Sickle Cell Disease Foundation

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Sickle Cell Disease Foundation The Sickle Cell Disease Foundation provides life-enhancing education, services, and programs for individuals living with sickle cell disease.

We offer FREE Sickle Cell Disease services in Southern California! We provide education and programming throughout Southern California for infants, children, teens, and adults with Sickle Cell Disease.

We’re excited to share with you that registration for the 2026 Coverage & Therapeutics Summithosted by Sick Cells is now...
10/14/2026

We’re excited to share with you that registration for the 2026 Coverage & Therapeutics Summit
hosted by Sick Cells is now open!

The Summit is a 2-day virtual conference to be hosted on November 4-5, 2026.

This year’s theme, Access Unlocked, reflects the goal of bringing together science, stories, stakeholders, and systems change to identify opportunities to improve access, advance innovation, and improve outcomes for people living with SCD.

About the Summit
The Sick Cells Coverage & Therapeutics Summit brings together the sickle cell disease (SCD) community, healthcare providers, payers, researchers, pharmaceutical manufacturers, advocates, care teams, investors, and policymakers to discuss the evolving landscape of treatment, coverage, and access to care.

Through discussions, patient perspectives, and industry insights, the Summit will explore healthcare coverage and reimbursement, emerging therapies and treatment pipelines, clinical trial education and participation, investment in SCD innovation, and the policy and regulatory issues shaping SCD care. 

This year’s theme, Access Unlocked, reflects our goal of bringing together science, stories, stakeholders, and systems change to identify opportunities to improve access, advance innovation, and improve outcomes for people living with SCD.
The Summit is a 2-day, virtual conference to be hosted on November 4-5, 2026.

CLICK HERE FOR SUMMIT INFO & REGISTRATION:
https://sickcells.org/therapeutics-summit-2026/

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The UCSF Sickle Cell Center of Excellence invites you to our upcoming Gene Editing in Sickle Cell Virtual Town Hall on S...
10/14/2026

The UCSF Sickle Cell Center of Excellence invites you to our upcoming Gene Editing in Sickle Cell Virtual Town Hall on Saturday, October 24, from 11:00 am to 12:30 pm PST via Zoom.

This virtual town hall is an opportunity for individuals living with sickle cell disease, families, caregivers, advocates, healthcare providers, and scientists to learn about the latest updates from our new CRISPR SCD gene editing clinical trial at UCSF.

During the town hall, attendees will:
* Hear directly from Dr. Mark Walters about the new gene editing trial at UCSF and how this approach differs from other gene therapy options currently available.
* Hear from the first patient to receive this investigational treatment and her family, who will share their experience and perspective.
* Have an opportunity to ask questions and learn more in an open, community-centered setting.

Don’t miss out on this unique opportunity to hear real-time updates and real-life experiences of this new gene editing option! Click the link below to register today!
Bring your questions and send this link to a friend who may want to join us!

Register here:
https://www.eventbrite.com/e/beyond-the-price-tag-part-3-crispr-scd-clinical-trial-updates-tickets-1999312021075?aff=odeccpebemailcampaigns&utm_source=eventbrite&utm_medium=ebcampaigns&utm_campaign=56001123&utm_term=ctabutton&mipa=ABIdvVty1OmjDIgh-YEKDRriMX10IRwGcFSzxFDrzU5QZ3WSYCTT3H1e7TCUp-0eCCdytfQIUwSqDaU9wAoORB2Ox0gAAhxJLssVlj9VYcSZSJiX6PDbCHnB5pog9VwdTtmK1j6GrhwCDuHDh1_COgQzhfu-X1rYsYbqqX5aXqbsnQWI1pOmoKF1YKLt-t04Phglu3BsTyQw7xinQHiOYR8Gmfk1XK5BzSJI_oHf9yCHQCHKmqMULhXPtR5aVLg4xnNCzLYzQSM5PchqcmDIFR3rgSW7NIiHaw

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10/13/2026

🚨Warrior Circle will be hosting subgroup meetings this Sunday, October 18th, 2026 starting at 4pm(PST)/ 7pm(EST).

No matter where you live, you belong in the Warrior’s Circle. Come connect with people who understand the journey, celebrate your strength, and welcome you into the family. ❤️

Scan the QR code on the flyer to register. For additional information, email Michael Allen at [email protected].
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🚨Warrior Circle organizará reuniones de subgrupos este domingo 18 de octubre de 2026 a partir de las 4 p. m. (PST) / 7 p. m. (EST).

No importa dónde vivas, perteneces al Círculo del Guerrero. Ven a conectarte con personas que entienden el viaje, celebran tu fuerza y te dan la bienvenida a la familia. ❤️

Escanee el código QR en el folleto para registrarse. Para obtener información adicional, envíe un correo electrónico a Michael Allen a [email protected].

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Module 1 is an Introductory Course | Online TrainingThis is a self-paced course, but attendance at one live Cohort Rev...
10/08/2026

Module 1 is an Introductory Course | Online TrainingThis is a self-paced course, but attendance at one live Cohort Review session is required after completing Units 1–6. Please Select from the following: October 9th, October 23rd, OR November 13th

Registration for this cohort will be from October 1st- October 19th, 2026.

Time & Location
Module 1 is an Introductory Course Online Training

About the event
The Sickle Cell Counselor Training & Certification Program (SCCTCP) is designed for healthcare professionals and paraprofessionals, community health workers & educators, and others interested in learning more about sickle cell conditions. Many individuals work in health, social services, community education organizations, medical offices, clinics, or hospitals. This course does not provide SCD care and management information for parents needing court-ordered SCD parenting classes.

People seeking a general overview and up-to-date information on sickle cell disease, sickle cell trait, and related hemoglobinopathies can take the online self-paced eLearning introductory course (Module I). Attending the introductory course will result in a certificate of completion.

Content of Module I – Introductory Overview Course
6-hour self-paced eLearning course with one 1-hour live virtual cohort session.
* An overview of patterns of inheritance

* An overview of basic hemoglobin functions

Register:
https://www.scdfc.org/event-details/october-2026-module-1-sickle-cell-counselor-training-certification-program-1




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El módulo 1 es un curso introductorio | Capacitación en línea Este es un curso a su propio ritmo, pero se requiere la asistencia a una sesión de revisión de cohortes en vivo después de completar las unidades 1 a 6. Por favor, seleccione entre los siguientes: 9 de octubre, 23 de octubre O 13 de noviembre

La inscripción para esta cohorte será del 1 al 19 de octubre de 2026.

Hora y ubicación

El módulo 1 es un curso introductorio de formación en línea

Acerca del evento

El Programa de Capacitación y Certificación de Consejeros de Células de Células Haliformes (SCCTCP) está diseñado para

The holidays are about more than what’s on the table—they’re about feeling cared for, supported, and connected. ❤️✨The S...
10/07/2026

The holidays are about more than what’s on the table—they’re about feeling cared for, supported, and connected. ❤️✨

The Sickle Cell Disease Foundation’s Warrior Pantry is offering Holiday Food Assistance for our registered clients. We hope to ease some of the season’s stress so our Warriors and their families can make room for moments of comfort and joy.

If you could use a little extra support this holiday season, reach out. You are part of our SCDF family, and we’re here for you. 💛

📞 (909) 743-5226
📧 [email protected]
🌐 www.scdfc.org

Supporting Warriors, One Meal at a Time.

Register here:
https://form.jotform.com/211306532688153
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Las vacaciones son más que lo que está sobre la mesa: se trata de sentirse cuidado, apoyado y conectado. ❤️✨

Warrior Pantry de la Fundación para la Enfermedad de Células Fílvulas ofrece asistencia alimentaria navideña para nuestros clientes registrados. Esperamos aliviar parte del estrés de la temporada para que nuestros Warriors y sus familias puedan hacer espacio para momentos de comodidad y alegría.

Si te vendría bien un poco de apoyo extra esta temporada de vacaciones, ponte en contacto. Eres parte de nuestra familia SCDF, y estamos aquí para ti. 💛

📞 (909) 743-5226
📧 [email protected]
🌐 www.scdfc.org

Apoyando a los guerreros, una comida a la vez.

Regístrese aquí:
https://form.jotform.com/211306532688153

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Most children with sickle cell disease grow in the usual way when they are young babies. After their first birthday, the...
10/06/2026

Most children with sickle cell disease grow in the usual way when they are young babies. After their first birthday, they may start to grow more slowly. Throughout the rest of childhood, some children with sickle cell disease are shorter and thinner than other children their age or than their siblings were at the same age. Puberty can also be delayed due to this slow growth. In almost all cases, this difference in size only temporary. Children with sickle cell disease keep growing after their friends have stopped. After a while, they will reach the height expected based on the size of their parents. If your child is concerned about being small, let your child know they will grow bigger like their friends and other children, it will just take a little longer. If your child is very thin and much smaller than normal for their age, eating extra food between meals or before bed at night may help with weight gain and better growth. Your medical provider may also want to give your child extra vitamins or minerals. Most children don’t need any special diet or vitamins and won’t grow any faster if these are given.

No Warrior should go without these essentials!🌙❤️
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La mayoría de los niños con enfermedad de células falciformes crecen de la manera habitual cuando son bebés pequeños. Después de su primer cumpleaños, pueden comenzar a crecer más lentamente. Durante el resto de la infancia, algunos niños con enfermedad de células falciformes son más bajos y delgados que otros niños de su edad o que sus hermanos a la misma edad. La pubertad también puede retrasarse debido a este lento crecimiento. En casi todos los casos, esta diferencia de tamaño es solo temporal. Los niños con enfermedad de células falciformes siguen creciendo después de que sus amigos lo hayan dejado. Después de un tiempo, alcanzarán la altura esperada en función del tamaño de sus padres. Si a su hijo le preocupa ser pequeño, hágale saber que crecerá más como sus amigos y otros niños, solo tomará un poco más de tiempo. Si su hijo es muy delgado y mucho más pequeño de lo normal para su edad, comer comida extra entre comi

09/25/2026

SCT vs. SCD Myths
We all know we’re tired of hearing these myths 😂🤦🏾‍♂️
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SCT vs. Mitos de SCD

Todos sabemos que estamos cansados de escuchar estos mitos 😂🤦🏾‍♂️



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09/25/2026

Warriors…

We all know about those waiting rooms😭🤦🏾‍♂️
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Guerreros...

Todos sabemos sobre esas salas de espera😭🤦🏾‍♂️


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✨ Celebrating 10 Years of Care, Compassion, and Community! ✨For a decade, the MLK Sickle Cell Outpatient Clinic has prov...
09/22/2026

✨ Celebrating 10 Years of Care, Compassion, and Community! ✨

For a decade, the MLK Sickle Cell Outpatient Clinic has provided outstanding, specialized care through the Jeffrey Smith Sickle Cell Clinic—supporting warriors and families with the dignity, understanding, and compassion they deserve.

The Sickle Cell Disease Foundation is honored to celebrate this incredible milestone alongside the dedicated healthcare professionals, partners, advocates, and community members who have made this journey possible. ❤️

Please come join us as we reflect on 10 meaningful years of service and look forward to many more years of strengthening sickle cell care in our community.

📅 Monday, September 28, 2026
🕙 10:00 AM–11:30 AM
📍 MLK Outpatient Center
1670 E. 120th Street, Los Angeles, CA 90059

Please RSVP with the Sickle Cell Disease Foundation BY Friday, September 25th, 2026

RSVP LINK:
https://www.scdfc.org/event-details/10-year-celebration-mlk-sickle-cell-outpatient-clinic

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Address

3602 Inland Empire Boulevard , C315
Ontario, CA
91764

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 3pm

Telephone

+19097435226

Website

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