HDSA-Arizona Chapter

HDSA-Arizona Chapter HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease and their families.

As the Arizona chapter, we are dedicated to supporting our HD community and continuing to fight for a cure. Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral and physical control, and for which, presently, there is no treatment or cure. HD slowly diminishes the affected individuals ability to walk, think, talk and re

ason. Symptoms usually appear in an individual between 30 and 50 years of age and progress over a 10 to 25 year period. Eventually, a person with HD becomes totally dependent upon others for his or her care. More than 30,000 people in the United States are currently diagnosed with HD and 200,000 are at risk. Each of their siblings and children has a 50 percent risk of developing the disease. Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD.

04/29/2026

Join us in Phoenix, Arizona for the 41st Annual from June 25-27!

With, incredible workshops, world-renowned presenters, and the latest in Research - the HDSA Convention is an unforgettable experience.

You can secure your spot today by visiting: https://hdsa.org/about-hdsa/annual-convention/

04/24/2026

As National Volunteer Week comes to a close, hear from HDSA President and CEO Amy Gray as she reflects on the profound impact that our wonderful HDSA Volunteers make on a daily basis.

A special thank you to all of our dedicated our volunteers, and everyone who joined in on the celebration this week!

Check back throughout the month as we continue to highlight, and celebrate the heroes of our community! 💙💪

Join us in Phoenix, Arizona for the 41st Annual from June 25-27!You can secure your spot today by visiting: https://hd...
04/17/2026

Join us in Phoenix, Arizona for the 41st Annual from June 25-27!

You can secure your spot today by visiting: https://hdsa.org/about-hdsa/annual-convention/

Featuring, incredible workshops, world-renowned presenters, and the latest in Research - the annual HDSA Convention is an unforgettable experience.

04/13/2026

There is still time to take action as part of HDSA’s Day of Action.

Every call and every email helps strengthen the voice of the Huntington’s disease community. Visit HDSA.org/HDdayofaction and take action before the day ends.

Have you taken action yet? It only takes a few minutes to help make sure Congress hears from the Huntington’s disease co...
04/13/2026

Have you taken action yet?

It only takes a few minutes to help make sure Congress hears from the Huntington’s disease community.

Call, email, and take action now at HDSA.org/HDdayofaction

04/13/2026

Today is HDSA’s Day of Action.

Families impacted by Huntington’s disease need to be heard, and today we are coming together to raise our collective voice.

Take action now:
Call your Member of Congress
Send an email
Visit HDSA.org/HDdayofaction

04/11/2026

Only two days remain until HDSA’s Day of Action, and the time to speak up is now. Thank you to every advocate, family member, caregiver, and supporter helping lift up the voices of those impacted by Huntington’s disease.

You can start taking action today by writing a Letter to the Editor, then join us again on April 13. Visit HDSA.org/HDdayofaction for information and updates.

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Phoenix, AZ

Telephone

+12122421968

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