NF Family Association

NF Family Association NF Family Association, a parent volunteer group that exists to support families and individuals at CHOP who are affected by Neurofibromatosis.

The Neurofibromatosis (NF) Family Association is a parent volunteer group that exists to support families and individuals at The Children’s Hospital of Philadelphia (CHOP) who are affected by NF1, NF2 or Schwannomatosis Our goal is to help enhance and expand CHOPS NF Clinical service and research endeavors, and build an NF community through robust educational and fundraising activities.

We’re just 13 days away from our 2026 Spring Picnic. Please be sure to let us know you’re coming. (Please include the nu...
04/13/2026

We’re just 13 days away from our 2026 Spring Picnic. Please be sure to let us know you’re coming. (Please include the number of people in your group.)

Save the date for our spring picnic!
03/11/2026

Save the date for our spring picnic!

Join us for a Neurofibromatosis symposium
10/18/2025

Join us for a Neurofibromatosis symposium

NF Northeast's Steps2Cure NF Walk is right around the corner. Registration starts at 9:00 amWalk starts at 10:00 amEnjoy...
04/15/2025

NF Northeast's Steps2Cure NF Walk is right around the corner.
Registration starts at 9:00 am
Walk starts at 10:00 am
Enjoy a beautiful 1.5 mile walk around Wilson Farm Park.
Registration information: Steps2Cure NF 2025 - Steps2Cure NF - Greater Philadelphia 2025
Questions: Sara-Jane ~ [email protected] ~ 7819272-9936

Let us know you’re coming to the spring picnic. Please RSVP by Sat 4/19.
04/15/2025

Let us know you’re coming to the spring picnic. Please RSVP by Sat 4/19.

Please remember to RSVP for the spring picnic.
04/09/2025

Please remember to RSVP for the spring picnic.

Please save the date for our 2025 spring picnic. 🧺
03/03/2025

Please save the date for our 2025 spring picnic. 🧺

Tomorrow is the last day to register for the 2024 Neurofibromatosis Symposium taking place on October 5th.
09/26/2024

Tomorrow is the last day to register for the 2024 Neurofibromatosis Symposium taking place on October 5th.

This symposium will provide information about advances in neurofibromatosis (NF) research and care.

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Philadelphia, PA

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