03/27/2026
A genetic diagnosis is the foundation of effective care. Without it, families are left navigating symptoms without direction. With it, everything changes...treatment plans become clearer, insurance is more likely to approve next steps, families find support through connection with other families, and children gain access to the resources they need to thrive.
Take Part Foundation has funded 40 completed genetic tests, with dozes more approved...and many more to come. Of these...
* 5 children (12.5%) received informative genetic testing results
* 1 child had negative diagnostic results
* 34 children (85%) had a diagnostic finding that could contribute to a change in medical care with actionable steps
St. Louis Children’s Hospital described these outcomes as “magnificent.”
These diagnoses are not just labels. They are the starting point for targeted care, early interventions, and long-term stability for families.
Referrals for genetic testing are increasing rapidly.
To avoid exhausting available funds, the hospital has shared that they must be more selective in approvals over the next few months.
This means:
+ More families are being denied by insurance
+ More children are waiting
+ And without donor support, many will go without answers entirely
Your continued generosity ensures that no child is left behind simply because of an insurance denial.
Thank you for standing with these families.
Your generosity is giving children the most powerful tool in rare disease care: a diagnosis.
You are opening the door to treatment, coverage, and hope, and giving parents the peace of knowing they are not alone!
Because of you, children in St. Louis facing rare or undiagnosed conditions are finally getting the answers they need to thrive. Our hope is to continue this impact with your continued generosity, right here in St. Louis and beyond.
