Giving Strength Inc

06/01/2026

A heartfelt thank you to our 2026 Swings for Finn Golf Tournament sponsors. This event would not be possible without your incredible generosity, partnership, and support.

A very special thank you to our Presenting Sponsor, Scaffold Resource, for standing beside us for six consecutive years. Your unwavering commitment to Finn, our family, and the SELENON community means more than words can express. Thank you for being a loyal partner, advocate, and champion for this mission year after year.

We are looking forward to an unforgettable day on the course in support of an important cause. Every dollar raised on Monday, June 8th will help fund critical research for treatments for SELENON, a rare and progressive form of muscular dystrophy. Together, we are driving hope forward.

05/27/2026

SELENON Related Myopathy is treatable. With the support of our community, researchers, and doctors we can find a treatment that will make a difference in the lives of all navigating this genetic disorder.

Big Pharma won’t fund research which is where Giving Strength comes in. Thanks to your support, we have raised over $1.9 million dollars for research. Every dollar used to find that life changing treatment. We won’t stop. We can’t stop.

Thank you to the family, friends, companies, doctors, scientists, and the community that has railed around us, Finn and all those with SELENON. Thank you!

We look forward to the day we can say….. We did it!

05/21/2026

After waiting MONTHS for a sleep study, Finn finally had his appointment!

Sleep studies are crucial to ensuring his biPAP is working properly to push out CO2 while he sleeps. Due to weakness in his core, Finn is unable to do it on his own.

The study lasted all evening. Now we wait for the results!

Thank you for caring care of our Finn! And thank you for calling several times to keep moving up his date to wiggle Finn in sooner. We really appreciate it! The staff were absolutely wonderful!

05/20/2026

Hey, do you golf? ⛳

There are only a few foursomes left for the June 8th Swings for Finn Golf Tournament, and we’d love for you to join us for an incredible day of golf, community, and purpose.

Every single dollar raised supports SELENON research and helps families like Finn’s fight this rare congenital muscular dystrophy. Your participation truly makes a life-changing impact.

Grab your foursome before spots are gone!

🔗 givingstrengthinc.org/swings-for-finn

04/15/2026

Thank you to US Contracting for partnering again for year six! We appreciate your support.

Just a few spots left! Sign up today to golf with us for an amazing cause. All proceeds from the Swings For Finn Golf Tournament support our mission to find a treatment for SELENON, a rare muscular dystrophy.

This event raises thousands of dollars getting us one step closer to a treatment. We hope you will join us for year six on Monday, June 8th at Queenstown Harbor.

🔗 givingstrengthinc.org/swings-for-finn

The Unofficial Guide to DC | Maryland | Virginia (DMV) WJZ-TV | CBS Baltimore Good Morning Washington

03/24/2026

Thank you to the wonderful for partnering again this year to help make Swings For Finn a great event!

Only 7 days left to take advantage of early bird pricing. Register today! Spots on the river course are almost sold out!

🔗 https://www.givingstrengthinc.org/swings-for-finn

We hope you will join us on Monday, June 8th at Queenstown Harbor Golf Course.

03/19/2026

CNBC is shining a light on these journeys through CNBC Cures, giving a voice to the rare disease community and the innovators working to find solutions.

Tune in tonight, Thursday, March 19, at 7 p.m. EDT for the premiere of “Defying Rare Disease” on CNBC.

This is "PR SIZZLE" by Ahna Gavrelos on Vimeo, the home for high quality videos and the people who love them.

03/16/2026

Thank you for partnering for year six of the Swings For Finn Golf Tournament! You have been so amazing to us. We appreciate your support!

Lots of people registered over the weekend! Thank you! There is still time to sign up. Snag your spot today.

🔗 givingstrengthinc.org/swings-for-finn

We hope you will join us on Monday, June 8th at Queenstown Harbor (MD) to tee off for a great cause! All benefit Giving Strength mission to find a treatment for SELENON. This rare genetic disorder needs our support to find a life altering treatment. Thank you for your support!