07/19/2025
TOO MANY LIVES ARE LOST WAITING FOR THE RIGHT TREATMENT.
I got lucky because my doctor ordered a full biomarker panel for my tumor. Not everyone gets that. Most don’t. And that’s the problem. The science to match people with the right treatment is here. But access isn’t—at least not equitably, not consistently, and not fast enough.
That’s what precision medicine is: using your genes and your tumor’s makeup to guide treatment, instead of just guessing and hoping something works.
A few weeks ago, I had the honor of opening the AMCP Precision Medicine Partnership Forum as a speaker.
I helped start a national conversation with leaders from health plans, pharmaceutical companies, labs, NCCN, and other advocates—centered on one truth:
SCIENCE IS MOVING FAST. BUT POLICY, COVERAGE, AND ACCESS ARE NOT.
Nowhere is this clearer than with lung cancer:
-Lung cancer is still the #1 cause of cancer death in the U.S. Over 124,000 people will die from it this year (American Cancer Society, 2025).
-Biomarker testing can significantly improve survival by matching patients with treatments more likely to work (LUNGevity).
-Yet only about 36% of patients who could benefit actually get tested—because of insurance delays, outdated policies, or lack of awareness (Personalized Medicine Coalition).
-And only 15 states require insurance to cover this kind of testing (American Lung Association).
THAT’S UNACCEPTABLE.
Testing saved my life. But too many others never get that chance—not because the science isn’t ready, but because access isn’t.
That’s why I’m speaking out. That’s why I’m working with AMCP and national partners to push for clear, consistent guidance—so every patient can receive the testing and treatment they need, without having to wait months or face denial.
This isn’t just my story. It’s my mission.
is more than a hashtag. It’s a movement for equity, for access, for system-level change. I’ll keep showing up in every room, at every table, until we close the gap between what’s possible and what’s actually happening in cancer care.
Learn more or get involved: amcp.org/precision-medicine