Cystic Fibrosis Research Institute

Cystic Fibrosis Research Institute CFRI is a 501(c)(3) nonprofit organization that funds innovative cystic fibrosis (CF) research.

CFRI’s social media pages exist to support, educate, inform, connect, and celebrate our diverse cystic fibrosis community. CFRI’s social media pages are moderated channels, meaning all comments posted on these pages will be reviewed for appropriate content. Comments that include hate speech, abusive or vulgar language, personal attacks, spam, advertisements, endorsements of products, or which are

off-topic, will be removed, and if necessary, reported to the appropriate social media platform. CFRI reserves the right to determine which comments are acceptable for its social media pages. CFRI will, however, post and attempt to comment on legitimate questions and concerns regarding our mission, programs and services for the national – and international – cystic fibrosis community.

Mindfulness Workshop to Help Cope with Medical Trauma. Join us to learn about useful mindfulness practices to help cope ...
08/23/2026

Mindfulness Workshop to Help Cope with Medical Trauma.

Join us to learn about useful mindfulness practices to help cope with medical trauma related to CF. Medical trauma, a psychological and physiological response to pain, invasive procedures, or frightening treatment experiences, is widespread in the CF community.
There will be a short practice and room for questions.

📅 Tuesday, September 8, 2026 @ 5pm PT / 8pm ET

Facilitated by Julie Desch, MD, certified mindfulness instructor and person living with CF, Meg Dvorak, LCSW, and Deidre Hughes, certified mindfulness instructor.

👉🏽 Register: https://us02web.zoom.us/meeting/register/CmlbG5hnTjiTSeXV2nJzYQ #/registration

Made possible with support from Viatris, Vertex Pharmaceuticals, Genentech, the Boomer Esiason Foundation, and individual donors.

CFRI Workshop: Treating the Whole Person - Social Determinants of Health Care in CF Care. This session will delve into t...
08/22/2026

CFRI Workshop: Treating the Whole Person - Social Determinants of Health Care in CF Care.

This session will delve into the ways that a person's non-medical conditions may impact health and wellbeing. The workshop will feature two adults with CF and two caregivers, who will each share how aspects of race, socio-economic status, and language have impacted their relationship to CF care.

Open to people with CF, their families & medical professionals.

📅 Wednesday, September 2 @ 12pm PT
👉🏽 Register: https://us02web.zoom.us/meeting/register/M6OqRpKQQuCNTpXW8Bxz8A #/registration

Made possible with support from Vertex Pharmaceuticals, Genentech and Viatris.

📣 Calling on Artisans for CFRI's Holiday Makers Market 🧶 If you are an adult with CF or an immediate family member who c...
08/19/2026

📣 Calling on Artisans for CFRI's Holiday Makers Market 🧶 If you are an adult with CF or an immediate family member who creates and sells handcrafted products (pottery, knitting, jewelry, soaps, etc.), consider applying to showcase your talents.

CFRI will host a virtual holiday makers market on November 7 @ 12pm PT.

To participate as a vendor, you must have an online sales presence, a way for consumers to purchase and pay for your products, and agree to a 10% donation per item sold to CFRI.

👉🏽 Learn More & Apply: https://www.surveymonkey.com/r/G7XPRQF

Applications close August 31 @ 5pm PT!

Something special is coming this October... 👀💜CFRI'S A BREATH OF FRESH AIR GALA to Support Research, Education and Sup...
08/14/2026

Something special is coming this October... 👀💜

CFRI'S A BREATH OF FRESH AIR GALA to Support Research, Education and Support Programs!

Join us to raise awareness, celebrate groundbreaking research and honor our 2026 CF Champion, Jacquelyn Zirbes Spano, DNP, RN, of Stanford. Delight in a night of inspiration, including a luxury auction, music, dancing and an exceptional dinner with fine wine and spirits.

📅 Saturday, October 17th 5:30 – 10:30 pm
📍 Historic Hillsborough Racquet Club in Hillsborough, CA
🎟️ Individual tickets are $150 per person
💜 Sponsorship opportunities available.

👉🏽Get Tickets TODAY: https://curecf.cfri.org/Gala2026

Sponsored to date by Vertex Pharmaceuticals, Viatris, and Citizens Business Bank.

08/12/2026

New Podcast: Designated a Liability — Cruising with CF.

Imagine going on a cruise to the sunny Caribbean, only to be told by the doctor on board that you were barred from the ship and finishing your vacation. That is exactly what happened to Ella Balasa, an adult with CF, who sought assistance from a cruise doctor whose lack of knowledge of CF led to very unfortunate outcomes.

In this podcast, Ella details her story of seeking routine care while feeling unwell and how she utilized self-advocacy in the face of adversity to make sure her needs were met before and after her travels.

👀 YouTube: youtube.com/watch?v=KJX6nErnIxY&feature=youtu.be

Made possible with funding from Viatris and Vertex Pharmaceuticals.

🚨 Last Call — CFRI's Virtual Summer Retreat Starts TOMORROW!This is your final reminder — and your last chance to grab y...
08/07/2026

🚨 Last Call — CFRI's Virtual Summer Retreat Starts TOMORROW!
This is your final reminder — and your last chance to grab your free spot! 🎉

CFRI's Virtual Summer Retreat is officially kicking off TOMORROW and the weekend lineup is packed:
🧠 CF Expert Presentations
🌿 Qi Gong & Tai Chi
🎨 Arts & Crafts
🎤 Karaoke / Talent Show & Tell
✍️ Expressive Writing & Poetry
💙 Support Groups
😄 Poll Points Game Show
☀️ Early Bird & Night Owl Hangouts

FREE. Virtual. Open to adults with CF (18+), family & friends.
Don't be the one who missed out — register NOW! ⏰

👉 https://cfri.app.neoncrm.com/np/clients/cfri/event.jsp?event=221&

Sponsored by Vertex Pharmaceuticals, Devin Wakefield, Kelly Colgan Golf Classic Benefit, and the Kriss Benson Memorial Fund.

⁠

🍃 A pause before the busy season.As routines shift, CFRI’s monthly Support Groups offer a calm, supportive space to chec...
08/03/2026

🍃 A pause before the busy season.
As routines shift, CFRI’s monthly Support Groups offer a calm, supportive space to check in with others who truly understand CF.
Facilitated, peer-led, and always welcoming.

https://www.cfri.org/education-support/psychosocial-support-programs/

CFRI support groups are made possible in 2026 to date by Viatris, Genentech, individual donors and bequests.

08/02/2026

🌊We are still riding the wave from CFRI's 39th National CF Education Conference — and what a wave it was. Over 450 attendees from 43 states and 19 countries came together last weekend to learn, connect, and celebrate the CF community in the most incredible way.

We are beyond grateful to everyone who showed up — in person, virtually, and in spirit. The energy in that room (and on that screen) was something truly special.

📺 Registered attendees: Presentation recordings are available on the conference platform through the end of the month — don't miss them!

🎬 Not registered? Recordings will be coming soon to our YouTube and Podbean channels — stay tuned!

Proudly sponsored by Vertex Pharmaceuticals, Viatris, AbbVie, Sionna Therapeutics & the Boomer Esiason Foundation with additional support from GRAIL, Arcturus Therapeutics, Baxter, Slate Run Pharmaceuticals, Clarametyx Biosciences, 4DMT, Vytala, Nestlé Health Sciences & AfPA/CFEN.

☀️ End Summer Strong With CFRI's FREE August Wellness Classes! August is heating up — and so is our wellness lineup! Whe...
07/30/2026

☀️ End Summer Strong With CFRI's FREE August Wellness Classes!
August is heating up — and so is our wellness lineup! Whether you want to dance it out or build serious strength, we've got something for everyone. As always, drop-in friendly and no experience needed.

💃 August 1 | U-Jam Fitness with Amy C Rad
Hip-hop, Bollywood & urban dance moves for a full-body cardio party!

💪 August 15 | Total Body Strength with Taylor Lewis, PhD
Build strength, resilience & confidence from the inside out.
📅 Both classes at 9AM PT | 12PM ET

👉 Sign up: https://curecf.cfri.org/Wellness26

Sponsored in 2026 to date by Viatris, Vertex Pharmaceuticals, and private donors.

🌊Tomorrow We Gather. Will You Be There?It's not too late to be part of CFRI's 39th National CF Education Conference! Reg...
07/23/2026

🌊Tomorrow We Gather. Will You Be There?

It's not too late to be part of CFRI's 39th National CF Education Conference! Register NOW and experience powerful speakers, expert-led panels, CFRI-funded research presentations, and so much more — all on your own schedule.🏄🏽

📅 July 24–26 | Mountain View, CA + Virtual
💻 Check out the NEW Virtual Platform- FREE to Register!
🎓 Feeling Spontaneous? Come In Person!
We'd love to see you in the room this weekend. A limited number of scholarships are still available to help make it happen. Email Sabine at [email protected] today — don't be shy!

👉 https://cfri.app.neoncrm.com/np/clients/cfri/event.jsp?event=216&

The wave of progress starts tomorrow. 🌊

Proudly sponsored by Vertex Pharmaceuticals, Viatris, AbbVie, Sionna Therapeutics & the Boomer Esiason Foundation with additional support from GRAIL, Arcturus Therapeutics, Baxter, Slate Run Pharmaceuticals, Clarametyx Biosciences, 4DMT, Vytala, Nestlé Health Sciences & AfPA/CFEN

Address

1731 Embarcadero Road, Suite 210
Palo Alto, CA
94303

Opening Hours

Monday 9am - 6pm
Tuesday 9am - 6pm
Wednesday 9am - 6pm
Thursday 9am - 6pm
Friday 9am - 6pm

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