Vivian Lee Foundation

Vivian Lee Foundation Nonprofit foundation raising awareness and support for cystic fibrosis. We raise funds through our Vivi's Vintage Market.

We are an organization that raises awareness and support for people living with Cystic Fibrosis. Our main fundraising event is a twice yearly market called Vivi's Vintage Market. This benefits the Cystic Fibrosis Foundation, Cystic Fibrosis Research Inc. and Vivian Lee, a 2 year old twin living with CF. All net profits will go to finding a cure for cystic fibrosis! Full details can be found at www.vivisvintage.com

Today is the last day. 💜At midnight tonight, the Founding Member window for The Salt Circle closes. After that, anyone w...
05/31/2026

Today is the last day. 💜

At midnight tonight, the Founding Member window for The Salt Circle closes. After that, anyone who joins is still a Salt Circle member, but the Founding Member marker is permanent and only available today.

If you've been waiting, this is the day.

Link in bio.

To the parents of young CF-ers. 💜You become an expert fast. You learn more medical terms, medications, and treatment tec...
05/31/2026

To the parents of young CF-ers. 💜

You become an expert fast. You learn more medical terms, medications, and treatment techniques than you ever imagined.

Time is no longer your own. Treatments, appointments, and therapies fill the calendar, every single day.

You celebrate the small wins. A good spirometry number. A weight gain. A full night's sleep. They all matter.

You learn to accept help. You can't do it all, and you don't have to. Community makes the hard days possible.

You carry worry, always. It never really goes away. But love is bigger, and so is your child's strength.

And you are stronger than you know. CF changes your life, but it doesn't define your love, your purpose, or your family.

You are not alone. We see you. We thank you. 💜

05/31/2026

Salty kisses from a fresh newborn. Getting a cystic fibrosis diagnosis is always such a scary time, honestly that time is a little bit of a blur for most CF parents.

What you don’t know when your baby is diagnosed is that it will still be amazing and change your life in every way.

To all our amazing CF warriors out there not letting CF get in your way, we see you. And to the caregivers cheering them on, fighting for them, we see you too.

CF, by the numbers. 💜Cystic fibrosis affects around 30,000 children and adults in the U.S. It's a genetic, progressive d...
05/30/2026

CF, by the numbers. 💜

Cystic fibrosis affects around 30,000 children and adults in the U.S. It's a genetic, progressive disease that causes thick mucus to build up in the lungs, pancreas, and other organs. Daily care can take 2 to 4 hours every single day. Median predicted survival continues to rise with research and treatment.

Now the part most people don't see.

Annual out-of-pocket costs for a family living with CF average $8,000 to $15,000 per person. Many CF medications cost over $10,000 per month without insurance. Treatments, therapies, equipment, and travel are a 24/7 reality. Lost wages, time off work, and caregiving all add to the financial strain on the whole family.

This is why the Vivian Lee Foundation exists. And it's why we built The Salt Circle.

Founding Member window closes tomorrow at midnight.

Learn more at vlfgive.com/saltcircle

"The kiss that tastes different." 💜Most people will never know what that phrase means. CF parents do. It's how many of u...
05/30/2026

"The kiss that tastes different." 💜

Most people will never know what that phrase means. CF parents do. It's how many of us found out our child had cystic fibrosis — a kiss on the forehead that tasted unmistakably salty.

May is Cystic Fibrosis Awareness Month. Tomorrow it ends. So does the Founding Member window for The Salt Circle.

More than 35 of you are already in. Whether you join us or not, thank you for being someone who learned what "salty" means this month.

Link in bio or vlfgive.com/saltcircle

One more day.

Cystic fibrosis is a lot. 💜Two to four hours of treatments every single day. Thick, sticky mucus that builds up in the l...
05/30/2026

Cystic fibrosis is a lot. 💜

Two to four hours of treatments every single day. Thick, sticky mucus that builds up in the lungs and causes infection, inflammation, and lasting damage. A genetic, chronic, life-long disease affecting around 30,000 people in the U.S. with no cure yet.

And also: a community of fighters, advocates, caregivers, and researchers showing up every day toward a better tomorrow.

May is Cystic Fibrosis Awareness Month. The work doesn't end when May does, but this month is when we ask the people in our lives to learn what CF actually means.

If this is the first time you've read anything about CF, thank you for staying with it.

Learn more at vivianleefoundation.org

48 hours. 💜The Founding Member window for The Salt Circle closes Sunday at midnight. After that, anyone who joins is sti...
05/29/2026

48 hours. 💜

The Founding Member window for The Salt Circle closes Sunday at midnight. After that, anyone who joins is still part of the program, but the Founding Member marker is permanent and only available now (and did we mention you get a Founders pin?).

If you've been waiting for a sign, this is it. Two tiers, $15 or $35 a month. Cancel anytime.

Link in bio or at vlfgive.com/saltcircle

The Hearts of Hope bracelets close with the month. 💜A few days left to make a $25+ donation and get yours. Wear it for a...
05/28/2026

The Hearts of Hope bracelets close with the month. 💜

A few days left to make a $25+ donation and get yours. Wear it for a CF warrior. Wear it for a tired caregiver. Wear it because CF Awareness Month is almost over and the work continues.

Link in bio or heartsofhopeforcf.com

Four days left in the Founding Member window. 💜The words above are from a CF parent who wrote to us recently. I read it ...
05/27/2026

Four days left in the Founding Member window. 💜

The words above are from a CF parent who wrote to us recently. I read it three times the day it came in. Then I printed it out and put it on the wall next to my desk.

This is why The Salt Circle exists. So when a family writes a message like that, we have something to point to. A group of people whose steady monthly support keeps showing up for them, every single month.

31 Founding Members so far. Four days to be one of them. Link in bio.

Vivian was 17 days old when we found out. 💜A sweat test. A diagnosis. A life that wasn't going to look like the one we'd...
05/26/2026

Vivian was 17 days old when we found out. 💜

A sweat test. A diagnosis. A life that wasn't going to look like the one we'd imagined.

The Vivian Lee Foundation exists because every CF family deserves to feel held in the months after the casseroles stop coming. Not just on diagnosis day. Not just during a hospital stay. Every month.

The Salt Circle is how we make that promise real. 31 of you are already in. Founding Member window closes Sunday.

Link in bio or at vlfgive.com/saltcircle

Address

Newberg, OR
97132

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