Jett Foundation

06/05/2026

Attention Challengers! 🚨💪 It’s time to check on those fundraising goals and complete your 5K of movement before the week is over!

Fundraising is super easy this year; head over to the Facebook link below to finish up and collect prizes. 👀🏆

https://www.facebook.com/fundraiser/with_presence/create_dialog/?challenge_id=1525621396239945&default_beneficiary_id=241119512215404&default_beneficiary_type=charity&prefill_type=fundraiser_for_challenge

📸 Team Dynamos from Dyne Therapeutics completing their goals!

06/04/2026

Our friends at CureDuchenne have created many useful resources for families facing Duchenne muscular dystrophy. With new research changing how we think about exercise in Duchenne, CureDuchenne recently published “What New PT/OT Research Means for Families.”

Check it out by visiting cureduchenne.org/blog/exercise-duchenne-muscular-dystrophy.

Emerging research is changing how we think about exercise in Duchenne muscular dystrophy. Learn what’s safe and how to work with your care team.

06/04/2026

Today, June 4, Avidity Biosciences shared an update on the planned AOC 1045 clinical trial for individuals with Duchenne muscular dystrophy amenable to exon 45 skipping (DMD45).

To view their Community Letter, please visit our blog: www.jettfoundation.org/duchenne-news/avidity-biosciences-update-to-the-duchenne-community-on-status-of-dmd45-investigational-program

06/04/2026

Silver Soirée Auction Preview is LIVE! 👀✨

Get a first look at more than 40 incredible auction packages, from unforgettable travel experiences and exclusive memorabilia to local favorites and unique dining opportunities.

You do not need to attend the Soirée to participate or win. Browse the auction, pick your favorites, and get ready to bid from anywhere.

Every bid helps create a stronger future for individuals and families living with Duchenne.

🔗 View the auction: https://silversoiree.givesmart.com/

06/04/2026

We invite you to join us in one week for our next Carrier Conversations session, open to female carriers in the Duchenne community. 💜🗣️

Learn more and register to join: www.jettfoundation.org/event/carrier-conversations-6-11-26

06/03/2026

❤⚽️ After losing his identical twin brother, Troy, Andrew Chauppetta wrote a children's book inspired by their shared love of Power Wheelchair Soccer.

Both Andrew and Troy were dedicated advocates, Team USA Power Wheelchair Soccer athletes, and longtime Jett Foundation Community Ambassadors. Through this book, Andrew is sharing their story with a new generation while keeping Troy's spirit alive.

🤝 A portion of proceeds from each book sold will be donated to Jett Foundation.

Read their inspiring story on our blog and grab a copy: www.jettfoundation.org/blog/honoring-troy-chauppettas-legacy-through-the-power-of-storytelling

06/03/2026

Please join us in welcoming Jennasea Samuelsen to our team of Community Ambassadors! 🤝❤️

Jennasea has a son diagnosed with Duchenne muscular dystrophy and is passionate about helping other families feel less overwhelmed by sharing practical guidance, real-life experience, and resources that make early stages more manageable and less isolating.

Read more about Jennasea and our ambassadors: www.jettfoundation.org/community-ambassadors

06/03/2026

We want to see those goal-crushing smiles! 📸✨ Whether you're halfway through or just finished your challenge goal, share a photo of your National Challenge 5K progress in the comments or tag us from your feed!

Don’t forget: participants who raise:
💯 $100 receive a special event magnet
⭐ $250 unlocks an event t-shirt!

https://www.facebook.com/fundraiser/with_presence/create_dialog/?challenge_id=1525621396239945&default_beneficiary_id=241119512215404&default_beneficiary_type=charity&prefill_type=fundraiser_for_challenge

06/02/2026

Camp Promise - Ohio, taking place June 29 - July 2, can use your support with items on our Amazon Wishlist. ✨🐷 These items help bring joy, accessibility, and adventure to camp in Akron.

Shop the wishlist below and support Camp Promise - Ohio! 🏕️🌲

https://www.amazon.com/hz/wishlist/ls/2G2UGWP73UXW2/ref=hz_ls_biz_ex

06/02/2026

Today, June 2, Entrada Therapeutics, Inc. shared a Community Letter for the Duchenne community outlining updates on clinical studies and more.

To view their Community Letter, please visit our blog at www.jettfoundation.org/duchenne-news/entrada-shares-june-duchenne-community-newsletter.