United Spinal Association of Nebraska

United Spinal Association of Nebraska A nonprofit supporting those impacted by (SCI/D) & wheelchair users in Nebraska.

The mission of the United Spinal Association of Nebraska is to support those impacted by spinal cord injury/disorder (SCI/D) and all wheelchair users by creating a community that provides opportunities for advocacy, resources, education, mentoring and social gathering.

**Wheel Talk πŸ“ 175th & Burke*** Accessibility Report by Karma LiLoLa*This is the Metro Park & Ride stop for Route 92 at ...
06/10/2026

**Wheel Talk πŸ“ 175th & Burke**
* Accessibility Report by Karma LiLoLa*

This is the Metro Park & Ride stop for Route 92 at Village Pointe in Omaha, Nebraska.

Village Pointe is home to Nebraska Medicine specialty clinics and Madonna Rehabilitation Hospital. I come here every three months for Botox injections through physiatry. So yes, this is a medical access issue.

But let's be clear about something else.

This stop also serves Village Pointe Shopping Center. Restaurants. Stores. Sometimes I just want to go to the Coach store. Is that such a big problem?

Disabled people are not only trying to get to doctors appointments. We are trying to live full lives. We are trying to shop, eat, browse, exist in public spaces built for everyone β€” theoretically.

πŸ‘‡ Look at this photo closely.

On the left: the bus stop pole. The Metro Park & Ride sign. A concrete slab. Looks like a bus stop.

On the right: the same bus stop β€” but now you can see what's actually there. A curb. And then steps. Concrete steps leading down to where you're supposed to wait.

Same stop. Two angles. One truth.

There is no accessible path to this bus stop from the street or the parking lot.

And this is the only bus stop at Village Pointe.

One stop. Inaccessible. That's it. That's the whole system.

I have to ask β€” is this why you never see wheelchair users at Village Pointe? Because they literally cannot get there by bus? Because the one stop that exists tells them, in concrete and stairs, that they are not expected to arrive? That they are not welcome?

The system is not broken. It is working exactly as it was designed. And it was not designed for us.

Now here's what I need you to understand, because this is where it gets complicated and also infuriating.

Your first instinct is to be angry at Metro Transit. I understand. That was my instinct too.

But I learned through self-advocacy and leadership training that bus stops are not always owned by the transit authority. They can be independently owned β€” meaning ADA compliance is the responsibility of the property owner. In this case, whoever owns the Village Pointe parking surface.

So the path to fixing this isn't calling Metro. It's identifying the property owner, understanding their ADA obligations, filing a civil rights complaint, and likely working with a civil rights attorney.

I know how to do this. I have the training. I have the knowledge.

What I want you to sit with is that a disabled person had to become an advocate, an investigator, and practically a lawyer just to catch a bus to the mall.

That is not an individual accessibility failure. That is a systemic barrier wearing the costume of a concrete curb.

😀 React if you feel this.

If you have experience navigating ADA complaints in Nebraska, know who owns the Village Pointe parking surface, or want to get involved β€” drop it in the comments or send a message.

United Spinal Association membership is free. Join at the link in bio and select the Nebraska Chapter.

The SCI Perspectives Initiative (SCI PI) is a coalition led by people living with spinal cord injuries, bringing togethe...
06/09/2026

The SCI Perspectives Initiative (SCI PI) is a coalition led by people living with spinal cord injuries, bringing together key SCI organizations and stakeholders to ensure new treatments better align with the priorities of people living with SCI. Our primary goal is uniting the SCI community in funding, planning, and executing an externally-led Patient-Focused Drug Development meeting focused on SCI.

The participant nomination form is for people with SCI and caregivers who may be interested in sharing their experiences during the September 29 PFDD meeting, either as a live discussion starter or through prerecorded video testimony.

Who should fill out this form?
People living with SCI nominating themselves
Family members, friends, or caregivers nominating someone living with SCI
Caregivers of someone living with SCI (or someone who had SCI and has since passed away) who want to nominate themselves to share the caregiver perspective

Before you start:
The form takes about 10 to 15 minutes.
The meeting will be held virtually on September 29, 2026, from 10:00 a.m. to 3:00 p.m. ET. It is free to attend, and you do not need to be selected as a discussion starter or panelist to attend.
Discussion starters give a brief personal account of their (or their loved one's) experience with SCI followed by a moderated group discussion with FDA and other stakeholders and join a brief orientation call with the meeting team on September 28, 2026. Panelists provide a pre-recorded video testimony (about 5 minutes) in advance.
This nomination form is intended for people age 18 or older. A parent, caregiver, family member, or friend may nominate someone under 18.

Please submit by June 22nd, 2026.
Questions? Contact [email protected]

Nomination page on the SCI PFDD website:

https://www.scipfdd.org/nominate



Direct link to the Qualtrics form:

https://cornell.ca1.qualtrics.com/jfe/form/SV_cMdqWHFnBHmuX3M

Virtual Meeting Β· September 29, 2026 Help shape the future of spinal cord injury treatment. Make your voice heard during the externally-led Patient-Focused Drug Development meeting for spinal cord injury! We are now accepting nominations for participants: people with SCI and caregivers who share th...

Disaster Relief Grants Available!Are you a person with a spinal cord injury/disorder who has been affected by a natura d...
06/07/2026

Disaster Relief Grants Available!

Are you a person with a spinal cord injury/disorder who has been affected by a natura disaster in 2026?

Get help with:
- Mobility equipment repair
- Damage to home
- Medical equipment replacement

Apply at unitedspinal.org/disaster-relief-grant

*Proof of disability and financial need required.

FREE JUNE OMAHA EVENTS 🌿All events are free and open to the community in Omaha.WED JUN 3 | 12 P–2 PUnited Spinal Associa...
06/01/2026

FREE JUNE OMAHA EVENTS 🌿

All events are free and open to the community in Omaha.

WED JUN 3 | 12 P–2 P
United Spinal Association Nebraska Chapter Membership Drive
Kiewit Luminarium
RSVP: fb.me/USANELuminarium26

THU EVENINGS | 5 P–8 P
Joslyn Art Museum Late Nights
Info: joslyn.org

FRI JUN 5 | 6 P–10 P
Benson First Fridays
Info: bensonfirstfriday.com

SAT | 8 A–12:30 P
Old Market Farmers Market
Info: visitomaha.com

SUN | 9 A–1 P
Aksarben Village Farmers Market
Info: aksarbenvillage.com

🌿 FINAL MEMBERSHIP DRIVE EVENT

SUN JUL 12 | 12 P–2 P
Kiewit Luminarium

To attend the Luminarium events, first register as a member through the Nebraska Spinal Cord Association website. Once registered, email [email protected] with questions or to RSVP for your free Luminarium tickets.

Info: nebraskaspinalcord.org Screw up

There are only two more days to sign up to be part of this. It's a responsible opportunity to do big good on behalf of y...
05/23/2026

There are only two more days to sign up to be part of this. It's a responsible opportunity to do big good on behalf of yourself and others!

Register for Virtual Roll on Capitol Hill (ROCH)
https://form.jotform.com/241066758634160 by May 25th
This is open to all members interested in advocacy and making change in their state!

Virtual Roll on Capitol Hill
June 23: Advocacy training (2-hour virtual session during business hours)

June 24: Legislator meetings (virtual, throughout the day)

June 25: Debrief call (1–2 hours)

Participation is open to any chapter members passionate about advocacy; there is no cap on participants.

Training will include advocacy best practices and issue overviews.

Registration link in this email. Preferred sign-up by Memorial Day weekend.

Advocacy Priorities
Defend Home-Based Services (HBS) to support independent living.

Oppose competitive bidding for catheter and ostomy supplies.

Allow partial self-pay wheelchair upgrades with insurance covering the base cost (titanium/carbon fiber frames)

Eliminate prior authorization requirements for wheelchair repairs.

https://www.facebook.com/share/1EdLS9HEqQ/
05/23/2026

https://www.facebook.com/share/1EdLS9HEqQ/

Rovi Standing Power Wheelchair. It has a new motor and new caster wheels, tray, and other accessories available. Cushion measures 16" wide, and trunk lateral supports are 19" wide. Includes lateral thigh support pads, knee blocks, head support, curved trunk support with lateral trunk support pads, tray, charger, etc. This chair is simply outgrown by current user. This item is located off-site at KK and is free for pick-up only in Missouri Valley, Iowa. If you are interested in this item, you will need to coordinate pick-up with the person who has it.

Address

17305 Davenport St
Omaha, NE
68118

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