The Laurita Spina Bifida Project

The Laurita Spina Bifida Project The Laurita Spina Bifida Project serves the spina bifida community by promoting awareness, education, and a sense of community for all touched by SB.

“When I was 10 years old, the year 1997 certainly had an effect on me.”

—The opening sentence to my fifth grade civic oration contest essay submission, which placed second in my school


That is an understatement, to say the least. 1997 was the year of entering the double-digits, of finishing elementary school, and of preparing for middle school. It

was also the very first time I wrote anything about spina bifida, the congenital condition I was born with. Due to negative experiences in my childhood, writing about my experiences with living with spina bifida was the last thing I wanted to do. But as usual, at Mami’s encouraging, I decided to write about just that.

18 years later, I’m glad I listened to her. As I’ve found in the nearly two decades of writing articles, letters to public figures, and blog posts calling for increased awareness of spina bifida, the voice of the spina bifida community is alive and loud— but it’s still waiting to be heard by someone. It is with this purpose in mind that I began, in my preteen years, to lay the foundation for what would someday be called “The Laurita Spina Bifida Project.”

Today, I am rallying support to ensure that this community is finally heard—that our concerns are validated and addressed, and that together we can achieve a far more improved quality of life for all of us living with spina bifida. And it all started with a child’s dream...

--Laurita

A message from Laurita, our Founder & President: “Ambrose Ganshanga, Founder of the Hope Inclusive Development Center in...
08/08/2026

A message from Laurita, our Founder & President:

“Ambrose Ganshanga, Founder of the Hope Inclusive Development Center in Mbarara, Uganda, shared with us today the story of a young man who has indeed brought a lot of “hope”— and joy— to the children of the Hope Center. He shares: 🎊

‘Today, we had a light moment with our former teacher who left [the center] for further studies. [His name is] Duncan. He was a high school vacationist [on his yearlong break before starting university] who supported us in a teaching role due to shortage of teachers at the school; a wonderful young gentleman who helped to teach elementary science and mathematics. But early this year, he joined the university as a medical student. Our pupils loved him, and he loved them, too. Today, he came along with some of his friends with the university to celebrate his birthday with children! [He is] so encouraging and living as an example. We had a colorful day! They were kind to contribute some [diapers] for use by children with spina bifida, books, some boxes of soap, and Vaseline. 🎂 🎁

When I asked Ambrose about a picture he sent me via WhatsApp, of children planting a “memory fruit tree,” he explained: “In our culture, historically, whenever a friend visits a family, he or she could come with a present/gift that will remain such that it can help to support the family and also act as a sign of bonding between two families or friends. In most cases, this was in the form of [animals] like a cow, a goat. Though this is still practiced, over time, this has been expanded to include planting compound trees which also act as a symbol of friendship [and] remembrance, but [is] also used for environmental conservation purposes, and leaving likely future fruits to the family or organization.’ 🪴

I was deeply moved by this story about how Duncan pitched in to help the Hope Center during his break from studying, and was even more touched that he chose to celebrate his birthday with the children and staff of the Hope Center! I wish him the best of success and happiness as he enjoys this next chapter of his life, and whether or not he decides to continue working with children with disabilities in Uganda, I hope he stays in touch with Ambrose and the team, and that he visits again!" 🎓

The Hope Center is still experiencing great needs during the teacher shortage, and you can help by donating here: https://www.gofundme.com/f/help-fund-teachers-for-kids-with-disabilities-in-uganda

Duncan, thank you for your compassion and kindness for our kids and staff! Godspeed and have a wonderful time at university! 👏🏽 💗🇺🇬

From our Founder, Laurita: "So much of my life with spina bifida has been a matter of life and death. Last night,  , I g...
07/28/2026

From our Founder, Laurita:

"So much of my life with spina bifida has been a matter of life and death.

Last night, , I got very raw on Substack about the complex feelings I have as an adult with spina bifida who has outlived many friends and past comrades. 😔

I invite you to read, comment if you'd like to, and share. Subscriptions, either free or paid, are also greatly appreciated." 🫶🏽

https://lauritatellado.substack.com/p/lets-honor-the-empty-chairs-during

Access barriers, both physical and bureaucratic, gravely diminish the quality of life of people with disabilities, often leading to death.

From our Founder, Laurita:"Thank you from todo mi corazón to those who have given so far! It really, absolutely does tak...
07/17/2026

From our Founder, Laurita:

"Thank you from todo mi corazón to those who have given so far! It really, absolutely does take a village, and whether you give $5 or $5, it doesn't matter to me-- you are making a DIFFERENCE.

Let's keep the momentum going as we head into the weekend! I will be sharing more content and details soon about just why this new dormitory and paying these teachers matters so, so much." ❤️🍎

Hi! My name is Laura "Laurita" Tellado, and I'm Founder… Laura Tellado needs your support for Help Fund Teachers for Kids with Disabilities in Uganda

Imagine a school without teachers. 👩🏾‍🏫That is what the Hope Inclusive Development Center in Mbarara, Uganda, is facing ...
07/13/2026

Imagine a school without teachers. 👩🏾‍🏫

That is what the Hope Inclusive Development Center in Mbarara, Uganda, is facing right now.

As an adult with spina bifida, I know firsthand how difficult and frustrating it is to navigate health and education in a world not designed for us.

When Ambrose Ganshanga, a physical therapist, dreamer, and, doer, first reached out to me in 2010, his mission was crystal clear— to build a school and therapy center for children with spina bifida and other disabilities who were experiencing dire need, and had little hope of surviving, let alone thriving.

Since its founding in 2019, the Hope Inclusive Development Center has provided children with disabilities something they desperately needed: HOPE. The center provides them with schooling, housing, meals, and vital therapies.

But now, teachers at the center have left because the government is offering better pay— leaving the center, which is a fully non-profit venture, without the means to educate these children.

What's more, the center dormitory is FULL to capacity, and the government requires them to build a separate dormitory (one for boys, one for girls).

We can bring HOPE back to the Hope Center. I’ve started a GoFundMe, and ALL funds raised will go toward this project.

Thank you to everyone who has supported our cause over the years. I hope we can continue to count on our village to share some hope. ❤️🇺🇬



Link to our GoFundMe:

Hi! My name is Laura "Laurita" Tellado, and I'm Founder… Laura Tellado needs your support for Help Fund Teachers for Kids with Disabilities in Uganda

From Laurita and her family, to every single person in our village, we wish you all a very Merry Christmas, Happy Holida...
12/26/2025

From Laurita and her family, to every single person in our village, we wish you all a very Merry Christmas, Happy Holidays, and a Happy New Year! 🎄🕎 🌟

Thanks to a very generous donation from Dr. Mary Stapel of Illinois, which our team facilitated via wire transfer, the Hope Inclusive Development Center, run by our partner, Ambrose Ganshanga, in Mbarara, Uganda, can continue operating. The center serves children with and without disabilities, and Ambrose and his colleagues also work hard to educate parents, educators, and healthcare professionals. 🩺

We were also honored that Dr. Stapel donated to Spero International, founded by Martin Bukenya, and whose mission aligns very closely with our support of the Hope Center. In fact, Ambrose and Martin have worked together and remain good friends. 🤝🏽

When we initially decided to create The Laurita Spina Bifida Project, the dream was to help "connect the dots" in the global spina bifida community, so that others could help each other meet their needs. We are so grateful to be a part of this village, and even prouder to continue supporting their work to build a more inclusive world. ❤️🌍

-- Laurita

We are so grateful this   for our community partners, like Ambrose Ganshanga, Founder of Hope Inclusive Development Cent...
12/03/2025

We are so grateful this for our community partners, like Ambrose Ganshanga, Founder of Hope Inclusive Development Center in Mbarara, Uganda, who inspires and motivates us through his tireless work with children with disabilities who would otherwise not get the medical care and education they deserve. 💚

To learn more about the Hope Inclusive Development Center and to donate, please visit www.lauritaspinabifidaproject.org/hope 🏫 👩🏽‍🏫 🦽

More updates are coming soon about the Center and Ambrose’s advocacy for children with disabilities in Africa. 🫶🏽

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