Mended Little Hearts of Pensacola

09/27/2023

Just two more days until our Hearts Around the World Race and Photo Campaign begin! Join us on to kick off these two fun components of our World of Support fundraiser. Visit the links below to register for our virtual run/walk and to learn more about our Hearts Around the World Photo campaign.

Race Registration: https://www.mightycause.com/event/Worldofsupport2023

Photo Campaign: https://woobox.com/fs5vmg

09/21/2023

"As an adult CHD patient, be grateful! Be alive, and live as best you can with what you have! Life throws curveballs every day, and you will find you can hit them."

Have you read our blog post "Battle Scars"? Mark Buttell shares his story of living with Tetralogy of Fallot (ToF). His inspiring story of his and his relationship with his scars is an incredible read for , , and young . Visit the link in our bio to see how Mark is living life in his 50's with .

🔗https://mendedhearts.org/battle-scars/

09/20/2023

: It's time to add another definition to our glossary! Have you heard the term when discussing your child's heart condition? Check out our definition below and share it with others who may need it!

🫀Ischemia: A lack of blood supply to an organ or tissue.

08/22/2023

Have your registered for MHI’s World of Support: Hearts Around the World Race annual fundraiser? The virtual race starts on September 29th, World Heart Day, and ends on October 29, but you can fundraise and donate from now through October 29.

Participation is simple and fun! First, pick your distance goal (remember, you have a month to complete it) and then register. After you register, you can form an individual page or join a team and raise funds. Visit the link below to learn more about participation and register today! We look forward to creating a world of support for with your participation!

🔗https://www.mightycause.com/event/Worldofsupport2023

08/20/2023

This , we are taking a look at the first-ever Domino procedure performed in infants. A heart domino is a procedure that occurs when one patient is a recipient of a transplant but also becomes a donor for another transplant. Say hello to Brooklyn Civil and Mia Skaats👋

Brooklyn was born with Truncus Arteriosis and needed a partial heart transplant to survive. Mia started showing signs of fast breathing ten days after being born and was later diagnosed with cardiomyopathy and was in heart failure. Mia would also need a heart transplant to survive. Both Brooklyn and Mia ended up at New York Presbyterian Morgan Stanley Children's Hospital for treatment. After seven long months of waiting, the Skaats family received a call that they had found a donor match for Mia. It was then that the medical team realized they could perform Mia's heart transplant and take the healthy valves of her old heart for Brooklyn. The Skaats family did not hesitate to agree to the procedure. After nine long hours, the medical team shared the news that both surgeries were a success, a landmark event in the treatment of . Visit the link below to watch the full story.

🔗https://ow.ly/sVI250PAVrS

08/07/2023

🌎SAVE THE DATE🌎

Our 5th annual World of Support virtual charity event is almost here! Registration will open on August 15th with a big announcement of all the fun activities planned for this year's World of Support. Make sure to mark your calendars and look out on the 15th for our announcement!

08/06/2023

There are just 5 days left to submit your story to our Share Your Heart® Essay and Poetry Contest. Heart patients, family, caregivers, and healthcare professionals are all invited to submit a piece. We can't wait to read all your submissions! Visit the link below to learn more and submit.

🔗https://shareyourheart.live/essay-contest

07/24/2023

One of the best daily self-care practices you can do with your is keeping a diet. Nourishing your little ones is essential as they continue to grow. This , check out our newest blog post, Your Guide to Foods For a Healthy Heart. The post breaks down what heart-healthy foods mean, how to identify them, and creative ways to include them in your and your little one's diet. Visit the link below to check it out, and comment your favorite heart-healthy food below!

🔗https://mendedhearts.org/your-guide-to-foods-for-a-healthy-heart/

07/22/2023

05/03/2023

Hi Heart Families,
I wanted to take a moment and thank you all for allowing me to be your leader for the past few years. It has been a true honor to serve you.
This group has been through some tough times since covid hit and it has taken a lot of work to try and build us back up again.
While we haven't been able get back to in person meet ups, we have still been able to serve in many other ways and I'm so thankful for that opportunity.
With that being said, for personal reasons it is time for me to step down. Tonya and I have both decided to step away from Mended little Hearts and we truly hope everyone understands.
We will always be here for the families we served, just in a different capacity. Serving heart families will ALWAYS be my #1! And please know that I love each and every one of you!
If you have any questions or concerns, please feel free to message me on my personal page!
Thank you again!
-Ashley ❤️💙

03/09/2023

Power of Pictures...

"Our daughter, Megan Grace, the youngest of six children, was a bright, loving, little girl. She loved to play with her stuffed animals, especially Kansas, her trusted golden retriever. You would never know by looking at her that she had only half a heart. She was born in September of 2004 with HLHS. Megan not only had the three staged surgeries, she also had three other surgeries to deal with Tricuspid Regurgitation, and to implant a pacemaker. She was diagnosed with a paralyzed vocal cord, failure to thrive, and dysphagia, a swallowing difficulty, so she also has a G-tube. She was diagnosed with Protein Losing Enteropathy in the fall of 2012, and we ruled out the possibility of a transplant. It’s hard to even summarize all that we went through during her life. Through it all, Megan was the happiest, most content little girl. She always had the biggest smile on her face. The Lord truly blessed her with an amazing temperament, and a resilient spirit. She danced for 8 years, enjoyed her Therapeutic Riding lessons, and loved being with her friends.
In October of 2018, Megan got a virus that tipped her equilibrium, and put her into a sharp decline. She started retaining fluid, and even after getting a PICC line, and starting infusions, and IV diuretics, we were unable to reverse it. After a hard fought battle, Megan went to be with the Lord on April 15, 2019. Our hearts are broken, even while we know that she is no longer suffering, and we will see her again. Her amazing spirit will forever be remembered."

03/09/2023

What better way to show your support of CHD and help spread awareness than by using one of our “frames” on your profile picture! Consider using our "Someone I love..." frame for family and friends of those with a CHD.