Cystic Fibrosis Research Institute

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Cystic Fibrosis Research Institute CFRI is a 501(c)(3) nonprofit organization that funds innovative cystic fibrosis (CF) research.

CFRI’s social media pages exist to support, educate, inform, connect, and celebrate our diverse cystic fibrosis community. CFRI’s social media pages are moderated channels, meaning all comments posted on these pages will be reviewed for appropriate content. Comments that include hate speech, abusive or vulgar language, personal attacks, spam, advertisements, endorsements of products, or which are off-topic, will be removed, and if necessary, reported to the appropriate social media platform. CFRI reserves the right to determine which comments are acceptable for its social media pages. CFRI will, however, post and attempt to comment on legitimate questions and concerns regarding our mission, programs and services for the national – and international – cystic fibrosis community.

This World Mental Health Day, we’re listening. 💜The theme for 2026, “Lived Experiences Heard: Real Voices, Real Change,”...
10/10/2026

This World Mental Health Day, we’re listening. 💜

The theme for 2026, “Lived Experiences Heard: Real Voices, Real Change,” reminds us that meaningful mental health support begins by hearing and honoring people’s experiences.

For the cystic fibrosis (CF) community, those experiences can include the stress of treatments, health uncertainty, changes in daily life, and the emotional challenges of living with or caring for someone with a chronic illness.

Mental health deserves the same attention and support as physical health.

Through CFRI’s Counseling Support Program, children and adults with CF and their family members can receive financial support for six individual therapy sessions per year with a licensed provider of their choice. The program is available to eligible members of the CF community across the US.

👉🏼 More info: https://www.cfri.org/education-support/psychosocial-support-programs/

10/09/2026

Bid for Something you Love. Help Fund Something that matters. 💜 The CFRI A Breath of Fresh Air Gala Virtual Auction is NOW OPEN!

From unforgettable experiences to incredible treasures, there’s plenty to discover:

🍷 W**e country & w**e tastings
🏟️ Sports tickets & packages
✈️ Travel getaways & adventures
💎 Jewelry
🍽️ Fine dining
🎨 Custom Art
🍫 Ghirardelli chocolate
🎭 SF Opera & Symphony
🌊 Santa Cruz experiences
…and so much more!

Every bid helps support CF research and education and moves us closer to a cure. Because some of the most meaningful progress toward a cure happens when our community comes together to make it possible.

And if you can join us in person, come celebrate with us for an evening of exceptional food and w**e, signature cocktails, music, dancing, a luxury auction, and a special tribute honoring Jacquelyn Spano, DNP, RN, of Stanford, our 2026 CF Champion.

📅 Saturday, October 17 | 5:30–10:30 PM PT
📍 Hillsborough Racquet Club
🎙️ Emceed by NBC Bay Area’s Chris Chmura

🎟️ Bid now & get your gala tickets: https://curecf.cfri.org/Gala2026

Join Us for CFRI'S Virtual Holiday Makers Market! ✨️ Get your holiday shopping done early and support the CF community! ...
10/08/2026

Join Us for CFRI'S Virtual Holiday Makers Market! ✨️ Get your holiday shopping done early and support the CF community!

📅Saturday, November 7 @ 12pm PT / 3pm ET

This special event will feature artisan spotlights, highlighting people with CF and family members who create unique, handcrafted products. Meet the talented makers, learn more about their work, and discover where you can shop for their creations online.

A portion of all sales will benefit CFRI’s programs to support those impacted by CF.

👉🏽 Sign Up Today: https://us02web.zoom.us/webinar/register/WN_6hYuXYXCS4W7fAsOBYHi6A #/registration

🥂 Get ready for an unforgettable night for the CF community! 💜CFRI’s A Breath of Fresh Air Gala is coming up on October ...
10/07/2026

🥂 Get ready for an unforgettable night for the CF community! 💜

CFRI’s A Breath of Fresh Air Gala is coming up on October 17, bringing together friends, families, advocates, researchers, and supporters for an evening filled with inspiring stories, celebration, entertainment, and an incredible live auction.

🎤 Hema Patel, mother of a son with CF, will share her family’s story.
🎙️ Chris Chmura of NBC Bay Area will serve as our emcee.
🔨 Andrew Byrnes will bring the energy as our live auctioneer.
🎶 Tess Dunn, an adult with CF, will share her incredible voice in a live musical performance.
🏆 Jacquelyn Spano, DNP, RN will be honored as our 2026 CF Champion.

Most importantly, we’ll come together to support the research and education that can transform lives in the CF community.

📅 October 17 | 5:30–10:30 PM PT
📍 The Hillsborough Racquet Club
🎟️ Individual tickets: $150
💜 Tables & sponsorship opportunities available

Get Your Tickets Today: https://curecf.cfri.org/Gala2026

Sponsored to date by Vertex Pharmaceuticals, Viatris, and Citizens Business Bank.

Visítanos en Conocimiento y Conexión, la comunidad virtual en español de FQ de CFRI! ⁠⁠📅 miércoles 14 de octubre @ 5pm P...
10/07/2026

Visítanos en Conocimiento y Conexión, la comunidad virtual en español de FQ de CFRI! ⁠
⁠
📅 miércoles 14 de octubre @ 5pm PT / 8pm ET⁠
💬Tema de la reunión: Desarrollar fuerza y ​​gestionar el estrés relacionado con la FQ, Alicia Maciel, MBA
⁠
Esta comunidad es para adultos con fibrosis quística (FQ) y para padres y personas que cuidan a personas con FQ de todas las edades. Cada sesión trata sobre los problemas únicos que enfrentan las personas y familias hispanas/latinas afectadas por la FQ. ⁠
⁠
Las sesiones a las que elijas asistir te brindarán conocimientos valiosos y una experiencia productiva. Ven a escuchar o compartir; la elección depende de ti y de tu nivel de comodidad. PARA REGISTRARSE, enviar un correo electrónico a Hannah ([email protected])⁠.

Patrocinado por Viatris y donantes privados 🫶🏽

🎃 Support you can count on. October brings shorter days and longer nights, but you don’t have to face them alone. CFRI’s...
10/03/2026

🎃 Support you can count on. October brings shorter days and longer nights, but you don’t have to face them alone. CFRI’s monthly Support Groups offer consistent peer connection led by trusted facilitators.
Your seat is always here.

https://www.cfri.org/education-support/psychosocial-support-programs/

CFRI support groups are made possible in 2026 to date by Viatris, Genentech, individual donors and bequests.

CFRI Workshop Next Week: Mindfulness to Help Cope with Medical TraumaMedical trauma — a psychological and physiological ...
10/02/2026

CFRI Workshop Next Week: Mindfulness to Help Cope with Medical Trauma

Medical trauma — a psychological and physiological response to pain, invasive procedures, or frightening treatment experiences — is widespread in the CF community.

On Tuesday, October 6, 2026, 5pm PT / 8pm ET, join us to learn about useful mindfulness practices to help cope with medical trauma related to CF, co-led by Julie Desch, MD, Meg Dvorak, LCSW, and Deidre Hughes, MA/MA. There will be a short practice and room for questions.

👉🏼 Register NOW: https://us02web.zoom.us/meeting/register/CmlbG5hnTjiTSeXV2nJzYQ #/registration

Made possible with support from Viatris, Vertex Pharmaceuticals, Genentech, the Boomer Esiason Foundation, and individual donors.

🎃 Things Are Getting Spooky Good — CFRI's FREE Wellness Classes Are Here! We're bringing the energy and the beats — plus...
10/01/2026

🎃 Things Are Getting Spooky Good — CFRI's FREE Wellness Classes Are Here! We're bringing the energy and the beats — plus a little something to restore your soul. Drop in for one or both — no experience needed, completely FREE, and always community-first. 🍂

🥁 October 3 | POUND & POUND Unplugged with Amy C Rad
Cardio, Pilates & simulated drumming — all to kick-ass music. This one's a vibe. 🎶
🧘 October 17 | Mat Pilates with Carrie Brockmeyer
Breathe, stabilize & strengthen your core — because movement is medicine.

📅 Both classes at 9AM PT | 12PM ET
👉🏼 https://curecf.cfri.org/Wellness26

Sponsored in 2026 to date by Viatris, Vertex Pharmaceuticals, and private donors.

New Blog Post: Beyond Pushing Through - The Power of Accommodations. Completing post-secondary education can be challeng...
09/29/2026

New Blog Post: Beyond Pushing Through - The Power of Accommodations.

Completing post-secondary education can be challenging for anyone. For people with CF, these challenges can be compounded by unexpected exacerbations, cross-infection concerns, and treatment burdens.

In this blog post, Devanshi Dubey, an adult with CF, discusses the ways that her academic institution supported her through the Office for Students with Disabilities. Devanshi details how academic accommodations helped reduce stress and stigma, enabling her to focus on her passions and reach her full potential as a student.

👉🏽 Read More: https://www.cfri.org/beyond-pushing-through-the-power-of-accommodations/

CFRI mourns the loss of beloved community member, Anna Modlin Holyoak🦋 Anna, a beloved mother, daughter, wife, sister, a...
09/28/2026

CFRI mourns the loss of beloved community member, Anna Modlin Holyoak🦋 Anna, a beloved mother, daughter, wife, sister, and friend, was a CF warrior and double lung transplant recipient. Anna met her husband, Terry competing in the World Transplant Games, and immigrated to Australia. She and Terry welcomed their precious daughter, Zoe, to the world in 2020.

Anna grew up within the CFRI family. She was a treasured member of CFRI’s CF Adult Retreat community, serving on the committee for many years and continuing to attend virtually, despite the significant shift in time zones. Her network of friends and family spans the globe, and our grief is shared collectively. We hold Anna’s loving family in our healing thoughts; Terry and Zoe, Anna’s parents, Robin and Doug, and her beloved sister, Sara.

Anna's celebration of life was held in Australia September 28th, it was recorded, giving everyone the opportunity to watch and honor the beauty of her life. Another celebration of Anna will be held in California later in the fall. Anna, we hold you close; you will be deeply missed 💜🦋💜

https://bare.com.au/tributes/185e5b9b-3f99-4852-9e47-4c5ae9c4e905?partial=funeral_details

Address

1731 Embarcadero Road, Suite 210
Palo Alto, CA
94303

Opening Hours

Monday 9am - 6pm
Tuesday 9am - 6pm
Wednesday 9am - 6pm
Thursday 9am - 6pm
Friday 9am - 6pm

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