The Progeria Research Foundation (PRF) is a nonprofit organization established in 1999 by the family of Sam Berns, a child with Progeria. PRF funds and conducts research-related programs, including the clinical trials and studies that led to approval of the first-ever FDA-approved drug for Progeria, Zokinvy. PRF is the only organization in the world solely dedicated to finding treatments and the c
ure for Progeria and its aging-related conditions, including heart disease. Due to the discovery of the biological connection between Progeria, heart disease and aging, finding the cure for one of the rarest diseases on earth could provide keys for treating millions of adults with heart disease and stroke associated with the natural aging process, as well as help the entire aging population. The organization fills a void, taking these children out of the background where they had been for more than 100 years and putting them and Progeria at the forefront of scientific efforts. PRF’s International Progeria Patient Registry includes children from 65 countries. Please do not download, copy, distribute, or modify PRF's shared content in any way.
