CTX Alliance

06/10/2026

It's not too late to sign up! Click to register:
https://tinyurl.com/CTXCafe

Join us for the first-ever CAFE: CTX Alliance Family & Patient Exchange, an informal virtual gathering for CTX patients, families, and caregivers to connect, ask questions, and support one another.

We hope you’ll join us next week Friday, June 19 at 11 A.M. ET.

Join us for the first-ever CAFE: CTX Alliance Family & Patient Exchange, an informal virtual gathering for CTX patients, families, and caregivers to connect, ask questions, and support one another.

We hope you’ll join us Friday, June 19 at 11 AM ET.

Click to register:
https://tinyurl.com/CTXCafe

06/06/2026

We’re very happy to have Ernst J. Schaefer, MD, as one of our speakers at this year’s CTX Summit!

The CTX Family & Science Summit is just 3 weeks away, and there’s still time to register! Join us to hear from leading experts, connect with CTX Alliance leadership, and engage with other CTX families.

Register here:
https://ulf.org/news/conference/

CTX Summit Agenda:
https://ctxalliance.org/ctx-meeting-at-ulf-conference

06/02/2026

It only takes a few minutes to make a BIG impact.

Join CTX Alliance and add your own voice to the growing number of advocates calling on to pass a one-time surge of funding to screen every baby, in every state, for every recommended condition. It’s easy and effective to take action.

➡️ Visit surgetosave.org/act-now/
✔️ Enter your information to identify your Congressional representative
📝 Use our prewritten letter or customize your own message about the importance of
✉️ Submit your message and share with others!

Newborn screening saves lives, but only if we fund it. 💜

06/01/2026

Join us for the first-ever CAFE: CTX Alliance Family & Patient Exchange, an informal virtual gathering for CTX patients, families, and caregivers to connect, ask questions, and support one another.

We hope you’ll join us Friday, June 19 at 11 AM ET.

Click to register:
https://tinyurl.com/CTXCafe

05/28/2026

We’re excited to welcome Jennifer Rossen, MD, as one of our speakers at this year’s CTX Summit! Dr. Rossen also serves on the CTX Alliance Leadership team.

The CTX Family & Science Summit is just 28 days away, and there’s still time to register! Join us to hear from leading experts, connect with CTX Alliance leadership, and engage with other CTX families.

Register here:
https://ulf.org/news/conference/
CTX Summit Agenda:
https://ctxalliance.org/ctx-meeting-at-ulf-conference

05/21/2026

We are happy to introduce Amanda Nagy, MD! Dr. Nagy will be one of our Summit speakers!

The CTX Family & Science Summit is just 34 days away, and there’s still time to register. Join us to hear from leading experts, connect with CTX Alliance leadership, and engage with other CTX families.

Register here: https://ulf.org/news/conference/

05/15/2026

We’re excited to introduce another one of our Summit speakers — Dr. Lei Ling!

The CTX Family & Science Summit is just 41 days away, and there’s still time to register. Join us to hear from leading experts, connect with CTX Alliance leadership, and engage with other CTX families.

Register here: https://ulf.org/news/conference/

05/09/2026

We're excited to introduce one of the Summit speakers we will have this year and the information she will be sharing. Meet Dr. Sarah Elsea!

It's not too late to register for the CTX Family & Science Summit! We would love to have you there!
https://ulf.org/news/conference/

05/05/2026

The 10th Annual CTX Family & Science Summit is almost here — and we can’t wait to welcome you!

If you’re coming in from out of state or exploring Oak Brook for the first time, we’ve got you covered with local, family‑friendly spots that make your trip worth the miles.

04/30/2026

Our 10th Annual CTX Family & Science Summit will be happening soon! We're excited for the speakers we have this year and the information they will be sharing.

For the next few weeks, we will be introducing our Summit speakers that we will be hearing from at the Summit. We start off with Dr. Andrea DeBarber!

It's not too late to register for the CTX Family & Science Summit! We would love to have you there! https://ulf.org/news/conference/