MDA ALS Center of Hope

MDA ALS Center of Hope MDA ALS Center of Hope. The MDA ALS Center of Hope is located at Temple University College of Medicine. It is supported by the ALS Hope Foundation and the MDA.

The Center opened in 1994 and the experienced and knowledgeable staff have dedicated themselves to the care and support of people living with ALS and their families.

😢
10/02/2026

😢

09/27/2026
09/23/2026

Encouraging news for the FUS-ALS community. Otsuka and Ionis Pharmaceuticals have announced positive topline results from the Phase 3 FUSION trial of ulefnersen, an investigational RNA-targeted medicine for FUS-ALS, a rare, often rapidly progressive genetic form of ALS.

The study met its primary endpoint, showing a statistically significant improvement over placebo on a combined measure of function and survival. Secondary endpoints were also supportive, and the treatment was generally well tolerated. FUSION is the first placebo-controlled trial targeting the underlying genetic cause of FUS-ALS.

Ulefnersen is still investigational and not yet approved. The companies plan to discuss the results with the FDA and other health authorities. Thank you to the participants, families, investigators, and advocates who made this possible. 💙 Learn more at otsuka.com/news

It was a rainy day, but that didn’t stop us! 💛💙💚
09/23/2026

It was a rainy day, but that didn’t stop us! 💛💙💚

We would love to see you this Sunday at Hope Walks for ALS! 👩‍🦼‍➡️If you don’t want to chance the rain, ☔️ feel free to ...
09/18/2026

We would love to see you this Sunday at Hope Walks for ALS! 👩‍🦼‍➡️If you don’t want to chance the rain, ☔️ feel free to donate to Team Center of Hope!!🥰

07/20/2026

Traveling with ALS comes with unique questions—but you don't have to navigate them alone.

Join our panel of clinicians and community members for an honest conversation about preparing for travel, overcoming challenges, and making meaningful experiences possible.

Bring your questions for the live Q&A.

Register here: https://buff.ly/jRZip7T

💛💙
07/02/2026

💛💙

06/23/2026

Every year on June 21, coinciding with the solstice, we honor our global community on Global ALS/MND Awareness Day and join with them in raising awareness. The fight against ALS/MND is truly worldwide. 🌎

Address

3401 N Broad Street, D101
Philadelphia, PA
19140

Opening Hours

9am - 5pm

Telephone

+12157077261

Website

Alerts

Be the first to know and let us send you an email when MDA ALS Center of Hope posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to MDA ALS Center of Hope:

Shortcuts

Share

Category