HPS Network

HPS Network The HPS Network is a 501c3 non-profit serving families with Hermansky-Pudlak Syndrome and other albinism-related syndromes.

Our page is designed to provide news to our community.

Everyone, please join us in congratulating Christina Cislak for graduating from Bard College with an associate degree in...
06/02/2026

Everyone, please join us in congratulating Christina Cislak for graduating from Bard College with an associate degree in liberal arts. She was also the first generation to graduate with a college degree. Congratulations, Christina!

Do you have a graduation announcement? Email [email protected] to be featured

Thank you to Amber for setting up this fundraiser. She wanted to share these details with the community Here are the d...
06/01/2026

Thank you to Amber for setting up this fundraiser. She wanted to share these details with the community

Here are the dates for Panda Express Virtual Fundraising for HPS Network

June 2nd — 9012762

July 2nd — 9014627

August 12th —9014628

September 15th — 9014629

This is a nationwide fundraiser for Panda Express
Please make sure to do the following when placing your order:

• Platform: Orders must be placed directly on the Panda Express Website or the official Panda Express mobile app.

• Code Application: The organization’s unique Fundraiser Code must be entered in the “Fundraiser Code” box and applied during checkout.

• Excluded Orders: Orders placed on third-party delivery apps (DoorDash, Uber Eats, or GrubHub), gift card purchases, and in-store or drive-thru orders DO NOT count.

For June 2nd event, please use code 9012762

Calling all recent graduates with HPS!Have you recently graduated from school? We’d love to recognize you on our social ...
06/01/2026

Calling all recent graduates with HPS!

Have you recently graduated from school? We’d love to recognize you on our social posts! Please email [email protected] to be featured!

Carmen celebrated her first Lungvesary on May 27th and he family surprised her with a party. We are so grateful for anot...
05/30/2026

Carmen celebrated her first Lungvesary on May 27th and he family surprised her with a party.

We are so grateful for another year with Carmen and for the amazing doctors and organ donors who make transplants happen!

We love you, Carmen!

Big news! We’re excited to announce that we now have social media pages for our Spanish speaking members. Please follow ...
05/29/2026

Big news! We’re excited to announce that we now have social media pages for our Spanish speaking members.

Please follow our pages on instagram and and HPSnetworkenespanol on Facebook!

¡Tenemos grandes noticias! Nos emociona anunciar que ahora contamos con páginas en redes sociales para nuestros miembros de habla hispana.

Por favor, síguenos en en Instagram y en HPSNetworkenespanol en Facebook .

We’re back with our regularly scheduled Question Thursday!Whether it be a new skill, hobby, or advice, what’s something ...
05/28/2026

We’re back with our regularly scheduled Question Thursday!

Whether it be a new skill, hobby, or advice, what’s something you’ve learned recently?

05/27/2026

Kylee, Cassandra, and Ashley did a beautiful job singing to our researchers and thanking them for the work they do! 🎶

A big thank you to our team for visiting Lighthouse Orlando to advocate for HPS!
05/26/2026

A big thank you to our team for visiting Lighthouse Orlando to advocate for HPS!

We are wishing everyone in our community a blessed Memorial Day
05/25/2026

We are wishing everyone in our community a blessed Memorial Day

05/21/2026

Our fourth and final day recapping ATS in Orlando!

Thank you to our HPS team and thank you to the for a great conference! Until next year….

Address

1 South Road
Oyster Bay, NY
11771

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm
Saturday 11am - 3pm
Sunday 11am - 4pm

Telephone

+18007899477

Website

https://linktr.ee/hpsnetworkinc

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