Myasthenia Gravis Hope Foundation

02/13/2026

MG Hope is excited to announce a new education series on the new and upcoming treatments launching next week so stay tuned!

02/12/2026

Spots are almost gone!
MG Hope is partnering to bring you a paid short study opportunity for AChR and MuSK gMG in the US.

Details about this study below ⬇️

“How does Myasthenia Gravis impact your daily life? We’re looking for community members who have Acetylcholine Receptor Positive (AChR+) or Muscle-Specific Kinase Positive (MuSK+) antibodies to participate in a 20–25 minute online survey to help improve gMG treatment and management.

To show our appreciation for your time, you’ll receive a compensation check in the mail shortly after the survey period ends.”

I want to sincerely thank you for lending your voice to projects like these. There is a lot of behind the scenes work to bring this all together and the desire is to better understand where quality of life is and where treatment is not addressing things appropriately. Something I think we can all agree needs to be better understood.

-Rebekah Dorr, BCPA
Director of Clinical Patient Advocacy

If you have any questions or concerns, please feel free to message us directly!

12/04/2025

MG Hope Family, get excited!
We are proud to partner with Just WorldWide to bring you a study for our Seronegative MG (SNMG) community in a first of its kind paid study!

This opportunity is for all SNMG individuals over the age of 18, under treatment by a specialist (neuro or neuromuscular) and currently in the US.
The study pays $150 for 60 minute interview on your experience and needs with SNMG.

It’s your time to shine and have your voice be heard!
Spots are limited and will go quickly!
Please mark referred by MG Hope on the study link.

If you have any issues, please comment or message us for help.

May this study bring about much needed attention and changes for all who struggle with SNMG.
It’s about time we had this conversation at the research level!

Blessings,
Rebekah
Director of Clinical Patient Advocacy
MG Hope Foundation

https://community.just-worldwide.com/newdesign/site/justworldwide/index.php?surveyID=seod0s8c5cp2&published&id=92f5f80a24186931fa0875dc8

11/20/2025

Calling all of our awesome 65+ Myasthenic warriors!New Paid Opportunity with Limited Spots for all AChR and MuSK patients in the US for those 65+

This is an incredible opportunity for those who are typically excluded from clinical research due to age. The goal here is to gain more insights in quality of life, treatment history and efficacy of therapies both standbys (mestinon, steroids, ivig etc..) as well as newer biologics (rituxan, Vyvgart, Soliris etc).
Most researchers focus on the younger crowds statistically so we are very happy to see a reputable team taking on a more nuanced look at MG and proud to partner with them as we at MG Hope believe that every life with MG matters! 💕

Brought to you in partnership with the MG Hope Foundation.

Spots filling quickly!

We have worked with this team for a few years now and greatly appreciate their integrity and focus on direct improvement to patient lives and adapting research to the real time needs of this community.

Below is the screener you’ll need to participate.
Spots will go very fast so be sure to get connected if you’re interested. Thank you for giving your time to help others better understand how to help the MG community! Lots of hard work behind the scenes make this possible and I’m honored to be a part of it.

Let us know if you have issues with the screener link

11/10/2025

Only a few spots remain and going fast!
Study for US patients and pays $150 for an hour interview.

MG Hope has once again partnered with LaGrippe Research to help connect you to safe, appropriate and innovative research relevant to our community.

Patients with experience taking or trialing (even failed attempts) with these medications below ⬇️, are of particular focus as research teams are trying to better understand real time responses over clinical presumption.

Eculizumab (Soliris, Bkemv, or Epysqli)
Ravulizumab (Ultomiris)
Zilucoplan (Zilbrysq)
efgartigimod (Vygart)
Nipocalimab (Imaavy)
Rozanolixizumab (Rystiggo)

LaGrippe Research, a market research firm specializing in healthcare, is working on a project on the topic of Myasthenia Gravis (MG) and inviting adults who have been diagnosed with Generalized Myasthenia Gravis to participate. Should this apply to you, please see below for details.

This will be in the form of a 75-minute discussion along with a short 10-minute written task prior to the scheduled appointment. Those that qualify and participate will be compensated $150 as a thank you. The dates available for this discussion are October 31st – November 19th. Participants must live in the USA.

If you are interested, please fill out our preliminary questions online here: https://www.surveymonkey.com/r/3M7QXTR

If you have any questions, please contact Maggie at 847-373-4104 or email [email protected]

Take this survey powered by surveymonkey.com. Create your own surveys for free.

11/03/2025

Paid study in the US for men with MG

Study pays $120 for all antibody status types (AChR, MuSK, seronegative etc) and all ages. They’re looking to do a brief interview via phone or computer to learn more about your experience with MG, diagnosis, treatment etc…

MG Hope has been a partner with Rare Patient Voice for many years now and we are excited to bring you another opportunity for research and inclusion.

Spots are limited and will go quickly!
Sign up using this link below ⬇️
If you have any questions or concerns, please let me know.

https://rarepatientvoice.com/rp/mghope17

10/29/2025

Breaking! New Paid Opportunity with Limited Spots 🚨
Brought to you in partnership with MG Hope

This is an incredible company focused on patient centric results, not financial incentives in their outcomes. We have worked with this team for a few years now and we greatly appreciate their integrity and focus on direct improvement to patient lives and adapting research to the real time needs of this community.

Below is the information you’ll need to participate.
Spots will go very fast so be sure to get connected if you’re interested. Thank you for giving your time to help others better understand how to help the MG community! Lots of hard work behind the scenes make this possible and we are honored to be a part of it.

Please note there are two images of information below and a direct sign up link as well. Let us know if you have any trouble.

https://community.just-worldwide.com/newdesign/site/justworldwide/index.php?surveyID=gta1mmenm1i6&published&id=f26ccf18ca0c690277c4c9820

07/30/2025

New Paid Research Opportunities for US Patients No Restrictions!

Below is the link to the live webinar in collaboration with Vitaccess and MG Hope Foundation.

Here, you can connect with the research team, learn more about the research and paid opportunities being discussed and the future of MG scientific breakthrough in this video.

Let us know if you have any questions!

Welcome to the Vitaccess Real MG Registry! In this patient webinar, you’ll have the opportunity to learn more about this new initiative in myasthenia gravis,...

06/18/2025

Giveaway for MG Awareness! 🥳🎊🙌🏻🍾

MG Hope, is sponsoring this fun giveaway to help raise awareness for MG this month.
Each winner will get a teal, MG awareness pin, as pictured below.

Follow the steps below to enter.

This is open to everyone here so don’t be shy!
Three winners will be announced this coming Monday. Hope you all have fun!
And good luck to each one of you!

06/14/2025

New Research Opportunity for US MG Patients!

MG Hope and Vitaccess have partnered together to bring you a brand new research opportunity! We are excited to share this with you all! My team and I have gotten to know the leadership at Vitaccess and their goals to begin looking at often overlooked or neglected areas of MG in research. Finally!

We hope you all will share your voice and perspective so that the truth of what we face and need is understood. This is how treatment, access, education and awareness starts to really change!

Vitaccess is inviting US based adults (18+) diagnosed with MG, who are not currently in a clinical trial, to take part in the Vitaccess Real MG Registry. It’s a simple, at-home research project you can do
from your browser.

All MG patients are welcome! There are no restrictions based on antibody status, severity or treatment history which gives many in the community a voice who didn’t have one in other research opportunities.

Just complete short monthly surveys (approximately
15 minutes per month) on your phone,
tablet, laptop or computer, and earn a $4 Amazon voucher for each one!

With your permission, some helpful information from your medical records - like your treatment
history and clinical background - will also be included, so researchers can better understand
MG and how it affects people over time.
All information is encrypted, not shared or sold and all personal information protected and redacted.

Your participation can make a real difference in improving care and support for the MG
community.

📩 Learn more at the informational site (https://vitaccess.com/vrmg/) or contact them directly at [email protected].

The Vitaccess Real MG Registry is supported by the Myasthenia Gravis Hope Foundation.

06/03/2025

Paid MG Research

For those living in Los Angeles, California and over the age 18, you can donate your white blood cells to help researchers develop more effective treatment and look at different components of how MG and the immune system work.

This is open to all antibody types of MG and there are no restrictions on treatment you are taking.

Did you know your white blood cells can make a big difference? By donating these cells
through a process called apheresis, you can help researchers find new life-saving therapeutics and develop medical breakthroughs for myasthenia gravis.

The Myasthenia Grave Hope Foundation is looking to enroll patients in a two-visit research study, conducted at a local blood donation center.

By donating white blood cells, you play a vital role in helping to develop medical breakthroughs and you
will receive up to $550 as a thank-you for your time.

You may qualify to participate if you:

Are between 18 and 89 years of age

Are diagnosed with Myasthenia Gravis

Live in Los Angeles, California

To learn more about this study or to see if you qualify, click this link below ⬇️

https://sanguinebio.com/donors/apheresis-myasthenia-gravis/?campaign=npo_apheresismghf

APHERESIS STUDY

03/28/2025

Hello MG Hope family!

We have again partnered with Just Worldwide to bring you brand new research to help shape the understanding of certain treatments.

This is a paid study for US MG patients, all antibody types.

Experience with Vyvgart is highly valuable for this research.

They are also looking for 3-5 patients who live in Chicago to participate locally.

There are very few open slots so don’t delay in going through the screener to see if you qualify!

Feel free to email Christine directly with any questions or concerns and you can also message me as needed.

https://community.just-worldwide.com/newdesign/site/justworldwide/index.php?surveyID=61b9rtnelp6u&published&id=7e7d942edfde67e5ec3d13f00