Sickle Cell Medical Advocacy - Dr Simone

08/11/2026

Grateful to have hosted Allison Morris, our North Florida Healthcare Navigator and president of “We Reign Sickle Cell Association” in our home today! Always good to plan business moves face to face. Her little one is currently our client but one day will be the medical director of SCMA. May God give her courage to add to her already brilliant mind. Thank you Allison for your love for SCMA! It is a joy to work with you.

08/04/2026

I really don’t even know where to start with this one. Is that the fight you really want to pick as a physician with a patient, that you “dont give Benadryl and Dilaudid at ZERO years so you’re lying”?And you really don’t know about mast cell degranulation and severe itching that often happens from giving opiates? SMH.
The fight continues!

A patient told her doctor what works for her sickle cell pain. He decided she was lying, and even hinted that she was drug seeking. Let’s talk about sickle cell, bias, and why clinical knowledge should never drown out a patient’s lived experience. | 145 comments on LinkedIn

08/02/2026

Warrior Con 2026 may be over, but the impact continues.

We were honored to have several of our SCMA Healthcare Navigators together in Los Angeles, connecting with patients, caregivers, advocates, and healthcare professionals throughout the week. Thank you to everyone who stopped by our table, shared your story, asked questions, and learned more about our mission.

The excitement around our Empowered Patient Training was incredible, and we’re thrilled to share that the course officially begins today! There’s still time to join us and take the next step in becoming a more informed, confident, and empowered advocate for your healthcare journey.

Register today at sicklecellmedicaladvocacy.org.

We are so proud of this community and grateful for every opportunity to show up, serve, educate, and ensure the sickle cell community has a strong, informed presence wherever we go. Here’s to continuing the work, together.

SickleCell HealthcareNavigator PatientAdvocacy CommunityFirst

07/28/2026

What if your next hospital visit felt different?

What if you knew exactly what questions to ask…
How to communicate your needs…
And how to confidently advocate for appropriate care?

That’s exactly what the SCMA Empowered Patient Course was created to do.

🎓 8-week virtual, self-paced course
📅 Begins August 2
💙 Certificate of Completion included

Your advocacy starts here.

Register today:
🌐 sicklecellmedicaladvocacy.org

07/17/2026

🚨 Ready to become your own best advocate? 🚨

The SCMA Empowered Patient Course is back, and registration is now open! 💙🩸

If you or someone you love is living with sickle cell disease, this 8-week virtual, self-paced course will equip you with the tools to confidently navigate the healthcare system, advocate for appropriate pain management, communicate effectively with your healthcare team, and better understand your rights as a patient.

✨ Certificate of Completion included
📅 Course Begins: Sunday, August 2
🕕 Live Kickoff: 6:00–7:30 PM EST

Knowledge is power, and empowered patients change outcomes. Don’t miss this opportunity to invest in yourself and your healthcare journey.

🔗 Register today: https://www.sicklecellmedicaladvocacy.org

07/15/2026

💥 Ready to take control of your healthcare journey? 💥

The Empowered Patient Course begins August 2 and is designed to equip individuals living with sickle cell disease with the knowledge and confidence to navigate the healthcare system and advocate for better pain management.

✅ 8-week virtual, self-paced course
✅ Learn from experienced advocates and healthcare professionals
✅ Gain practical tools you can use immediately
✅ Receive a Certificate of Completion

Your voice matters. Your care matters. It’s time to become an Empowered Patient.

📅 Starts: Sunday, August 2
🕕 Live Kickoff: 6:00–7:30 PM EST

🔗 Register today: https://www.sicklecellmedicaladvocacy.org

07/09/2026

Today, we honor two extraordinary leaders whose compassion and dedication continue to change lives every single day.

Carla Coffer, RN and Omerto Anderson, Nurse Practitioner are more than healthcare providers. They are advocates, educators, and champions for the sickle cell community.

Through the Sickle Cell Medical Advocacy team, they volunteer countless hours each week, standing beside warriors during some of their most difficult moments. They help patients communicate with healthcare providers, advocate for timely and appropriate treatment, and ensure every warrior’s voice is heard in the emergency room, the hospital, and beyond.

Their commitment extends far beyond clinical care. They empower patients, educate medical teams, and work tirelessly to improve the healthcare experience for sickle cell warriors across the country.

Because of leaders like Carla and Omerto, warriors know they never have to face their healthcare journey alone.

From all of us at SCMA, thank you for your unwavering service, your compassion, and the hope you bring to our community every day. ❤️🩸

(Song In The Name Of Sickle Cell by AR The Prophet another amazing healthcare navigator of ours)

07/09/2026

07/09/2026

If you take OxyContin, you need to read this! I’m posting it again, as it came up today as the legitimate reason doctors will have to taper patients off the medication, because being on it long term is not sustainable.

A new $7.4 billion opioid settlement for Purdue Pharma and the Sackler family has been approved by all U.S. states and territories