RP Visionaries Support Group

04/01/2012

Congratulations to the RP Visionaries Support Group! Our first pic nic was a success!!! Pictures will be up soon!

02/26/2012

The Foundation-funded study, which began last year, is for the treatment of autosomal dominant retinitis pigmentosa.

02/20/2012

Good to know that we are not alone!

Retinitis pigmentosa is an inherited, degenerative eye disease that causes severe vision impairment due to the progressive degeneration of the rod photoreceptor cells in the retina. This form of retinal dystrophy manifests initial symptoms independent of age; thus, RP diagnosis occurs anywhere from early infancy to late adulthood. Patients in the early stages of RP first notice compromised peripheral and dim light vision due to the decline of the rod photoreceptors. The progressive rod degeneration is later followed by abnormalities in the adjacent retinal pigment epithelium and the deterioration of cone photoreceptor cells. As peripheral vision becomes increasingly compromised, patients experience progressive "tunnel vision" and eventual blindness. Affected individuals may additionally experience defective light-dark adaptations, nyctalopia, and the accumulation of bone spicules in the fundus.

02/20/2012

This support group was set up to network people with RP. If you have Retinitis Pigmentosa and you need information and support join us at Facebook. Retinitis pigmentosa (RP) is a hereditary disease of the eye that leads to deterioration of vision and may lead to blindness.

Non-profit organisation