06/08/2026
I’m honored to share that I spent the last four days at the 22nd International Conference of Human Retrovirology: HTLV and Related Retroviruses in Philadelphia, alongside more than 200 researchers, clinicians, advocates, and public health leaders from around the world—including the United States, United Kingdom, Brazil, Japan, Australia, Lebanon, Peru, Chile, Jamaica, and many more.
Over four days, we discussed the latest advances in HTLV and ATLL research, clinical trials, patient care, education, policy, and advocacy. Most importantly, we talked about the future and the hope that comes with it.
As someone who lost my mom to , I know how isolating this disease can feel. It was incredibly moving to be surrounded by hundreds of people who have dedicated their careers and lives to understanding and finding better treatments and, ultimately, a cure.
One of my biggest takeaways from this conference is that raising awareness about HTLV is SO important. Every conversation, every patient story, every research breakthrough, and every advocate helps move us closer to a future where fewer families have to experience the pain that so many of us know firsthand.
For everyone in this community: please remember that you are not alone. There are hundreds of researchers, doctors, nurses, advocates, and fellow patients around the world working every day to improve outcomes for people affected by HTLV and ATLL.
I left Philadelphia feeling hopeful, energized, and more committed than ever to raising awareness and supporting this community. Thank you to everyone who shared their knowledge, experiences, and dedication throughout the conference. The work being done gives me hope that meaningful progress is ahead.
And thank you to my mom, all of the fellow ATLL patients & their loved ones for continuing to fight for a better tomorrow 🙏🏾🕊️❤️🎗️
