Supporting Our Sickle Cell Survivors: Parent & Guardian Support Group

04/09/2026

Join this Thursday's TeleTalk via phone at 6:30p.m. central.

Dial 713.955.6338
Code: SICKLE (742553)

04/08/2026

Caring for a child with sickle cell can feel overwhelming at times. But you don’t have to do it alone.

Join us for a Sickle Cell Caregiver Workshop designed to help you feel engaged, encouraged, and empowered.

- Real conversations
- Practical tools
- Support from people who understand

April 25, 2026
11 AM – 2 PM
@ The Children’s Assessment Center
2500 Bolsover St
Houston, TX 77005

Come connect, learn, and take a moment for YOU.

Register today: https://www.eventbrite.com/e/1980530011579?aff=oddtdtcreator⁠



SPONSORED BY GENETIX THERAPEUTICS

02/26/2026

It's the last day to Give $20.26 for 2026! Your donation will help us support families through educational workshops, parking assistance, relief kits, and more!

Donate at https://tinyurl.com/5bs5tf2w.

02/25/2026

A few more days left to give!

Give $20.26 for 2026 to help us support families through educational workshops, parking assistance, relief kits, and more!

Donate at https://tinyurl.com/5bs5tf2w.

02/20/2026

Give $20.26 for 2026 to help us support families through educational workshops, parking assistance, relief kits, and more!

Donate at https://tinyurl.com/5bs5tf2w.

01/20/2026

01/20/2026

Save the date for our April workshop!

The registration link will be shared at a later date.

10/25/2025

Sharing on behalf of a Texas Lutheran Nursing School student! Ice cream social for SCD warriors young and old.

09/30/2025

Last day of Sickle Cell Awareness Month!!!! Thank you for sharing this journey but please don’t stop here. Support warrior efforts in your community all year long.

Fact 30: Patients with sickle cell disease are so much more than the disease. They are ballers and gymnasts and comedians and scholars who are battling to stay healthy and thrive into old age despite the odds.

In 2022, this was the life expectancy of someone with sickle cell disease. Improvements have come but we are not done until we can close the gap and improve overall quality of life.

09/29/2025

It's September!!!! Each one teach one.

Fact 29: Sickle cell disease is one of the genetic diseases that can be detected through prenatal testing. Both CVS and amniocentesis can tell expectant moms if the new baby will be affected by sickle cell.

09/28/2025

Sickle cell awareness month! Don’t forget!

Fact 28: The health insurance system was historically rigged to not care for people with chronic conditions. Companies set lifetime maximums on coverage and denied coverage to those with preexisting conditions.

The Affordable Care Act was important for sickle cell patients on private insurance. Prior to ACA, insurance companies would often set a lifetime coverage limit of $1 million. A 2022 survey study revealed that non-elderly lifetime SCD-related medical expenses add up to approximately $1.6 million for women and $1.7 million for men. Notably, participants also spent around $44,000 on out-of-pocket expenses. Now insurance companies are forced to continue coverage. Let’s not go backwards.