Grin2b Foundation

Grin2b Foundation Our goal is to offer support and share research to the small, but growing community of children diagnosed with alterations on their GRIN2B gene.

06/02/2026

When you find out GRIN2B Family & Research Weekend is almost here, and you simply cannot contain yourself. 🐝🥰💃

July 17-19 • Bethesda, MD

This is YOUR weekend, GRIN2B families. Research updates. Real connections. Your people, all in one place. We have been working hard to make this the best one yet, and we can't wait to see you there.

Spots are limited & registration closes on June 25th! Don't bee left out! 🐝 Register today! 💛

https://grin2b.com/family-research-weekend-2026/

3 reasons to join us this July! 🐝The GRIN2B Family & Research Weekend is July 17-19, 2026 in Bethesda, Maryland 💛 and we...
05/26/2026

3 reasons to join us this July! 🐝

The GRIN2B Family & Research Weekend is July 17-19, 2026 in Bethesda, Maryland 💛 and we would love to see you there!

Whether you are a first-time attendee or a GRIN2B Family Weekend veteran, this is the weekend where everything comes together: 💛 your community, 🧬 the latest science, and 🐝 the inspiration to keep going.

Don't wait! 🚨⏰ Registration closes in a month! Scan the QR code in the graphic or follow this link to save your spot today! https://grin2b.com/family-research-weekend-2026/

🐝 We have EXCITING news! 🐝Welcome to the team, Tamara McNally! 💛 We are proud to announce Tamara as the GRIN2B Foundatio...
05/22/2026

🐝 We have EXCITING news! 🐝

Welcome to the team, Tamara McNally! 💛 We are proud to announce Tamara as the GRIN2B Foundation's new Science Director, bringing nearly 30 years of expertise in global drug development and a deep passion for rare disease families.

Her leadership will be instrumental in advancing clinical readiness and moving research forward for our GRIN2B community.

👉 Read the full announcement: https://wp.me/p8uPnR-Lp

🚨 Don't forget! Our first 2026 GRI Get Together for families affected by GRI Disorders in Naperville, Illinois. Hosted b...
05/19/2026

🚨 Don't forget! Our first 2026 GRI Get Together for families affected by GRI Disorders in Naperville, Illinois. Hosted by Cure GRIN Foundation and GRIN2B Foundation! 💜💙🧡💛

Attendance is FREE for GRI Families.

Register now: https://bit.ly/4ec8wsB

Location: Naperville Public Library - Nichols Library, 200 W Jefferson Ave, Naperville, IL 60540
Date and time: Sat, Jun 13, 2026 12:00 PM - 3:00 PM CT

If you have any questions please contact [email protected] or [email protected].

Thank you to our sponsor, GRIN Therapeutics!

Thank you to Founding Board Member, Brittaney Crider, for serving 9 amazing years as GRIN2B Foundation's Family Outreach...
05/18/2026

Thank you to Founding Board Member, Brittaney Crider, for serving 9 amazing years as GRIN2B Foundation's Family Outreach Coordinator! 💛🐝💛

Brittaney was a key figure in developing and maintaining our patience assistance grant program. She served tirelessly on the board and helped coordinate national events such as our family conferences as well as local BeeActive campaigns with her family and community. Brittaney is an empathetic leader, warm friend and fierce advocate for our community and for her daughter and Bee, Natalie. We will miss you, Brittaney! 🥰😘

Don't forget to register for our GRIN2B Family & Research Weekend in Bethesda, MD this July! 💛🐝Registration closes on Ju...
05/13/2026

Don't forget to register for our GRIN2B Family & Research Weekend in Bethesda, MD this July! 💛🐝

Registration closes on June 25th:
https://grin2b.com/family-research-weekend-2026/

Our Family Weekend Planning Committee is working hard to make this gathering as meaningful as possible. At our last meeting, we asked our committee members to share what they're most excited about.

"This will be my 3rd time attending a GRIN2B conference and I'm excited to attend at a different point in this journey. At our first conference in Atlanta, we were newly diagnosed and it was a lot to take in. Now I feel like I understand more of the science, and I'm excited to connect with and hear perspectives from newly diagnosed families."

Aubrey Schrock, mom to Hunter and GRIN2B Foundation Family & Outreach Coordinator

💐🐝 Happy Mother's Day to the most extraordinary moms we know! 🐝💐To every GRIN2B mama: the ones who became researchers, a...
05/10/2026

💐🐝 Happy Mother's Day to the most extraordinary moms we know! 🐝💐

To every GRIN2B mama: the ones who became researchers, advocates, and warriors overnight...today is YOUR day. 🌟

You show up every single day with love that knows no limits. You celebrate every milestone, fight for every resource, and lift up every family in this community. You are the heartbeat of everything we do.

Happy Mother's Day from the GRIN2B Foundation family! 🌸

Great news for families in Europe from GRIN Therapeutics! 🌍💊GRIN Therapeutics has launched the Phase 3 Beeline trial in ...
05/06/2026

Great news for families in Europe from GRIN Therapeutics! 🌍💊

GRIN Therapeutics has launched the Phase 3 Beeline trial in Europe, studying radiprodil, an investigational treatment targeting the root cause of GRIN-NDD in patients with gain-of-function variants.

Sites are now enrolling in Belgium, France, Germany, Italy, Poland, the Netherlands, Slovenia, and Spain, joining sites already open in the US and UK.

Read the press release for more information:https://neurvati.com/wp-content/uploads/Neurvati_2026_PR_EUAprilRelease_FINAL.pdf

⏰ Reminder...you have until May 15th to apply for a Travel Grant for the GRIN2B Family & Research Weekend this July in B...
05/06/2026

⏰ Reminder...you have until May 15th to apply for a Travel Grant for the GRIN2B Family & Research Weekend this July in Bethesda, Maryland. ✈️🗺️🧳🌍

Apply here ➡ bit.ly/GRIN2B2026-TravelGrant
Learn more about this event on our website. ➡ https://grin2b.com/family-research-weekend-2026/

Hope to see you there! 🥰💛🐝

Celebrate a rare mom this Mother's Day! 💛💐Honor the strength, love and resilience of caregivers in the GRIN2B community ...
05/05/2026

Celebrate a rare mom this Mother's Day! 💛💐

Honor the strength, love and resilience of caregivers in the GRIN2B community with a tribute gift in her name.

Every donation supports families and fuels research that brings us closer to better outcomes.

✨ Make your gift and dedicate it today:
https://grin2b.com/donate/

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PO Box 481223
Niles, IL
60714

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