Raymond A. Wood Foundation

Raymond A. Wood Foundation Our mission is to drive research and advocate for treatment outcomes to improve quality of life for hypothalamic-pituitary brain tumor survivors.

The diagnosis of a brain tumor is life-changing and treatment can cause multiple life long side affects — many of which are rare and difficult to manage. From the purchase of a lifesaving medical device to developing and producing tools to help daily management of care easier; the foundation aims help survivors thrive through creating connections to innovation and information that can improve life after survival.

In case you missed the opportunity, our AVP-D survey has been extended. This Patient Registry survey is your chance to h...
09/03/2026

In case you missed the opportunity, our AVP-D survey has been extended.

This Patient Registry survey is your chance to help inform future research priorities and support projects aimed at improving the lives of people living with AVP-D, including efforts to make sodium monitoring more accessible and practical.

If you have 20 minutes, we hope you'll add your voice. Every response helps move this work forward.

Please log in to your registry account, or create one if you haven’t already, and complete our latest AVP-D survey https://zurl.co/gAZF9

September is here! Don't miss some of our new and ongoing monthly events!
09/01/2026

September is here! Don't miss some of our new and ongoing monthly events!

08/29/2026

What are the best ways to prepare for your IEP meetings to avoid intimidation and effectively advocate for your child? Dr. Pacha of EmpowerEd Solutions breaks down the basics.

Stream the full video with everything you need to know to set your student up for success on Uscreen

https://zurl.co/pQZs6

Our Caregiver Support Group is back! Join us the 4th Tuesday of the month at 8pm EST for a caregiver support group, mode...
08/25/2026

Our Caregiver Support Group is back!

Join us the 4th Tuesday of the month at 8pm EST for a caregiver support group, moderated by Eugenie Hsu. This is the first session after summer break, so take this time to reconnect with the caregiver community!

Email [email protected] to join

08/23/2026

Wondering what the difference between and IEP and a 504 plan, and which is best for your child? Dr. Pacha of EmpowerEd Solutions breaks down the basics.

Stream the full video with everything you need to know to set your student up for success on Uscreen

https://zurl.co/Yq2MR

We're inviting all survivors and caregivers to get the information you need, when you need it most! Subscribe to our new...
08/21/2026

We're inviting all survivors and caregivers to get the information you need, when you need it most!

Subscribe to our new learning on demand video platform for conference replays, video interviews with clinicians and patients, and more.

https://zurl.co/sruRv

Join us for our Survivor Support Group, hosted by brain tumor survivor Jason Burris!Email outreach@rawoodfoundation.org ...
08/18/2026

Join us for our Survivor Support Group, hosted by brain tumor survivor Jason Burris!

Email [email protected] to join

We're still looking for runners to join Team RAWF for the Philadelphia Marathon Weekend! Join us for either the full mar...
08/14/2026

We're still looking for runners to join Team RAWF for the Philadelphia Marathon Weekend! Join us for either the full marathon, half marathon, or 8K.

This is a meaningful opportunity to make every mile count in support of hypothalamic-pituitary brain tumor survivors and their families.

By joining Team RAWF, runners will help advance our work to drive research, advocate for better treatment outcomes, and improve quality of life for survivors and families navigating the long-term effects of these rare brain tumors.

Email [email protected] to join the team!

Back to School season is here. Are you ready? Don't miss tonight's free webinar, Ready, Set, Advocate, to make sure you ...
08/12/2026

Back to School season is here. Are you ready?

Don't miss tonight's free webinar, Ready, Set, Advocate, to make sure you are!7pm EST tonight. Register via the link below https://zurl.co/tT8Qe

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PO Box 991
Ocean City, MD
21843

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