Progeria Research Foundation

Progeria Research Foundation PRF's mission is to discover treatments and the cure for Progeria and its aging-related disorders. All rights reserved.
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The Progeria Research Foundation (PRF) is a nonprofit organization established in 1999 by the family of Sam Berns, a child with Progeria. PRF funds and conducts research-related programs, including the clinical trials and studies that led to approval of the first-ever FDA-approved drug for Progeria, Zokinvy. PRF is the only organization in the world solely dedicated to finding treatments and the c

ure for Progeria and its aging-related conditions, including heart disease. Due to the discovery of the biological connection between Progeria, heart disease and aging, finding the cure for one of the rarest diseases on earth could provide keys for treating millions of adults with heart disease and stroke associated with the natural aging process, as well as help the entire aging population. The organization fills a void, taking these children out of the background where they had been for more than 100 years and putting them and Progeria at the forefront of scientific efforts. PRF’s International Progeria Patient Registry includes children from 65 countries. Please do not download, copy, distribute, or modify PRF's shared content in any way.

05/27/2026

🎉 Celebrating 25 Years of the Race for Research! 🎉

Lace up for The Progeria Research Foundation's International Race for Research - now in its 25th year and still the City of Peabody's largest annual road race!

📅 Saturday, September 19, 2026
📍 Leather City Common, 53 Lowell St., Peabody, MA
🕘 Registration opens 7:45 AM | Race starts 9:00AM

Choose your challenge:
👟 5K Run
🚶 2-Mile Fun Walk
💻 Virtual Race

Post-race awards & refreshments for all participants!

🩵 Special Anniversary Offer: Register for just $25 through May 31! 🩵
Every step supports life-saving research. Be part of this milestone moment - 25 years of community, purpose, and progress!

🔗 Register now: https://runsignup.com/Race/MA/Peabody/InternationalRaceforResearch

🤝 Sponsorship opportunities: https://www.progeriaresearch.org/25th-rfr/

05/23/2026

🎉 Enzo is 12 today! 🎂

From the tennis court to the soccer field, this kid brings passion, heart, and a smile that lights up every room. Today we celebrate YOU, Enzo, a true superstar on and off the field! 🎾⚽

Wishing you a birthday filled with everything you love: sports, sushi, and so much joy. Keep shining bright! 🌟

🎉 Feliz aniversário, Enzo! 🎂

05/21/2026

Thank you Derek and crew for raising funds for the Progeria Research Foundation!

05/19/2026

Sometimes we don’t realise how much a simple rhinovirus — the common cold — can impact people with low immune systems.
For kids like Enzo, what seems “just a cold” to others can mean a hospital stay, extra support, and a tough fight against the virus.
If you are sick, please stay at home. You may be strong enough to fight it, but not everyone around you can. A simple decision can protect someone far more vulnerable.
Thank you to everyone who has reached out. Enzo is doing really well and is under the best care.

Sam was the inspiration behind the creation of The Progeria Research Foundation (PRF). He continues to inspire us in ou...
05/18/2026

Sam was the inspiration behind the creation of The Progeria Research Foundation (PRF). He continues to inspire us in our mission to cure and the world with his words of wisdom.

Share the love to keep Sam’s positive vibes flowing around the world.
💙 Watch it here: https://bit.ly/SamBernsTedTalk

Donate in honor of Sam: https://bit.ly/PRFSMDonate

# samberns

Born with a rare genetic disorder called progeria, Sam Berns knew he'd be facing more obstacles in life than most. This didn't stop him from taking charge of his own happiness. In this moving and inspirational talk, Berns lays out the three principles of the personal philosophy that allowed him to d...

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200 Lake Street Unit 102
Peabody, MA
01961

Website

https://www.ted.com/talks/sam_berns_my_philosophy_for_a_happy_life

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