Devin Strong

Devin Strong Devin Strong is a registered nonprofit corp in Wisconsin.

Follow our fight against duchenne muscular dystrophy including advocacy and fundraising efforts, articles and commentary, pictures, videos, thoughts and experiences. We are involved in advocating for the well-being of everyone in the duchenne muscular dystrophy DMD community through pursuit of a cure, accessible treatments, affordable healthcare, and by contributing toward advancing public awareness and education.

I recently wrote a blog sharing something deeply personal to me — the reality of air travel as a wheelchair user living ...
05/26/2026

I recently wrote a blog sharing something deeply personal to me — the reality of air travel as a wheelchair user living with Duchenne Muscular Dystrophy.

For many people, flying is stressful. For wheelchair users, it can be painful, dangerous, and humiliating. From unsafe transfers to the fear of damaged equipment, accessible air travel is still far from where it needs to be.

This issue goes beyond convenience. It impacts dignity, independence, and even access to life-saving clinical trials and healthcare. A flight that takes hours could otherwise mean days of exhausting travel by car for someone with DMD.

I hope my story helps bring more awareness to why safer and more accessible air travel matters so much for the disability community. Change is possible, but only if people keep speaking up.

Thank you to everyone who continues to advocate alongside me. 💙

Read the full blog here

I am 24 years old, living with Duchenne Muscular Dystrophy, and advocating for accessible air travel. Duchenne is a muscle-wasting disease that causes the body’s muscles to be gradually destroyed rather than repaired. Over time, it takes away strength, independence, and mobility. There are very fe...

Hey everybody, welcome back to snack check with Devin….oh wait, this is the other social media platform. Well with that ...
05/20/2026

Hey everybody, welcome back to snack check with Devin….oh wait, this is the other social media platform. Well with that being said, I’m not sure if many of you know or not but I’m a content creator on tik tok and my username is snackcheckwithdevin where I do snack reviews. It’s been keeping me pretty busy and I have quite a few followers….actually I have 147.5K followers to be exact! I’ve met quite a few followers who have been inspired by my content. They’ve sent me snacks to review, some personal items and recently I was gifted 2 tickets to see the Brewers play at Wrigley Field. I was conversing with a follower and mentioned to him that I haven’t been to the field ever so he talked to my mom and surprised me with the tickets. We had a great time, the Brewers won and my brother came along with us too. Enjoy these pictures of me at the game!

05/03/2026

Took my track chair out yesterday, it felt great even though it was quite cold and windy. I can’t wait to use it more this year especially to go hunting. Speaking of hunting who’d want to take me.Thank you all for the support in fundraiser for the chair.

Two years ago today, my life changed so much. Everything shifted the day I fell and broke my femur.I was walking to the ...
04/18/2026

Two years ago today, my life changed so much. Everything shifted the day I fell and broke my femur.

I was walking to the bathroom in my house when my dog left a wet spot on the floor. Instead of walking through it, I tried to go around it—but when I did, I slipped. My leg twisted into a bad position, and I immediately knew something wasn’t right. My mom tried to move it into a better position, but the pain was so intense I was in tears.

I lay on the floor for a while, trying to figure out what to do, but I couldn’t think clearly, so we called an ambulance. They put a blanket under me to lift me onto the cot. The ambulance ride felt both slow and fast at the same time. I even recognized one of the firefighters—they had helped with Fill the Boot before.

When we got to the hospital, I was helped onto a bed. They didn’t have a room available, so I had to stay in the hallway. They asked if I wanted pain medication, but I said no. After about three hours, they took me back for an X-ray, which hurt because of the position my leg was in.

As soon as the doctor read the X-ray, he explained what had happened. I started crying because I knew this meant I wasn’t going to walk again, especially with having Duchenne. They gave me pain medication after that, and things got a little blurry. I was moved to a room for the night since they planned to do surgery in the morning.

However, the next morning, after reviewing the X-ray, the surgeon didn’t feel safe operating because of my Duchenne Muscular Dystrophy. Once again, we didn’t know what we were going to do. Then we were told that ThedaCare in Appleton would be able to perform the surgery. So I took another ambulance ride—this time by myself—while my mom followed in the van.

When we arrived, they were ready. They did a CT scan of my leg and got me into a room for a bit before it was time for surgery. I wasn’t ready, but soon after, they put me under. When I woke up, I was on my BiPAP machine. After a while, they took it off, and I was awake. My leg felt better, but it was still very sore.

The surgeon had inserted a rod with four screws, which meant walking wouldn’t be possible again.

I stayed in the ICU that night alone because my mom wasn’t allowed back there overnight. That first night was tough—I had to ask the nurse for help with everything, even going to the bathroom. The next morning, my aunts, mom, grandma, and dad came to visit. Later, I was moved to a regular room where I stayed for a few days to heal and start physical therapy.

Those days were rough. I had to get used to needing help with everything, including using the restroom—even using a bedpan, which was the worst. I couldn’t get into my wheelchair yet. After a few days, I was transferred to inpatient physical therapy, where I stayed for about two weeks.

Things slowly got a bit easier. I learned how to use a commode, had help showering, and was able to sit in my chair for short periods. The days were busy with therapy sessions, trying to stand and regain strength, but that didn’t really happen.

During that time, some of my friends visited, including my camp counselors from MDA camp—Maria and Matt. Seeing them made my day. After a few days, I got tired of the hospital food and started ordering DoorDash every day.

After a long hospital stay, I was finally discharged. Soon after, we traveled to Iowa for my trial visit. Everything went well, but we had to adjust to using a Hoyer lift, a commode, and a urinal every time I needed to go to the bathroom.

Through all of this, we learned we had to adapt many things in our home, like the bathroom and hallways. Even though something difficult had happened, we kept a positive mindset.

Now, I rely on my friends and family to help me with daily tasks like using the bathroom, getting into bed, and getting around. I’m incredibly grateful for everyone who has helped me along this journey, especially my mom!! I am forever grateful for all she has done and does for me.

Looking at my life now, I realize how thankful I am to have such a loving and supportive group of family members and friends who are always there when I need them.

The Muscular Dystrophy Association invited me and a few other families to the Boot Camp for MDA Fill The Boot. It was ni...
04/15/2026

The Muscular Dystrophy Association invited me and a few other families to the Boot Camp for MDA Fill The Boot. It was nice to see many familiar  faces that I’ve met from the past Boot Camps or Fill the Boots but I’ve also got to meet many new faces. Boot camp is a big meeting for the firefighters where they learn how to make the most for MDA during fill the boot. I also shared my experience with them about my TikTok channel. Then the Milwaukee Brewers donated some tickets for those who attended the boot camp. We sat in some very good seats. It was a great game but we had a rough time when we learned there was a tornado warning and that a tornado touched down close, when this happened no one seemed to take cover or was worried like we were. When we left it was raining, really windy, hailing, flooding, and lots and lots of lightning. After taking a bit longer to get home we made it safe. Well better luck next time and hopefully we can stay longer.

As many of you know I’ve reached 100k followers on TikTok so the local radio station reached out and wanted to commemora...
04/06/2026

As many of you know I’ve reached 100k followers on TikTok so the local radio station reached out and wanted to commemorate me reaching 100K followers on Snackcheckwithdevin. Please give it a read and if you’d like to follow my TikTok channel or send me snacks you can do so on here.

https://www.tiktok.com/?_r=1&_t=ZP-95JvVa9nIGk

A Newton resident is making his mark on TikTok. Devin Argall, whose profile on the app is called Snack Check W...

03/21/2026

Checkout my new lights for my chair that my TikTok followers helped me get. If you haven’t checked out my page, what are you doing? lol check it out, Snackcheckwithdevin

Warmest wishes to everyone on St. Patrick's Day from Devin the Leprechaun. I encourage you to take part in traditional I...
03/17/2026

Warmest wishes to everyone on St. Patrick's Day from Devin the Leprechaun. I encourage you to take part in traditional Irish cuisine and festivities today. May the luck of the Irish be with you all. Additionally, please consider supporting MDA by purchasing a shamrock on this special day.

Today is Rare Disease Day, and I want to share a little bit about what it all involves in living with Duchenne Muscular ...
02/28/2026

Today is Rare Disease Day, and I want to share a little bit about what it all involves in living with Duchenne Muscular Dystrophy (DMD).

I live with Duchenne every single day. It doesn’t go away….there isn’t a cure….yet! It affects my muscles, my independence, and the way I move through the world, but it does NOT define who I am. Living with DMD takes strength and resilience, especially on the hard days. It also reminds me how important support, accessibility, and continued research are.

Duchenne is a rare disease, but the people living with it are not invisible. Our voices matter. Our lives matter. We deserve better treatments and, one day, a cure.

Today, I’m proud to stand with the Duchenne community and everyone living with a rare disease. Thank you to those who listen, support, and help spread awareness.

I’ve been posting TikToks reviewing snacks, healthier candy, and drinks, and the support has been unreal. My followers h...
02/25/2026

I’ve been posting TikToks reviewing snacks, healthier candy, and drinks, and the support has been unreal. My followers have been incredibly kind so kind that they’ve bought items from my Amazon wishlist (including LEGO sets I really wanted!) and even helped me raise enough money to get lights for my wheelchair.

If you’d like to check it out, my page is Snackcheckwithdevin. And if you have any snack or drink suggestions you’d like me to try, let me know I’m always open to ideas! If you know of any companies that might be interested in sending products for me to review, feel free to pass my page along.

43.3k Followers, 175 Following, 360.2k Likes - Watch awesome short videos created by Snack Check with Devin

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