Bailey's Butterflies for Turner Syndrome

09/09/2026

🎉 Exciting opportunity for TS advocates! Join a meeting on Sept 28th (9AM-12PM MST) via zoom to learn about the 5 year-$5 million NIH-funded research project that will bring new knowledge and care options to the TS community. 🦋 Submit this form to receive more information: https://forms.gle/Q3jyXPBCPipN6WWF6

We would love to have strong representation for this important work! Learn more here: https://tsgalliance.org/research/nascarr/

02/10/2026

02/10/2026

So incredibly grateful for the support of the community!

03/20/2025

TSSUS is presenting a 3-part series featuring Dr. Dean Mooney on Nonverbal Learning Disabilities in Turner Syndrome on Zoom.

Each participant will be emailed links to videos of Dr. Mooney's presentations from the 2024 TSSUS National Conference in advance of the Zoom meetings. Participants can view the sessions so that they may have questions prepared for Dr. Mooney for the live Zoom sessions.

This is a rare opportunity to view Dr. Mooney's sessions and to have a live Q & A with him.

Dr. Dean Mooney is a leading expert on NLD and Turner syndrome, and his practice is at the Maple Leaf Clinic in Vermont. Dr. Mooney is the most popular speaker at each TSSUS Conference, where he offers free one-on-one consultations.

If you have any questions about why you (or your child) do what you do, Dr. Mooney has the insights that will help dramatically. He's also a very nice man and is easy to talk to. His presentations are casual and friendly, and he has a true passion for helping people, especially those with TS.

Pre-registration is required and space is limited, so please register only if you know you will put this on your calendar and attend.

You can register for each of the 3 parts separately by visiting the TSSUS Event Calendar here: https://www.turnersyndrome.org/event-calendar

01/12/2025

Registration opens February 1st! Stay updated here: https://www.turnersyndrome.org/copy-of-2024-conference

07/03/2024

FAMILY FUN DAY & SPREADING AWARENES OF TURNER SYNDROME
Tampa Bay Rays vs Cincinnati Reds
July 28th
St. Petersburg, Fl
⚾️🦋⚾️🦋⚾️🦋⚾️🦋⚾️🦋⚾️🦋⚾️
Rays pitcher Pete Fairbanks and wife Lydia lost their baby girl Ellis to complications of Turner Syndrome at 20 weeks gestation. They too learned the lack of awareness and have partnered with the Turner Syndrome Foundation for this event. Bailey's Butterflies for Turner Syndrome is inviting you to “Rays Up” and join us, the TSF and Fairbanks family for a fun day at the Rays Stadium!

Game Day 7/28 Reds vs Rays

07/03/2024

FAMILY FUN DAY & SPREADING AWARENES OF TURNER SYNDROME
Tampa Bay Rays vs Cincinnati Reds
July 28th
St. Petersburg, Fl
⚾️🦋⚾️🦋⚾️🦋⚾️🦋⚾️🦋⚾️🦋⚾️
Rays pitcher Pete Fairbanks and wife Lydia lost their baby girl Ellis to complications of Turner Syndrome at 20 weeks gestation. They too learned the lack of awareness and have partnered with the Turner Syndrome Foundation for this event. Bailey's Butterflies for Turner Syndrome is inviting you to “Rays Up” and join us, the TSF and Fairbanks family for a fun day at the Ray’s Stadium!

Game Day 7/28 Reds vs Rays

03/08/2024