognizes the signs.

Your voice is how we’ll get there. Keep sharing it.

Learn more at TBCUnited.org
Jennifer Platt, DrPH | Founder and Co-Executive Director, TBC United

10/03/2026

As we head into fall, I don't want you to stop thinking about ticks. Awareness should not be seasonal.

Ticks are still active right now. People are still getting bitten. And people living with conditions like ehrlichiosis, spotted fever rickettsiosis, and alpha-gal syndrome still need providers who recognize the signs and know how to diagnose and treat them.

That is why our work at TBCUnited matters so much to me. You can help bridge the gap between patients, providers, and the clinical evidence so people get the care they need, no matter the season.

Support our work at TBCUnited.org
Jennifer Platt, DrPH | Founder and Co-Executive Director, TBC United

10/02/2026

For the first time, alpha-gal syndrome is explicitly included in a presidential directive addressing tick-borne disease prevention, treatment, research and labeling.

By the authority vested in me as President by the Constitution and the laws of the United States of America, it is hereby ordered: Section 1. Background Every child deserves a safe and nurturing home where they can learn, grow, and reach their full potential. Adoption makes that possible by opening....

09/26/2026

Our Reddit AMA in r/AlphaGal brought in so many incredible questions, and I loved sitting down to answer them one by one.

One question really stuck with me. Why am I not dairy reactive but lactose in medication gives me reactions?

Here is what I shared. Some health care providers will add the milk IgE to your allergen panel to see if you show an allergy to the milk protein. Per our Board chair, Dr. Tina Merritt, MD, that is a good protocol if you want to continue with dairy in your diet but don't have any noticeable reactions.

In regards to whether exposure causes hidden or unknown inflammation, the science has not caught up. I've seen opinions across the spectrum on this.

The full AMA is still up on Reddit and it lives there for good, so if you have a similar question, there is a good chance someone already asked it.

Read the full thread: reddit.com/r/alphagal/s/A0fVldmvT9
Learn more at TBCUnited.org
Jennifer Platt, DrPH | Founder and Co-Executive Director, TBC United

09/22/2026

Starting in one hour! I'm going live on Reddit's r/AlphaGal at 11:00 AM ET to answer your questions about alpha-gal syndrome, our newest research, diagnosis, symptoms, and everything in between. Head to r/AlphaGal now to get your questions in. https://www.reddit.com/r/alphagal/s/u8lSEBRRxf
Learn more at TBCUnited.org.
Dr. Jennifer Platt, DrPH | TBCUnited

https://www.reddit.com/r/alphagal/s/f2bwp0rroz

Explore this post and more from the alphagal community

09/21/2026

Tomorrow's the day! I'm going live on Reddit's r/AlphaGal to answer your questions about alpha-gal syndrome directly, diagnosis, symptoms, testing, and living with AGS day to day, all on the table. I'll also be talking about our newest published research, a survey of more than 3,400 people living with AGS. Join me live tomorrow, from 11:00 AM to 1:00 PM ET on r/AlphaGal. Questions are already open on the thread, so drop yours now if you can't wait.
https://www.reddit.com/r/alphagal/s/IIgnFVb13H
Learn more at TBCUnited.org.
Dr. Jennifer Platt, DrPH | TBCUnited

Explore this post and more from the alphagal community

09/14/2026

Next week I'm going live on Reddit's r/AlphaGal to answer your questions about alpha-gal syndrome directly, diagnosis, symptoms, testing, and living with AGS day to day, all on the table. I'll also be talking about our newest published research, a survey of more than 3,400 people living with AGS. Join me live Tuesday, September 22, from 11:00 AM to 1:00 PM ET on r/AlphaGal. Questions are already open on the thread, so drop yours now if you can't wait.

Learn more at TBCUnited.org.
Dr. Jennifer Platt, DrPH | TBCUnited

09/11/2026

Look at the numbers and you will see why this matters. Several colleagues and I just published the largest alpha-gal syndrome patient survey ever conducted, and 3,437 patients like you shared their experiences, revealing just how far AGS reaches into daily life.

If you live with AGS, these numbers might sound familiar. 67 percent of patients reported reactions to dairy. 41 percent reported reactions to prescription medications, ingredients you might never think to question. And only about 5 percent used epinephrine to treat a reaction.

These numbers point to a gap in awareness you can help us close. The more people who understand AGS, the smaller that gap gets.

Learn more at TBCUnited.org
Jennifer Platt, DrPH | Founder and Co-Executive Director, TBC United

09/09/2026

You might think tick season winds down once the leaves change. Ticks disagree. Lone star ticks stay active well into fall, right up until the first hard frost hits your area, so your prevention habits still matter.

I am excited to share that several colleagues and I just published the largest alpha-gal syndrome patient survey ever conducted, gathering input from over 3,400 people living with AGS. It confirms what you and so many others have told us for years. Diagnosis takes too long. On average, patients waited 4.3 years for an answer.

That wait matters to me and to this whole community. Every time a tick bite goes unrecognized is another chance for AGS to go undiagnosed.

Learn more at TBCUnited.org
Jennifer Platt, DrPH | Founder and Co-Executive Director, TBC United