Cystic Fibrosis Foundation - Arizona Chapter

06/01/2026

65 Roses Day (6/5) is around the corner! Are you familiar with the “65 Roses” story?

The “65 Roses” story began in 1965 when a 4-year-old, hearing the name of his disease for the first time, pronounced cystic fibrosis as “65 Roses.” Today, it’s a term many children with CF still use to describe their disease. But making the disease easier to say doesn’t make it easier to live with.

05/24/2026

One week ago, our Arizona Xtreme Hike participants were making their way through the Grand Canyon — pushing past limits, building community, and taking in unforgettable moments like this one at Phantom Ranch. 🥾⛰️

A special thank you to Chamois Butt'r for supporting our hikers as an in-kind supporter.

05/22/2026

Our walkers, team leaders, volunteers, and so many more make Great Strides more than just an event — it’s a movement. Alongside our Great Strides sponsors: Vertex, AbbVie, and Nestle Health Science, we can help end cystic fibrosis.

05/21/2026

As we wrap up Cystic Fibrosis Awareness Month, we are grateful for everyone who raised awareness and supported the CF community. Together, we will keep pushing forward until we find a cure for all people with cystic fibrosis. Get involved in an upcoming event or make a donation to help make it possible.
https://give.cff.org/arizona/donate?rbref=homepage

05/15/2026

This CF Awareness Month, we’re shedding light on the unseen struggles of cystic fibrosis. Bradley Poole navigated life with CF alongside anxiety, OCD, and depression. Through treatment, mental health support, and fitness, he’s learned how to turn struggle into strength.


“I was born with cystic fibrosis, so hospitalizations, treatments, and uncertainty were part of my normal. But what people didn’t see was the mental side of that fight. The anxiety, the depression, and the constant question in the back of my mind: Why me? There was also the fear that came with it — fear of dying young, fear of not having control over my future.”

I’ve spent my life navigating cystic fibrosis alongside anxiety, OCD, and depression — struggles that once led me to numb everything with alcohol until a wake‑up call changed everything. Through treatment, mental health support, and fitness, I’ve learned how to turn struggle into strength.

05/15/2026

Here we go again - Grand Canyon or bust! Best of luck to this incredible group of hikers who have worked so hard training and fundraising to make a difference for people living with CF. Still time to support your favorite hiker or team. https://fundraise.cff.org/grandcanyonsummerxtremehike

05/15/2026

Have you taken, or are you currently taking, a cystic fibrosis modulator like Kalydeco, Orkambi, Symdeko, Trikafta, or Alyftrek? Join the next CF Circle, a virtual small-group discussion, on May 19 at 7 p.m. ET to talk openly about physical and mental health changes that may have come with modulators.

CF Circles are a space to share, support each other, and hear from people who understand what you’re going through. This session is open to adults with cystic fibrosis.

05/14/2026

Look who we saw on TV -- a familiar face from our CF community! 💜

Thank you Rebecca Duckworth for talking about Cystic Fibrosis Awareness month and sharing your story.

Cystic fibrosis is a rare genetic disease that affects tens of thousands of people in the United States, impacting the lungs, pancreas, and other vital organs