Know the Glow - University of Notre Dame Chapter

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Know the Glow - University of Notre Dame Chapter We are a group of student interns at Know the Glow who help to raise awareness of leukocoria.

On February 28th, student interns from KnowTheGlow at the University of Notre Dame joined the University’s Rare Disease ...
03/17/2026

On February 28th, student interns from KnowTheGlow at the University of Notre Dame joined the University’s Rare Disease Day celebration. The event brought together students, faculty, and families impacted by rare diseases. In solidarity with landmarks around the world, the Hesburgh Library’s Word of Life Mural was illuminated in rare disease colors as part of the global campaign. Through the dedication of Notre Dame’s KnowTheGlow interns, luminaries were also submitted in honor of the courageous children whose glow stories were shared throughout the past year.

On February 28th, KnowTheGlow’s student interns at the University of Notre Dame took part in the University’s celebratio...
04/09/2025

On February 28th, KnowTheGlow’s student interns at the University of Notre Dame took part in the University’s celebration of Rare Disease Day with programming attended by students, faculty, and families affected by rare diseases. Along with various landmarks around the world, the Hesburgh Library’s Word of Life Mural was illuminated in rare disease colors as they celebrated on campus. Thanks to the dedication of KnowTheGlow’s Notre Dame student interns, luminaries were submitted on behalf of the brave children whose glow stories we shared over the past year. We are thrilled to highlight Notre Dame’s incredible efforts to bring awareness to rare diseases and amplify the voices of patients, families, and advocates.��

A huge thank you to everyone who joined our Campus Awareness Day on October 10th for at the University of Notre Dame...
11/13/2024

A huge thank you to everyone who joined our Campus Awareness Day on October 10th for at the University of Notre Dame! Over 150 students, faculty, and staff stopped by to learn about the glow, KTG’s global campaign efforts, and the International Agency for the Prevention of Blindness (IAPB).

Our “Spot the Glow” game was a hit, drawing long lines of students eager to score a free donut or bagel by aiming a glow-in-the-dark ball at a target shaped like a glowing eye. At the “DIY Artie” painting station, attendees used colorful paint to bring Artie, the 2024 World Sight Day mascot, to life. As they painted, we shared information about the IAPB and the World Sight Day 2024 theme, “Love Your Child’s Eyes,” emphasizing early detection and preventive care for avoidable blindness.

Together, we’re raising awareness and taking steps to prevent childhood blindness, one glow at a time. 💛

Notre Dame celebrated Rare Disease Day on February 29th with a program illuminating the Hesburgh Library's Word of Life ...
03/12/2024

Notre Dame celebrated Rare Disease Day on February 29th with a program illuminating the Hesburgh Library's Word of Life Mural as they celebrated "LightUpForRare" on campus with the Rare Disease Club and several members of KTG's Notre Dame interns and volunteers! Cheers to another successful event!

Congratulations to Professor Barb Calhoun and her team for the success of the Third Annual Rare Disease Patient Advocacy...
11/12/2023

Congratulations to Professor Barb Calhoun and her team for the success of the Third Annual Rare Disease Patient Advocacy Summit this past October at the University of Notre Dame's Boler-Parseghian Rare and Neglected Disease Center! It was another tremendous event and provided a wonderful opportunity to bring together patient caregivers, biotech leaders, and rare disease patient organizations to discuss both the challenges and the opportunities they see! KTG Co-Founder, Megan Webber, was delighted to attend and was inspired as always by the speakers and the hope for the future of rare disease patient advocacy!

The IAPB Posted about Team KTG's work on ND's Campus! Well done team!!!!!
10/16/2023

The IAPB Posted about Team KTG's work on ND's Campus! Well done team!!!!!

We had a great time during our Know the Glow campus awareness fair, raising awareness of "the glow" in the Notre Dame co...
09/18/2023

We had a great time during our Know the Glow campus awareness fair, raising awareness of "the glow" in the Notre Dame community reached so many people. Our wind chimes help to create an accessible experience for those with a dampened vision as a result of a rare eye disease. Our mirror and lemonade helped to reinforce the yellow/white "glow" as different from the red-eye normally seen in flash photography. Working with RareND to raise awareness of rare eye diseases with the IAPB's world sight day, we hope to raise widespread awareness of ways to detect an overlooked source of childhood blindness.

This week we are bringing our focus to one of our post-grad interns who has helped KTG in so many ways! Read more about ...
07/24/2023

This week we are bringing our focus to one of our post-grad interns who has helped KTG in so many ways! Read more about Bailey below:

At Notre Dame, I completed a bachelor's degree in Neuroscience and Behavior with a minor in Patient Advocacy. Throughout my last two years, I had the opportunity to work with KTG in completing social media outreach projects and assisting with the Venezuela campaign. I took one year off after graduation, spending three months in Boston completing a Patient Advocacy internship in Boston with Dyne Therapeutics, one of the rare disease pharmaceutical companies that partners with the Science and Patient Advocacy program at Notre Dame. After that, I returned to Colorado to work as a medical assistant at a dermatology clinic, and I am now at the Case Western Reserve University School of Medicine, entering into my first year of medical school. In my free time I love seeking out great bakeries and coffee shops, and I'm always looking for hiking spots to bring my puppy, Luna, on!

This week we are emphasizing the important work of Jamie, one of our interns who has been with us for about two years!! ...
07/18/2023

This week we are emphasizing the important work of Jamie, one of our interns who has been with us for about two years!! Hear more about Jamie’s amazing work below:

I am a rising senior majoring in Science Business with a minor in Science and Patient Advocacy. I have been with Know the Glow since my Sophomore year and my area of focus is the Oceania region. I have helped with the awareness campaign in Oceania especially when I was studying abroad in Western Australia. In my free time I enjoy hiking, skiing, reading, and cooking. I love working with Know the Glow and am happy to be a part of the team!

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