PMG Awareness Organization

PMG Awareness Organization We are an international nonprofit that serves a critical need in the lives of those affected with Polymicrogyria (PMG). PMG Awareness will work to:
1.

Educate health care providers, researchers, legislators, the public, and all those affected about Polymicrogyria (PMG)
2. Promote, support and assist in advancing Polymicrogyria research
3. Advocate on behalf of all children, families, and friends affected by PMG
4. Support and guide parents, relatives, and friends affected by PMG

Get ready… Step Up for PMG is launching this October! Registration opens mid‑September, and we want to see this communit...
09/02/2026

Get ready… Step Up for PMG is launching this October! Registration opens mid‑September, and we want to see this community SHOW OUT.

This movement was designed for anyone, anywhere — and it’s all about creativity and what lights you up.
Run it. Walk it. Roll it.
Sing karaoke. Bake cookies. Take a family hike.
Bike, swim, read, craft, cook out with friends… if it brings you joy, it counts.

This October, take your passion and turn it into purpose for a cause that means everything to our PMG community — our loved ones living with Polymicrogyria.

So tell us… how will YOU Step Up for PMG?
Let’s see this community get creative.
Let’s make it loud. Let’s make it meaningful.

Happy birthday to our CFO, Danielle Peacock! Thank you for your years of service and dedication to our community! May to...
09/01/2026

Happy birthday to our CFO, Danielle Peacock! Thank you for your years of service and dedication to our community! May today be as amazing as you are.🥳

For the second year in a row, we’re inviting our community to come together for Step Up for PMG — a month‑long fundraise...
08/16/2026

For the second year in a row, we’re inviting our community to come together for Step Up for PMG — a month‑long fundraiser filled with creativity, movement, and hope.

Beginning in October (with registration opening mid‑September!), you can Step Up for PMG in any way that feels right to you:
Walk. Run. Bake. Dance. Paint. Share. Celebrate.
There’s no wrong way to show your support.

We need everyone to participate — because every step, every action, every voice makes a difference for families living with PMG. 💙

☀️🌴✈️ PMG Families, we want to see your summer adventures! 🏕️🌊📸Whether you explored a new city, relaxed at the beach, sp...
07/28/2026

☀️🌴✈️ PMG Families, we want to see your summer adventures! 🏕️🌊📸

Whether you explored a new city, relaxed at the beach, splashed in a pool, visited family, attended camp, or simply enjoyed fun moments close to home, we'd love to celebrate your summer memories!

📷 Share one of your favorite summer photos in the comments and tell us where your adventure took you. Let's fill the comments with smiles, sunshine, and unforgettable memories!

✨As we start to wrap up the summer, stay tuned for more information about our 2026 Step Up for PMG Fundraiser! ✨

Today we celebrate the freedoms we enjoy and the people who make our communities stronger every day.From all of us, Happ...
07/04/2026

Today we celebrate the freedoms we enjoy and the people who make our communities stronger every day.

From all of us, Happy Fourth of July! Wishing you a safe and joyful holiday. 🇺🇸💙

Happy Birthday, Austin! Thank you for your many years of service on the Board of Directors. We are so fortunate to have ...
06/26/2026

Happy Birthday, Austin! Thank you for your many years of service on the Board of Directors. We are so fortunate to have you on our team. Enjoy your special day. You deserve it.

The PMG Awareness Organization encourages members of the PMG community to apply for the Scholarship Fund.Powered by th...
03/24/2026

The PMG Awareness Organization encourages members of the PMG community to apply for the Scholarship Fund.

Powered by the EveryLife Foundation for Rare Diseases, 58 scholarships of $5,000 will be awarded to individuals with rare diseases pursuing higher education for Fall 2026. Recipients may also participate in a mentorship program, learning sessions, and advocacy opportunities.

Learn more and apply at RareScholarship.org. Applications close April 28 at 2 PM ET.

🌍 Rare Disease Day is TODAY, February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment to h...
02/28/2026

🌍 Rare Disease Day is TODAY, February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment to honor the 300 million people living with a rare disease. Polymicrogyria (PMG) is one of them.

💜 Throughout February, we’re celebrating our PMG Superstars—the incredible individuals whose stories fuel our advocacy and inspire our community.

🌟 TODAY, MEET FINLEY FROM LIMERICK, IRELAND!

PMG may be rare, but TOGETHER as a community, we can unlock the mysteries of Polymicrogyria and push awareness forward.

🔗 Learn about PMG: https://pmgawareness.org/unlocking-the-mysteries-of-polymicrogyria-pmg/
💙 Support PMG Awareness: https://pmgawareness.org/make-a-donation/
Now accepting Venmo donations:

💗 Today, February 28, is Rare Disease Day — a global moment to raise awareness and spark change for the 300 million peop...
02/28/2026

💗 Today, February 28, is Rare Disease Day — a global moment to raise awareness and spark change for the 300 million people worldwide living with a rare disease, along with their families and caregivers.

For our PMG community, this isn’t just one day. Living with a rare disease is an everyday reality filled with resilience, strength, and unwavering love. Our community is powered by incredible PMG Superstars, dedicated caregivers, and families and friends who show up again and again.

Together, we stand for change, connection, and hope. Together, we lift one another up. And together, we can unlock the mysteries of Polymicrogyria. 💗

www.pmgawareness.org

🌍 Rare Disease Day is tomorrow, February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment t...
02/27/2026

🌍 Rare Disease Day is tomorrow, February 28 (or February 29 in leap years—the rarest day of all). It’s a global moment to honor the 300 million people living with a rare disease. Polymicrogyria (PMG) is one of them.

💜 Throughout February, we’re celebrating our PMG Superstars—the incredible individuals whose stories fuel our advocacy and inspire our community.

🌟 TODAY, MEET IMOGEN!

PMG may be rare, but TOGETHER as a community, we can unlock the mysteries of Polymicrogyria and push awareness forward.

🔗 Learn about PMG: https://pmgawareness.org/unlocking-the-mysteries-of-polymicrogyria-pmg/
💙 Support PMG Awareness: https://pmgawareness.org/make-a-donation/
Now accepting Venmo donations:

Address

4533 MacArthur Boulevard, Suite #5182
Newport Beach, CA
92660

Telephone

+19493295975

Website

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