Turner Syndrome Global Alliance

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Turner Syndrome Global Alliance TSGA's mission is to connect science, resources, and funding to the Turner Syndrome Community. Learn more at www.TSGAlliance.org

TSGA Mission Statement: Connecting science, resources, and funding to the Turner Syndrome community. Connecting Science: TSGA seeks opportunities to include Turner syndrome in existing and new research studies and strives to generate interest in TS in the research community. Connecting Resources: TSGA will collaborate with other organizations, groups, and individuals who provide accurate and important resources to adults, girls, and families living with TS. We will also support the development of TS Clinics through parent advocacy and shared experience. Connecting Funding: By establishing relationships with scientific organizations, local hospitals, universities, and other stakeholders in research, TSGA will seek opportunities to connect funding to research related to Turner syndrome. The groundwork for TSGA has been laid. We are an official 501(c)3 non-profit registered with the IRS as of September 2014. We have recruited a Board of Directors, and we have created a strategic plan. Connections have already been made with a number of medical professionals, and we are working to generate excitement in the research world about TS.

TSGA is proud to have joined other advocacy partners, self-advocates, and community members at the 2026 NASCARR annual m...
10/12/2026

TSGA is proud to have joined other advocacy partners, self-advocates, and community members at the 2026 NASCARR annual meeting to advance shared research priorities for s*x chromosome aneuploidy (SCA) conditions including Turner syndrome.

When the patient and advocacy community partners with doctors and researchers, we help to ensure that research priorities reflect the needs of our loved ones.

Learn more about the NASCARR research project here: https://nascarr.rarediseasesnetwork.org/

πŸŽ‰ Exciting opportunity for TS advocates! Join a meeting on Sept 28th (9AM-12PM MST) via zoom to learn about the 5 year-$...
09/09/2026

πŸŽ‰ Exciting opportunity for TS advocates! Join a meeting on Sept 28th (9AM-12PM MST) via zoom to learn about the 5 year-$5 million NIH-funded research project that will bring new knowledge and care options to the TS community. πŸ¦‹ Submit this form to receive more information: https://forms.gle/Q3jyXPBCPipN6WWF6

We would love to have strong representation for this important work! Learn more here: https://tsgalliance.org/research/nascarr/

πŸŽ‰ Exciting opportunity for TS advocates! Join a meeting on Sept 28th (9AM-12PM MST) via zoom to learn about the 5 year-$...
07/22/2026

πŸŽ‰ Exciting opportunity for TS advocates! Join a meeting on Sept 28th (9AM-12PM MST) via zoom to learn about the 5 year-$5 million NIH-funded research project that will bring new knowledge and care options to the TS community. πŸ¦‹ Submit this form to receive more information: https://forms.gle/Q3jyXPBCPipN6WWF6
We would love to have strong representation for this important work!

πŸŽ‰ Exciting opportunity for TS advocates! Join a meeting on Sept 28th (9AM-12PM MST) via zoom to learn about the 5 year-$...
07/17/2026

πŸŽ‰ Exciting opportunity for TS advocates! Join a meeting on Sept 28th (9AM-12PM MST) via zoom to learn about the 5 year-$5 million NIH-funded research project that will bring new knowledge and care options to the TS community. πŸ¦‹ Submit this form to receive more information: https://forms.gle/Q3jyXPBCPipN6WWF6

We would love to have strong representation for this important work!

This study is enrolling pregnant women who have had a positive non-invasive prenatal screening for an X or Y variation f...
07/04/2026

This study is enrolling pregnant women who have had a positive non-invasive prenatal screening for an X or Y variation for this study nationally.

Your participation will help researchers better understand how s*x chromosome variations, such as Turner syndrome (45,X) and Klinefelter syndrome (47,XXY), affect early development.

Learn more: https://medschool.cuanschutz.edu/pediatrics/sections/developmental-pediatrics/extraordinary-kids-program/our-research/xy-umbilical-cords

Or contact the study coordinator, Dr. Karli Swenson, directly at [email protected].

02/19/2026

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Overland Park, KS

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