06/10/2026
ALS advocacy is working.
Because advocates across the country continue to speak up, recent House spending bills include several important ALS priorities, including support for ALS research, the National ALS Registry and Biorepository, ACT for ALS, FDA rare neurodegenerative disease programs, and efforts to strengthen ALS care and research for veterans.
These are meaningful steps forward—but they are not the finish line.
As Congress continues work on 2027 funding, we need to keep the momentum going.
Urge your lawmakers to support federal funding for ALS research, expanded access, treatment development, care, and programs serving veterans living with ALS: tinyurl.com/ALSFundingSupport
