Standing Up to POTS

Standing Up to POTS SUTP seeks to improve quality of life for those with POTS through research, advocacy, and support
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STANDING UP to POTS is committed to increasing awareness for postural orthostatic tachycardia syndrome (POTS) within the medical community and raising money to support POTS research. POTS is a form of dysautonomia, and is caused by malfunctioning of the autonomic ("automatic") nervous system. Standing Up to POTS was founded in 2014 and is a 501(c)(3) non-profit organization that is run 100% by volunteers.

Tinsley has had POTS symptoms during two different stages of her life. First at 16, in response to a severe allergic rea...
06/09/2026

Tinsley has had POTS symptoms during two different stages of her life. First at 16, in response to a severe allergic reaction to her braces, which went into remission when she had them removed; and second, during college, when she suddenly began having 15+ convulsive episodes per day with other debilitating symptoms. And yet, she graduated college and law school, worked her dream job, got married and has a very full life. In this episode she discusses her journey and how she’s managed her POTS enough to have a full life again. On your favorite platform or ThePOTScast.org

Your friendly reminder to grab those electrolytes! Staying hydrated with   can be a challenge. What's your go-to way to ...
06/08/2026

Your friendly reminder to grab those electrolytes! Staying hydrated with can be a challenge. What's your go-to way to keep your water (and sodium!) levels up?

Thanks to our friend Mikayla for sharing her   journey to raise awareness!First symptom: DizzinessWorst symptom: NauseaH...
06/07/2026

Thanks to our friend Mikayla for sharing her journey to raise awareness!

First symptom: Dizziness

Worst symptom: Nausea

Hardest thing about living with POTS: Keeping up academically.

Favorite way to consume salt: Miso soup

You might suspect I'm a POTSie when... I ask you to lift my legs up while we’re out.

Biggest life change made because of POTS: Sitting out on certain activities I would've
never turned down before.

Best coping strategy: Reading while in bed.

I want to help raise awareness because... Nobody should have to wait that long to receive
a diagnosis.

I wish more people knew that POTS... is a silent battle that is usually unrecognizable from
an outside perspective.

POTS has taught me that... It’s okay to move at your own pace.

If you or your patients need hope for treating MCAS, this is a not-to-be-missed episode! Dr. Dempsey discusses the use o...
06/02/2026

If you or your patients need hope for treating MCAS, this is a not-to-be-missed episode! Dr. Dempsey discusses the use of GLP-1 medications for MCAS, including her most recent observations and recommendations, using them on complex patients with POTS, gastroparesis, underweight and more. This is a follow-up to Dr. Dempsey’s free online GLP-1 Masterclass (available at https://drtaniadempsey.com/glp1s-masterclass/), which covers all the basics. Listen on your favorite platform or ThePOTScast.org.

Thanks to our friend Melany for sharing her   journey to raise awareness!First symptom: Dizziness upon standingWorst sym...
06/02/2026

Thanks to our friend Melany for sharing her journey to raise awareness!

First symptom: Dizziness upon standing

Worst symptom: Itchy legs upon standing, sleep paralysis and tremors upon waking.

Hardest thing about living with POTS: Not being able to keep up with healthy people that
surround me.

Favorite way to consume salt: LMNT and Doritos dinamita chips.

You might suspect I'm a POTSie when...I struggle to put my hair up.

Biggest life change made because of POTS: I was diagnosed with Hashimotos and POTS
recently so maintaining a somewhat GF diet and a bunch of water and sodium at the same
time is hard.

Best coping strategy: Knowing God has a plan and he’s got my back.

I want to help raise awareness because... I had to order my own hashimotos antibodies
because a doctor wouldn’t, I thought my POTS symptoms were hashi and then I read
about POTS and educated myself and started tracking symptoms and advocated for
myself, I was blessed enough to find doctors that believed me this time.

I wish more people knew that POTS...Isn’t just a fast heart rate and it can affect a lot of
things within your body and your way of living.

POTS has taught me that...I have to slow down and take it all one step at a time.

Simone was a professor of sport psychology enjoying a trip through Mexico when symptoms became too serious to ignore. PO...
05/26/2026

Simone was a professor of sport psychology enjoying a trip through Mexico when symptoms became too serious to ignore. POTS was just one of many symptoms (many were gynecological) and she ultimately learned she had multiple compression syndromes including May Thurner Syndrome, for which she received a stent, and Nutrcracker Syndrome, for which she underwent a renal autotransplant surgery to move her kidney. After 7 surgeries in 2 years, Simone feels she got her life back, and has created The Nutcracker Syndrome Podcast to share her experiences, advice, lessons learned, and much more. Listen on your favorite platform or at ThePOTScast.org

One of the hardest parts of chronic illness is that many of the most exhausting things look “normal” from the outside. W...
05/25/2026

One of the hardest parts of chronic illness is that many of the most exhausting things look “normal” from the outside. What everyday task would you add to the list?

Thanks to our friend Katie for sharing her   journey to raise awareness!First symptom: DizzinessWorst symptom: FaintingH...
05/24/2026

Thanks to our friend Katie for sharing her journey to raise awareness!

First symptom: Dizziness

Worst symptom: Fainting

Hardest thing about living with POTS: POTS completely changed my life. I went from being an active collegiate dancer who danced 20+ hours a week to struggling to walk across a room without feeling faint and needing to sit down. The hardest part initially was the identity whiplash I felt going from being an active and capable athlete to someone who struggled standing for long periods of time or doing any physical activity. Long-term, it's the need to think through so many things before ever leaving the house to make sure I have everything I need should to help me function and avoid having an episode.

Favorite way to consume salt: I love drinking Body Armor electrolyte drinks and taking my Klaralyte salt capsules.

You might suspect I'm a POTSie when... You see me carrying my 40oz Stanley and constantly chugging liquids to stay hydrated.

Biggest life change made because of POTS: Retiring my life as a dancer and major modifications to exercise.

Best coping strategy: Leaning on my support system to help me manage symptoms, care for my family, and support me through the ongoing realities of living with POTS because every day is different.

I want to help raise awareness because... The lack of education to not only the general public but medical staff is vast. When people look at me, they think I'm "healthy," but what they don't see is the invisible illness I manage every day.

I wish more people knew that POTS... I wish more people knew that POTS doesn’t just affect my heart rate—it affects my ability to work, parent, socialize, and function normally.

POTS has taught me that...POTS has taught me so many things. I learned that my worth is not measured by my productivity. I learned to slow down and listen to my body in a way I never had to before. But ultimately, I found that I am far more resilient than I ever imagined.

Betsy Harmon, RN, CRNI, CPUI, VA-BC has been an infusion nurse for over 20 years and runs an infusion center where she o...
05/19/2026

Betsy Harmon, RN, CRNI, CPUI, VA-BC has been an infusion nurse for over 20 years and runs an infusion center where she oversees and administers all types of infusions to a wide variety of patients. In this episode she shares the many factors that go into safe and effective infusions, what infusion nurses are looking for and thinking about as they care for patients, what patients can do to help infusions go more easily, and answers listener questions about infusions. Listen on your favorite podcast or at ThePOTScast.org

Whether you’re navigating life with a chronic illness like   or supporting someone who is, the desire to be seen and und...
05/18/2026

Whether you’re navigating life with a chronic illness like or supporting someone who is, the desire to be seen and understood is universal.
Take a moment today to truly listen to someone’s story. It makes all the difference.

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P. O. Box 72
North Hampton, OH
45349

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