10/09/2026
Four in five Californians with sickle cell disease (SCD) relied on Medi-Cal at some point between 2021 and 2023, but fewer than half stayed enrolled continuously, according to California’s first statewide SCD surveillance report.
The report, produced by the California Sickle Cell Data Collection program, arrives months before new federal Medi-Cal work requirements take effect, rules that could widen those gaps unless people with SCD can readily verify their exemptions. SCD is an inherited blood disorder affecting multiple body systems throughout life. People with SCD have a life expectancy about 20 years shorter than the general population, a gap shaped by barriers to health care and other resources.
The report identifies opportunities to improve outcomes through better chronic case management, access to specialty care and stronger care coordination. Read more: https://www.phi.org/press/four-in-five-californians-with-sickle-cell-disease-have-relied-on-medi-cal-first-statewide-report-finds/
California Sickle Cell Data Collection is a program of Tracking California, a program of the Public Health Institute.
A new report from Tracking California on the 7,000 Californians with sickle cell disease identifies opportunities to improve their health.