10/20/2026
For more than 2 years, Marylanders with IDD have continued to experience Medicaid coverage losses and denials of dedicated support hours needed for health and safety. Families are stretched beyond their capacity, and DDA Providers are sustaining services without payment- sometimes for more than a year without resolution or necessary action from the Maryland Department of Health. These disruptions cannot continue.
Needed support is not optional. Denying dedicated supports can leave people without the individualized support they need to live safely in their communities, and community Providers cannot sustain care without payment! In a recent Maryland Association of Community Services (MACS) survey with 67 providers responding, 63 providers documented $29.5 million owed by the state for services provided to people who had been disenrolled from Medicaid and the waiver; many of whom - despite taking action to dispute the disenrollment or immediately correcting issues identified - could not get their benefits restored for months and even over a year. We need action now and are holding listening sessions in each region to provide opportunities for people to share their stories of how these continued issues have impacted their lives. Please take a look at the flyer and register through one of the links in the comments below if you would like to share your story. Please note our expectations for civility and nonpartisanship.
We are all in this together and hope this sharing opportunity to discuss Medicaid Disenrollment, nonpayment, and losses of dedicated hours will lift up these issues for public awareness. We will not permit divisive or inflammatory language. While legislators and others in government and policymaking are invited to attend and listen in to better understand the experiences of Marylanders, there will not be opportunities for legislators to address attendees.
