Progeria Research Foundation

10/07/2026

🩵 We're so excited to share the honorees for the 2026 Night of Wonder Gala! 🩵
The Progeria Research Foundation will celebrate two awards this year, each named for a member of our Progeria family whose spirit lives on in everything we do.

🔬 S.A.M. AWARD for Science & Medicine: David R. Liu, Ph.D.
Named for Sam Berns, this award goes to the inventor of base editing, a "spell check" for DNA that can correct the single mutation that causes Progeria. Dr. Liu and PRF's Progeria Gene Team developed SamPro-2, a gene therapy now advancing toward human trials. 🙌

💫 AMY AWARD for Spirit & Service: Cathy and Dave Gravel
Named for our sweet Amy Foose, this award honors Cathy and Dave Gravel of GraVoc, who have stood by PRF since day one. Last year, Dave even arranged a full VIP experience at Fenway Park so Niccolo, a young adult with Progeria visiting from Italy, could see his first Red Sox game! ⚾

"You go to one of these events expecting to help, and you leave realizing how much these kids have given you instead." – Dave Gravel

🩵Read the press release: https://www.progeriaresearch.org/newsroom/

Join us Saturday, November 14 at the Westin Boston Seaport for an unforgettable night supporting the search for the cure. 🎉

🎟️ Tickets: www.progeriaresearch.org/night-of-wonder-2026
Please share this with friends who'd love to celebrate with us! 🩵

10/06/2026

Our newest map is here! 🌍🩵

As of September 2026, this is where the 163 children and young adults with Hutchinson-Gilford Progeria Syndrome (HGPS) live, all with a progerin-producing mutation in the LMNA gene, along with 89 people in the category of progeroid laminopathy (PL), who have mutations in the lamin pathway but do not produce progerin. Together, that's 252 children and young adults in 56 countries around the world.

Every one of them is part of our global Progeria family, and finding them means they can get access to treatment, clinical trials, and the support of the Progeria Research Foundation.

Know someone who might have Progeria? Share this map. You never know who it might reach. 🩵

Help us find every child and find the cure: https://bit.ly/PRFSMDonate

10/02/2026

Happy birthday, Ikhlass! 🎉🎂 Today we're celebrating this sweet girl from Morocco 🇲🇦, who brings so much joy and love to everyone around her. Her bright smile lights up our whole Progeria Research Foundation family. 🩵

Join us in wishing Ikhlass a happy birthday in the comments! 🎈
عيد ميلاد سعيد يا إخلاص! 🎉🎂
اليوم نحتفل بفتاتنا الغالية إخلاص من المغرب 🇲🇦، التي تملأ حياة كل من حولها بالفرح والحب. ابتسامتها المشرقة تنير قلوب عائلة مؤسسة أبحاث بروجيريا (Progeria Research Foundation) بأكملها.

10/01/2026

Become a MONTHLY Donor! Show your love ❤️ for the community by joining PRF’s Champion for the Cure monthly giving program and be a vital part of PRF’s mission to bring stronger hearts ❤️ and longer lives to children & young adults with around the world.

For as little as $10 a month, you will provide a steady flow of support that we can rely on to bring treatments and the cure to children & young adults with Progeria.

🩵 It’s easy and fast – Go to: https://bit.ly/PRFSMDonate

🩵 Check ✔️ the “Recurring” box. Your monthly or quarterly donation will be made directly from your credit card to The Progeria Research Foundation.

Thank you 🙏 to all who have joined our Monthly Donor program. You ARE making a difference❣️



https://www.progeriaresearch.org/get-involved-2/ #

Get Involved Ways to give The Progeria Research Foundation’s work is only possible because of our generous donors and volunteers. Thank you for making a difference in the lives of children and young adults with Progeria. The Circle of Hope Society The Circle of Hope Society is a community of dedic...

09/30/2026

🥳 Big birthday cheers for Jeshaiah from the Philippines 🇵🇭, who turns 19 today!

🎈Maligayang kaarawan 🎈

09/29/2026

CALLING ALL RUNNERS! 🏃
Is running the Boston Marathon on your bucket list? 🏅

The Progeria Research Foundation (PRF) has 10 charity bibs for the historic 2027 Boston Marathon on April 19, 2027!

Run for a cause that changes lives. 🩵 Join and help find the cure for children with while achieving one of the greatest milestones in running. You'll get a coach-designed training plan, team support, and an official Boston Marathon jacket!

👉 Learn more: https://www.progeriaresearch.org/boston-marathon-2027/
📩 Email [email protected] to get your application. Spots are limited!

Know a runner who'd love this? Tag them or share this post! 👇

09/25/2026

"A daughter is a day brightener and a heart warmer." 🩵

Happy Daughters Day from The Progeria Research Foundation! Today we celebrate every daughter with Progeria around the world. Each one fills her family's life with courage, laughter, and love.

Featured here are just a few of these amazing girls: Danielle Kim, Kaylee, Mirella, Hira, Amina, Estefani, and Lindsay. We are so proud of all of them, and every one of them is why we won't stop until we find the cure.

To every PRF family: thank you for sharing your daughters with us. They inspire us every single day.

Help us find the cure for every daughter with Progeria: https://bit.ly/PRFSMDonate

Share this post to celebrate the daughters in your life! 🩵

09/23/2026

🎁 Happy 20th Birthday to Miles from Sweden 🇸🇪 from all of us at The Progeria Research Foundation ❣️

🎉 Grattis på födelsedagen 🎉

09/22/2026

09/20/2026

Happy 17th birthday to Zoey, a dedicated junior from the USA 🇺🇸 who continues to inspire us all! 🩵

From everyone at the Progeria Research Foundation, we wish you a birthday filled with joy, laughter, and unforgettable memories. Have the best day ever, Zoey! 🎂💫

Help us celebrate: drop a birthday wish for Zoey in the comments and share this post to spread some birthday love!