PMG Awareness Organization

PMG Awareness Organization We are an international nonprofit that serves a critical need in the lives of those affected with Polymicrogyria (PMG). PMG Awareness will work to:
1.

Educate health care providers, researchers, legislators, the public, and all those affected about Polymicrogyria (PMG)
2. Promote, support and assist in advancing Polymicrogyria research
3. Advocate on behalf of all children, families, and friends affected by PMG
4. Support and guide parents, relatives, and friends affected by PMG

The PMG Awareness Organization encourages members of the PMG community to apply for the Scholarship Fund.Powered by th...
03/24/2026

The PMG Awareness Organization encourages members of the PMG community to apply for the Scholarship Fund.

Powered by the EveryLife Foundation for Rare Diseases, 58 scholarships of $5,000 will be awarded to individuals with rare diseases pursuing higher education for Fall 2026. Recipients may also participate in a mentorship program, learning sessions, and advocacy opportunities.

Learn more and apply at RareScholarship.org. Applications close April 28 at 2 PM ET.

🌍 Rare Disease Day is TODAY, February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment to h...
02/28/2026

🌍 Rare Disease Day is TODAY, February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment to honor the 300 million people living with a rare disease. Polymicrogyria (PMG) is one of them.

💜 Throughout February, we’re celebrating our PMG Superstars—the incredible individuals whose stories fuel our advocacy and inspire our community.

🌟 TODAY, MEET FINLEY FROM LIMERICK, IRELAND!

PMG may be rare, but TOGETHER as a community, we can unlock the mysteries of Polymicrogyria and push awareness forward.

đź”— Learn about PMG: https://pmgawareness.org/unlocking-the-mysteries-of-polymicrogyria-pmg/
đź’™ Support PMG Awareness: https://pmgawareness.org/make-a-donation/
Now accepting Venmo donations:

💗 Today, February 28, is Rare Disease Day — a global moment to raise awareness and spark change for the 300 million peop...
02/28/2026

💗 Today, February 28, is Rare Disease Day — a global moment to raise awareness and spark change for the 300 million people worldwide living with a rare disease, along with their families and caregivers.

For our PMG community, this isn’t just one day. Living with a rare disease is an everyday reality filled with resilience, strength, and unwavering love. Our community is powered by incredible PMG Superstars, dedicated caregivers, and families and friends who show up again and again.

Together, we stand for change, connection, and hope. Together, we lift one another up. And together, we can unlock the mysteries of Polymicrogyria. đź’—

www.pmgawareness.org

🌍 Rare Disease Day is tomorrow, February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment t...
02/27/2026

🌍 Rare Disease Day is tomorrow, February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment to honor the 300 million people living with a rare disease. Polymicrogyria (PMG) is one of them.

💜 Throughout February, we’re celebrating our PMG Superstars—the incredible individuals whose stories fuel our advocacy and inspire our community.

🌟 TODAY, MEET IMOGEN!

PMG may be rare, but TOGETHER as a community, we can unlock the mysteries of Polymicrogyria and push awareness forward.

đź”— Learn about PMG: https://pmgawareness.org/unlocking-the-mysteries-of-polymicrogyria-pmg/
đź’™ Support PMG Awareness: https://pmgawareness.org/make-a-donation/
Now accepting Venmo donations:

🌍 Rare Disease Day is February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment to honor th...
02/26/2026

🌍 Rare Disease Day is February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment to honor the 300 million people living with a rare disease. Polymicrogyria (PMG) is one of them.

💜 Throughout February, we’re celebrating our PMG Superstars—the incredible individuals whose stories fuel our advocacy and inspire our community.

🌟 TODAY, MEET JACK FROM FLORIDA!

PMG may be rare, but TOGETHER as a community, we can unlock the mysteries of Polymicrogyria and push awareness forward.

đź”— Learn about PMG: https://pmgawareness.org/unlocking-the-mysteries-of-polymicrogyria-pmg/
đź’™ Support PMG Awareness: https://pmgawareness.org/make-a-donation/
Now accepting Venmo donations:

🌍 Rare Disease Day is February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment to honor th...
02/25/2026

🌍 Rare Disease Day is February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment to honor the 300 million people living with a rare disease. Polymicrogyria (PMG) is one of them.

💜 Throughout February, we’re celebrating our PMG Superstars—the incredible individuals whose stories fuel our advocacy and inspire our community.

🌟 TODAY, MEET IAIN FROM CALGARY, CANADA!

PMG may be rare, but TOGETHER as a community, we can unlock the mysteries of Polymicrogyria and push awareness forward.

đź”— Learn about PMG: https://pmgawareness.org/unlocking-the-mysteries-of-polymicrogyria-pmg/
đź’™ Support PMG Awareness: https://pmgawareness.org/make-a-donation/
Now accepting Venmo donations:

🌍 Rare Disease Day is February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment to honor th...
02/24/2026

🌍 Rare Disease Day is February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment to honor the 300 million people living with a rare disease. Polymicrogyria (PMG) is one of them.

💜 Throughout February, we’re celebrating our PMG Superstars—the incredible individuals whose stories fuel our advocacy and inspire our community.

🌟 TODAY, MEET LORELEI FROM ILLINOIS!

PMG may be rare, but TOGETHER as a community, we can unlock the mysteries of Polymicrogyria and push awareness forward.

đź”— Learn about PMG: https://pmgawareness.org/unlocking-the-mysteries-of-polymicrogyria-pmg/
đź’™ Support PMG Awareness: https://pmgawareness.org/make-a-donation/
Now accepting Venmo donations:

🎉 PMG Awareness Organization is celebrating 14 years! 🎉For fourteen years, our mission has stayed the same: to support, ...
02/23/2026

🎉 PMG Awareness Organization is celebrating 14 years! 🎉

For fourteen years, our mission has stayed the same: to support, educate, and empower everyone affected by Polymicrogyria and their families. What began as a small effort to bring clarity and connection to families has grown into a global community committed to awareness, advocacy, and hope.

Today we celebrate 14 years of standing with PMG families, sharing knowledge, amplifying voices, and reminding every PMG Superstar that they are never alone.

Here’s to the progress we’ve made — and the future we’re building together. Happy 14th Birthday, PMGA! 💗

Happy birthday, Abby!! We hope your day is filled with much love, laughter and joy. Thank you for your many years of ser...
02/23/2026

Happy birthday, Abby!! We hope your day is filled with much love, laughter and joy. Thank you for your many years of service as our Board Secretary. We appreciate all you do.

🌍 Rare Disease Day is February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment to honor th...
02/23/2026

🌍 Rare Disease Day is February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment to honor the 300 million people living with a rare disease. Polymicrogyria (PMG) is one of them.

💜 Throughout February, we’re celebrating our PMG Superstars—the incredible individuals whose stories fuel our advocacy and inspire our community.

🌟 TODAY, MEET LEONA FROM ILLINOIS!

PMG may be rare, but TOGETHER as a community, we can unlock the mysteries of Polymicrogyria and push awareness forward.

đź”— Learn about PMG: https://pmgawareness.org/unlocking-the-mysteries-of-polymicrogyria-pmg/
đź’™ Support PMG Awareness: https://pmgawareness.org/make-a-donation/
Now accepting Venmo donations:

🌍 Rare Disease Day is February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment to honor th...
02/22/2026

🌍 Rare Disease Day is February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment to honor the 300 million people living with a rare disease. Polymicrogyria (PMG) is one of them.

💜 Throughout February, we’re celebrating our PMG Superstars—the incredible individuals whose stories fuel our advocacy and inspire our community.

🌟 TODAY, MEET SAVANNAH FROM KENTUCKY!

PMG may be rare, but TOGETHER as a community, we can unlock the mysteries of Polymicrogyria and push awareness forward.

đź”— Learn about PMG: https://pmgawareness.org/unlocking-the-mysteries-of-polymicrogyria-pmg/
đź’™ Support PMG Awareness: https://pmgawareness.org/make-a-donation/
Now accepting Venmo donations:

Address

4533 MacArthur Boulevard, Suite #5182
Newport Beach, CA
92660

Telephone

+19493295975

Website

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