Parkinson & Movement Disorder Alliance

Parkinson & Movement Disorder Alliance We provide essential resources to those living with a movement disorder and to the loved ones and professionals supporting them.

With on-demand education and local events, we meet people where they are with the promise: there’s a place for you here. We’re the Parkinson & Movement Disorder Alliance — an independent, national nonprofit dedicated to providing opportunities for people to learn, live more fully and spark meaningful connections around them.

10/12/2026

Do you ever feel like your doctor is not really hearing you? Like they can't quite understand the impact your symptoms have on your life? Try these practical tips from Rachel Dolhun, MD, DipABLM, the Principal Medical Advisor at the The Michael J. Fox Foundation for Parkinson's Research, to help your doctor home in on what you're saying and hear what you really need. https://www.michaeljfox.org

Watch our full conversation on YouTube: https://youtu.be/Bhyf9mkuj8k

TUESDAY: Optimizing your diet can be overwhelming, especially if you don't know what to focus on to help manage your spe...
10/11/2026

TUESDAY: Optimizing your diet can be overwhelming, especially if you don't know what to focus on to help manage your specific symptoms. Get a science-based understanding of what to prioritize from immunology professor Heather Zwickey, PhD, whose research examines the health effects of diet, botanicals, probiotics, and more.

WEDNESDAY: Medicare open enrollment is coming up, and we want you to make your selections fully informed by expert guidance! Learn from Dana Saffel, PharmD, BDGP, CPh, FASCP about the latest changes to Medicare plans and how to navigate open enrollment to find the best plan for your needs.

*NOTE: Tuesday's event is for YOPN (Young Onset Parkinson's Network) Members ONLY. Non-members who register will receive an email invite to join YOPN if they qualify.

Register for FREE: pmdalliance.org/upcoming-programs/

10/09/2026

El Dr. Martínez comparte su opinión sobre cómo abordar de manera abierta, respetuosa y segura la conversación sobre terapias alternativas con el neurólogo. https://loom.ly/WbMC4r8

Dr. Martinez shares his thoughts on how to openly, respectfully, and safely approach the conversation about alternative therapies with the neurologist.

"I don't think there was a day in my childhood when Dad didn't play his guitar. I remember him playing all sorts of song...
10/08/2026

"I don't think there was a day in my childhood when Dad didn't play his guitar. I remember him playing all sorts of songs, whether we were outside in the yard or sitting inside in the living room. I had a toy harmonica that I played around with and we'd put on silly concerts in the bed of his pickup truck while it was parked in the driveway and make the neighbors laugh. He'd play while sitting in his computer chair and even attempted to teach me. And then he got diagnosed about a year ago. He hasn't played in over a year.

"His physical therapist is having him practice playing. It hurts his hands and he can only play so many chords at a time. But I just took this photo and I couldn't be more excited for him."

Wow, what an incredible opportunity to connect with early-career neurologists from across the world at the International...
10/07/2026

Wow, what an incredible opportunity to connect with early-career neurologists from across the world at the International Parkinson and Movement Disorder Society's Congress in Seoul, Korea! Our Deputy CEO Rebecca Korduner and Clinical Director Kelly Papesh were in attendance, and between a scavenger hunt in partnership with Association of Movement Disorder Advanced Practice Providers and organizing a group trip to a night market, they continued doing vital work to connect doctors with resources and professional community to keep them in practice longer. (Shoutout to Julie Kurek, MD for joining the group outing!)

10/07/2026

"I have been stuck without [my medication] for days because the pharmacy won't let me do early refills because there's a hard stop for my insurance." Kelsey, who has young onset Parkinson's, is pushing back on FDA limits on daily dosages for rescue medications. Taking more than the recommended daily limit on the days she feels she needs it has kept her from "parenting from the couch."

"The stigma is unlike any other illness," filmmaker Michelle Merman says about dementias like Alzheimer’s and Lewy Body....
10/06/2026

"The stigma is unlike any other illness," filmmaker Michelle Merman says about dementias like Alzheimer’s and Lewy Body. "There’s just a lack of information, lack of advocacy, lack of media representation so that people aren’t able to speak for themselves in the course of these diseases.”

By witnessing and sharing people's dementia stories, Michelle not only raises awareness, but she offers what we all crave: to be seen. To have hope.

“People trust me with their stories," she said. "And their stories are often heartbreaking and enraging to hear. But as I’m listening to someone tell me their story, there’s something incredibly hopeful in the process of articulation…It’s stories that allow us to take it outside of ourselves, to look at it and say, ‘Oh, this is where the loss is. This is where the connection is. This is where my childhood is. This is where my future is. This is what I love.’" What was once stuck inside opens—and, even if it’s just a crack, the light gets in.

Read on: https://loom.ly/11Qp_5U

Thank you Rockville, MD for helping us round out 2026 with a packed house for our final in-person event! We had a blast ...
10/05/2026

Thank you Rockville, MD for helping us round out 2026 with a packed house for our final in-person event! We had a blast co-hosting this workshop alongside Rock Steady Boxing Rockville and in partnership with Acadia to create an experience combining expert education and local connection.

Special thanks to our featured speakers:
🟢Ramsey Falconer, MD
🔵Steven E. Lo, MD
🟣Cheryl Watkins, MSOTR/L

10/05/2026

Have you ever been in an appointment with a doctor who spends the whole visit facing away from you, typing at the computer? Movement disorder specialist Julie Kurek, MD, explains how new digital tools are helping her stay present with her patients.

Watch our full YouTube conversation with Dr. Kurek: https://loom.ly/e0nLZQE

Thank you to the Louisiana Walks for Parkinson's team and community for having us! Our Director of Community Education, ...
10/05/2026

Thank you to the Louisiana Walks for Parkinson's team and community for having us! Our Director of Community Education, Kelly Merkel, MEd, was fortunate to be attendance, and we were all impressed with the quick pivot and perseverence despite the weather. 👏👏👏

Address

2030 W Baseline Road #182-6207
Phoenix, AZ
85041

Telephone

+18002560966

Website

Alerts

Be the first to know and let us send you an email when Parkinson & Movement Disorder Alliance posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share

Category