Raymond A. Wood Foundation

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Raymond A. Wood Foundation

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Our mission is to drive research and advocate for treatment outcomes to improve quality of life for hypothalamic-pituitary brain tumor survivors.

The diagnosis of a brain tumor is life-changing and treatment can cause multiple life long side affects — many of which are rare and difficult to manage. From the purchase of a lifesaving medical device to developing and producing tools to help daily management of care easier; the foundation aims help survivors thrive through creating connections to innovation and information that can improve life after survival.

10/30/2026

Congrats to Jessica for her amazing performance in this year's DCs Dancing Stars Gala! She took home corporate dance competition and won the mirror ball trophy!

Check out her electrifying performance and why she stunned the judges!

DCs Dancing Stars Gala
Jessica Kreiser - Realtor in DC, MD, & VA

10/29/2026

Last chance to register for HOPE Austin! Our free half-day gathering for individuals and families affected by hypothalamic obesity is almost at capacity. If you have been thinking about joining, register for free ASAP!

What to expect:
• Presentations on hypothalamic obesity and HO Nutrition
• Small-group roundtable discussions
• Lunch and time to connect

When: November 8, 2026, 10:00 AM - 2:00 PM
Where: Courtyard Marriott Downtown Austin

Registration is FREE, but space is limited. https://zurl.co/DzXwf

10/27/2026

Join us for tonight's Caregiver Support Group, hosted by Eugenie Hsu! Tonight's session will focus on managing various hypothalamic symptoms, like:

Hypothalamic obesity appetite dysregulation (usually hyperphagia including food preoccupation, seeking and stealing food)

Temperature dysregulation

Social/psychosexual impairment (no or few peer friends, no interest in dating)
Impaired thirst mechanism

Emotional lability (intense emotional displays like crying, rage, impulsive behaviors like hitting, etc.)

Sleep irregularities (circadian rhythm problems, insomnia, parasomnias, hypersomnia, narcolepsy)

Fatigue, daytime sleepiness, low energy

Anhedonia, apathy, low motivation

Autism (including PDA, pathological demand avoidance)

Compulsive acquiring (hoarding, collecting)

Email [email protected] to attend!

10/24/2026

Our FY26 Impact Report is here!

Behind every research initiative, advocacy effort, and community program is a person or family navigating life after a hypothalamic-pituitary brain tumor.

This year, the Raymond A. Wood Foundation continued working to turn patient experiences into meaningful progress by advancing research, strengthening connections, and advocating for better care and quality of life.

Our FY26 Impact Report highlights what we've accomplished together, the voices that drive our mission, and the work still ahead.

Explore our interactive impact report and see what your support makes possible.
🔗 https://rawfimpact.org

10/22/2026

Last chance to vote for "Benign is Not Fine" by Eugenie Hsu to win The 2026 Rare Artist Contest, powered by the Rare Foundation. RARE Foundation

Eugenie's impactful short film puts caregiver voices in the spotlight and explores the challenges and misconceptions that often come with a craniopharyngioma diagnosis.

Vote Now! https://zurl.co/w78HV

Register for tonight's Survivor Support Group, hosted by Jason Burris!Email email outreach@rawoodfoundation.org to join ...

10/20/2026

10/19/2026

Don't miss our upcoming workshop, Experiencing Grief While Managing
a Chronic Illness/Brain Tumor Diagnosis, featuring Grief Support Specialist and Grief Coach Holly Gainsboro.

This interactive workshop exploring the various ways individuals can experience grief when diagnosed with a brain tumor or chronic illness, and how to process them.

October 21st, 7pm EST
https://zurl.co/CIIK4

10/17/2026

Meet our newest speaker for HOPE Austin!

Marci Serota
RAWF Board Member and Author of Hungry for Solutions: A Mother’s Quest to Defeat Hypothalamic and Childhood Obesity

A former registered dietitian nutritionist and certified yoga teacher, Marci holds a bachelor’s degree in dietetics from the University of Florida and completed her dietetic internship at Brigham and Women’s Hospital. Marci combines her background in clinical nutrition with her experience as the parent of a brain tumor survivor with hypothalamic obesity to support families navigating this complex condition.

When: November 8, 2026, 10:00 AM - 2:00 PM
Where: Courtyard Marriott Downtown Austin

Registration is FREE: https://zurl.co/Ego6I

10/15/2026

Meet Bob, one of our dancers for this months DC's Dancing Stars Gala!

After 32 years in fire and EMS, including serving as a Battalion Chief with Arlington County Fire Department, Bob Gray dedicated his career to protecting and supporting others—including responding to the Pentagon on September 11, 2001. After retiring, Bob survived a severe traumatic brain injury and, through lifesaving care and extensive rehabilitation, made a remarkable recovery that inspired his book, Shoring Up Ourselves. His journey deepened his commitment to resilience, recovery, and helping others navigate life-altering challenges. Bob is honored to bring that spirit to the 2026 DC’s Dancing Stars Gala in support of the Raymond A. Wood Foundation and its mission to improve the lives of brain tumor survivors and their caregivers.

Donate to vote for Bob! https://pages.donately.com/dcsdancingstarsgala/fundraiser/bob-gray

Address

PO Box 991
Ocean City, MD
21843

Website

http://www.rawoodfoundation.org/

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