02/15/2024
Entry 3 of 4 We get another day 2/15
Organ donation awareness continued.
https://donatelife.net/
Mixed feelings of sadness and relief. The unknown is the worst feeling. It wasn’t the outcome we were hoping for, but at least we knew. We could start moving forward with a new focus of who Anthony will be able to help. I was working as a Case Manager, Utilization Review nurse for children with multiple illnesses, including children waiting for organ transplants. I had one waiting for a kidney and asked the coordinator to have Anthony worked up to see if they would be a match. Unfortunately they weren’t.
We had a little more time to spend with Anthony while they searched for matches. We decided to use it to reminisce and do some memory making. With the help of my friend we were able to utilize the support of Hospice who brought in the supplies to make ceramic molds.
The Hospice nurse had to go get more molds so we could all have one if we wanted. It was late and we were falling asleep at the bedside when she returned. She had to wake us up but she knew it was important to us. She stayed way beyond the time she was scheduled. We made molds of us each holding Anthony’s hand.
Child Life Specialists helped with nemory making of hand prints, locks of hair and thumbprints for a necklace. Family and friends visited giving us something positive to do while we waited. It was a long exhausting day that we didn’t want to end.
The resources and support we had were invaluable. We appreciated having them available. Learn more about them here:
https://hospicefoundation.org/Hospice-Care/Hospice-Services
http://www.childlife.org/
Donate Life America is a nonprofit organization increasing the number of donated organs, eyes & tissue available to save & heal lives through transplantation.