Bohring-Opitz Syndrome Foundation, Inc.

08/28/2026

🚨 LAST CALL FOR MILES FOR BOS! 💙💛

There’s still time to join us through August 31! So far, we’ve raised $5,090 and logged an amazing 374.8 miles/laps! 🎉

Roll, Run, Swim, Walk-A-Thon to help us finish the month strong while raising awareness for the BOS community!

🔗 Donate: https://www.paypal.com/ncp/payment/HW3BHQAPRX4YA
🔗 Log Your Miles:
https://forms.gle/HMMCViaXp81EsBjo6

Every mile and every dollar makes a difference! 💙💛

https://milesforbos.lovable.app/

08/23/2026

We’ve had even more people sign up for Roll, Run, Swim, Walk-A-Thon! 💙⭐️

With just ONE WEEK LEFT, there is still plenty of time to join us!

You can still sign up, donate, get moving, and help us raise awareness for Bohring-Opitz Syndrome. Every mile and every dollar makes a difference!

Let’s finish this final week strong! Who’s ready to help us make an impact?

https://milesforbos.lovable.app

08/17/2026

Roll, Run, Swim, Walk-A-Thon, WE’RE HALFWAY THROUGH AUGUST!

And there’s still plenty of time to get moving for Miles for BOS! 💙

So far, we’ve logged an amazing 123.75 miles! 🎉 Every walk, run, roll, and swim helps make a difference for the BOS community.

It’s not too late to join us—get moving, log your miles, and help us finish August strong!

Let’s keep those miles coming!

Log your miles here: https://forms.gle/CL1z2Ha8AS7EowFC7
Join the movement: https://milesforbos.lovable.app/

08/15/2026

The Bohring-Opitz Syndrome community spans the globe, and the BOS Foundation is honored to support families wherever they are!

We were so excited to contribute to the Annual UK BOS Meetup and help bring families together for connection, support, friendship, and shared experiences.

No matter where in the world a BOS family lives, they are part of our community. Together, we’re building a stronger network of support and making sure no family feels alone on this journey. 💙⭐️

08/12/2026

The Social Security Administration (SSA) announced the addition of Bohring-Opitz Syndrome and 13 other conditions to the agency’s Compassionate Allowances (CAL) list. The CAL initiative accelerates the disability application process for individuals with serious diseases and medical conditions that meet the statutory standard for disability benefits.
Read more:

Baltimore, MD – The Social Security Administration (SSA) today announced the addition of 14 conditions to the agency’s Compassionate Allowances (CAL) list. The …

08/12/2026

BOS Summer Fun! ☀️

We love seeing our BOS families enjoying their summer in their own special ways.

Here’s a little glimpse of our BOS summertime fun! 🌻🌊☀️

08/09/2026

MILES FOR BOS UPDATE!

We’re off to an AMAZING start!

So far, we have raised $415 for the Bohring-Opitz Syndrome Foundation!

But August isn’t over yet! There’s still plenty of time to Roll, Run, Swim, Walk-A-Thon your way to supporting BOS!

Every mile, every donation, and every share helps support research, families, awareness, and resources for the BOS community.

💙 Want to join us?
💛 Want to make a donation?
💙 Want to honor someone special?

Let’s keep moving and see how far we can go together!

Your miles. Your support. Their future.

https://milesforbos.lovable.app/

04/06/2026

Today we recognize Bohring-Opitz Syndrome Awareness Day 💙⭐️
Bohring-Opitz Syndrome (BOS) is a rare genetic disorder affecting approximately 300 individuals worldwide. Though rare, this community is incredibly strong, resilient, and deeply loved.

Today, we wear gold and navy to show our support, raise awareness, and stand beside the families and individuals impacted by BOS.

Together, we can help bring visibility, understanding, and hope.

Learn more or support the mission:
www.bos-foundation.org