Turner Syndrome Global Alliance

Turner Syndrome Global Alliance TSGA's mission is to connect science, resources, and funding to the Turner Syndrome Community. Learn more at www.TSGAlliance.org

TSGA Mission Statement: Connecting science, resources, and funding to the Turner Syndrome community. Connecting Science: TSGA seeks opportunities to include Turner syndrome in existing and new research studies and strives to generate interest in TS in the research community. Connecting Resources: TSGA will collaborate with other organizations, groups, and individuals who provide accurate and im

portant resources to adults, girls, and families living with TS. We will also support the development of TS Clinics through parent advocacy and shared experience. Connecting Funding: By establishing relationships with scientific organizations, local hospitals, universities, and other stakeholders in research, TSGA will seek opportunities to connect funding to research related to Turner syndrome. The groundwork for TSGA has been laid. We are an official 501(c)3 non-profit registered with the IRS as of September 2014. We have recruited a Board of Directors, and we have created a strategic plan. Connections have already been made with a number of medical professionals, and we are working to generate excitement in the research world about TS.

02/19/2026
An opportunity to share your photos!TSGA is thrilled to share an exciting research update: The University of Colorado/ ...
11/30/2025

An opportunity to share your photos!

TSGA is thrilled to share an exciting research update: The University of Colorado/ Children’s Hospital Colorado, in collaboration with 25 institutions across the US, has been awarded a highly competitive grant from the NIH to support innovative research on X&Y Variations. The grant, titled the “Network for Advancing S*x Chromosome Aneuploidy Research Readiness” or NASCARR provides five million dollars over the course of the next five years to fund research, including research on TURNER SYNDROME.

TSGA has represented the patient and advocate community in this grant process, and now we have the opportunity to connect YOU to the process. In the past you, have shared photos of your loved ones with TS to TSGA to help us show the world the real faces of those living with TS. Now we are asking for some photos to be shared to the research project for publication and PR uses.

Interested in sharing your photos of yourself or your loved ones with TS? You will need to sign a special permission form. Email TSGA at [email protected], and we will send you the form to sign.

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Overland Park, KS

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