Progeria Research Foundation

Progeria Research Foundation PRF's mission is to discover treatments and the cure for Progeria and its aging-related disorders. All rights reserved.
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The Progeria Research Foundation (PRF) is a nonprofit organization established in 1999 by the family of Sam Berns, a child with Progeria. PRF funds and conducts research-related programs, including the clinical trials and studies that led to approval of the first-ever FDA-approved drug for Progeria, Zokinvy. PRF is the only organization in the world solely dedicated to finding treatments and the c

ure for Progeria and its aging-related conditions, including heart disease. Due to the discovery of the biological connection between Progeria, heart disease and aging, finding the cure for one of the rarest diseases on earth could provide keys for treating millions of adults with heart disease and stroke associated with the natural aging process, as well as help the entire aging population. The organization fills a void, taking these children out of the background where they had been for more than 100 years and putting them and Progeria at the forefront of scientific efforts. PRF’s International Progeria Patient Registry includes children from 65 countries. Please do not download, copy, distribute, or modify PRF's shared content in any way.

06/22/2026

Happy Father's Day to every dad walking this journey with a child with Progeria. 🩡

You show up every single day with strength, love, and a kind of courage that can't be measured. You advocate fiercely, celebrate joyfully, and love unconditionally. You are extraordinary.

Today, the entire PRF family celebrates YOU.

If you'd like to honor these incredible dads and the children they cherish, consider making a gift to the campaign. Every dollar brings us closer to treatments and, one day, a cure.

πŸ‘‰ https://bit.ly/OP2026Main

🩡 The future you make possible: a world where Progeria is curable.Because of YOU, children with Progeria have grown into...
06/19/2026

🩡 The future you make possible: a world where Progeria is curable.

Because of YOU, children with Progeria have grown into young adults. Your support helped bring lonafarnib, the first FDA-approved, life-extending treatment for , to the children who need it most.

Now it is time to take the next step.

The Progeria Research Foundation (PRF) and the Progeria Gene Team have developed SamPro-2, a gene editing therapy that, in mouse models, has permanently corrected the exact DNA error that causes Progeria. PRF is now advancing SamPro-2 toward human trials!

Dr. David Liu, Broad Institute, PRF Gene Team member, 2025 Breakthrough Prize Recipient, and upcoming 2026 PRF S.A.M. Award Honoree, says it best:

"The hope of our team is to use base editing to fix the root cause of Progeria, providing a pathway to a potential cure as well as advancing treatments for millions of other children with fatal genetic diseases."

This is the moment everything changes. And YOU can be ONE to change it.

Please donate today and share this post. Every dollar, every share brings us closer to a cure. 🩡

➑️ https://bit.ly/OP2026Main

I'm fundraising for Progeria Research Foundation. It's an amazing organization. Everybody please check out my campaign! Find out more and donate here: https://fundraise.givesmart.com/vf/FINDTHECURE

06/16/2026

Help PRF wish a very Happy 13th Birthday to Livia from Brazil πŸ‡§πŸ‡·! πŸŽ‚πŸŽˆ

Livia has the most incredible little world around her, filled with dogs πŸ•, cats 🐈, rabbits πŸ‡, turtles 🐒, fish 🐠, chickens πŸ“, and peacocks 🦚! When she is not busy caring for her amazing animals, you can find her singing and dancing at school events. 🎢

Livia, your joy and spirit light up everything around you. Your whole PRF family is celebrating YOU today!

Feliz aniversÑrio! 🩡🎁

06/15/2026

🩡 A Historic First we will never forget.

In October 2025, at The Progeria Research Foundation's 12th International Scientific Workshop, something extraordinary happened. Four young adults with took the stage together for the very first time, forming the first-ever adult panel.

Merlin. Kaylee. Amber. Michiel.

They shared their voices, their stories, and their hopes for a future cure. And every single person in that room knew they were witnessing history.

This moment exists because of research, community, and supporters like YOU.

The campaign is how we keep going. Please donate today and help make the cure possible for every child living with Progeria.

➑️ https://bit.ly/OP2026Main

Share this post and celebrate this incredible milestone with us. 🩡

06/13/2026

Happy 28th birthday to our beloved Michiel from Belgium! πŸŽ‚πŸŽ‰

Michiel, you are a true gamer, a football fan, a Formula 1 enthusiast, an anime lover, a PokΓ©mon trainer, a content creator, and most importantly, a memory-maker. We love everything that makes you YOU.

Your PRF family is cheering you on today and every day. Here's to 28 and all the adventures ahead!

Gelukkige verjaardag! 🎈🩡

Thank you Okie boys!
06/12/2026

Thank you Okie boys!

A group of Oklahoma men are taking on a 1,300-mile jet ski journey from Miami to Puerto Rico, all to raise awareness and support for children living with Progeria, a rare genetic disease that causes rapid aging.

06/11/2026

The energy at last year's Race for Research? Absolutely electric. πŸŽ‰

We can't wait to do it all again -- and this year, we're celebrating the 25th Annual International Race for Research! Whether you're lacing up for the 5K, joining us for the 2-Mile Fun Walk, or racing virtually, this is one event you don't want to miss.

πŸ“… Saturday, September 19, 2026 πŸ“ Leather City Common, Peabody, MA

Don't wait -- register early and secure your spot for the biggest Race for Research yet!

Every step you take supports life-saving Progeria research. Let's make year 25 the biggest one yet! 🩡

πŸ”— Register now: https://runsignup.com/Race/MA/Peabody/InternationalRaceforResearch

🩡 This is the moment everything changes for  .The Progeria Research Foundation (PRF) is now advancing SamPro-2, a gene e...
06/10/2026

🩡 This is the moment everything changes for .

The Progeria Research Foundation (PRF) is now advancing SamPro-2, a gene editing therapy that has permanently corrected the exact DNA error that causes Progeria in mouse models, toward human trials.

This is not a maybe. This is not someday. This is happening NOW, and your support is what makes it possible.

During the ONEpossible mid-year campaign, YOU can be ONE to make the cure POSSIBLE.

Please donate today and help carry SamPro-2 from the lab to the children who need it most.

➑️ https://bit.ly/OP2026Main

Share this post and help spread the word. Every share, every dollar matters. 🩡

I'm fundraising for Progeria Research Foundation. It's an amazing organization. Everybody please check out my campaign! Find out more and donate here: https://fundraise.givesmart.com/vf/FINDTHECURE

06/10/2026

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200 Lake Street Unit 102
Peabody, MA
01961

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