Lipedema Foundation

10/12/2026

Looking for a resource to share with your healthcare provider?

Our Clinician’s Guide to Lipedema provides evidence-based information to help healthcare providers better understand diagnosis.

Whether your provider is familiar with Lipedema or learning about it, the guide offers a clinical resource you can bring to the conversation.

Share the Clinician’s Guide with your healthcare provider: www.lipedema.org/clinicians-guide

10/11/2026

What do the numbers tell us about Lipedema?

Data can help us better understand how many people may be affected, what experiences with diagnosis look like, and offer insights about other characteristics of people with Lipedema.

But every number needs context. Estimates can vary depending on who researchers study and how they define and identify the condition.

Swipe for a closer look at the story the numbers shared with us in the LF Patient Registry First Look Report.

See the full report here: www.lipedema.org/registry-first-look-report

10/09/2026

Casting Now Open: Help Bring Lipedema Stories to the Screen

Lipedema Foundation is working with an Emmy Award-winning filmmaker on a documentary designed to increase public awareness and understanding of Lipedema.

At the heart of this project are the lived experiences of people with Lipedema. By sharing their stories, we hope to help more people recognize the condition, better understand its impact, and
see the people behind the diagnosis.

Jones & Juliet Casting is now seeking women throughout the United States, across all stages of Lipedema, to be considered for the documentary. No previous on-camera experience is necessary. Filming is currently anticipated for January 2027.

Interested in learning more or applying? Visit the casting announcement from Jones & Juliet Casting for details and application instructions:
https://www.jonesandjulietcasting.com/casting/casting-women-with-lipedema-in-documentary/

Important casting information: Jones & Juliet Casting is independently managing all applications, inquiries, and participant selection. Lipedema Foundation is not accepting applications or making individual casting recommendations. Contacting LF directly will not influence the selection process.

Please feel free to share this opportunity with others who may be interested in telling their stories.

Jones & Juliet Casting is casting women nationwide for a documentary produced by an Emmy Award-winning filmmaker in association with Lipedema Foundation, to spread awareness about the condition and give women experiencing all stages of Lipedema a chance to be seen and heard.

This project will be filmed documentary style, in a minimally intrusive way. The team will be working to portray each participant’s story with respect and care; chosen participants will only be asked to share as much as they are comfortable sharing on camera. We will be focusing on people’s stories as a whole, beyond their Lipedema diagnosis. No on-camera experience is necessary.

PARTICIPATION STIPEND: Chosen participants will be given a $2000 stipend to cover any associated archival materials (photos, videos, etc.) which will be incorporated to accurately tell each woman’s story.

FILMING WINDOW: January 2027.Our team will work with the chosen participants’ schedules for filming.

If interested, please visit us at:
https://www.jonesandjulietcasting.com/casting/casting-women-with-lipedema-in-documentary/

Lipedema Foundation

10/08/2026

What happens after you donate a Biobank sample?

Your contribution becomes part of a resource that gives researchers access to biological samples paired with relevant participant data.

Approved researchers can request de-identified samples or data to investigate questions about the causes, diagnosis and treatment of Lipedema.

The Biobank launched in 2025 with samples and data from 74 participants. Today, it continues to grow through collection events and clinical collaborations.

Swipe to follow how a contribution can support research.

Learn more about the Biobank: www.lipedema.org/biobank

10/06/2026

Recently diagnosed with Lipedema? Start here.

Reliable information can help you understand the condition and prepare for conversations about your care. Start with these three resources:

Understand the basics: Learn what Lipedema is, how it presents, and how it differs from obesity and lymphedema
www.lipedema.org/about-lipedema

Advocate for yourself: Use our step-by-step Self-Advocacy Guide to prepare for conversations with healthcare providers.
www.lipedema.org/guide

Know your rights: Learn about your right to accurate diagnosis, informed treatment options, and compassionate care in our Patients Bill of Rights.
www.lipedema.org/patients-bill-of-rights

Start with the resource that meets your needs today.

10/05/2026

Save the date for the Fat Disorders Resource Society, Inc. (FDRS) 2027 Conference!

April 8-11, 2027
Minneapolis, Minnesota

We’re excited to join the Lipedema community at FDRS 2027. The Lipedema Foundation will sponsor and exhibit at the conference and conduct live research, as we have in past years. Stay tuned for more details!

Want to get involved? Subscribe to our newsletter and follow us on social media for conference details and opportunities to participate in research.

Help us spread the word by sharing this post with others who may want to attend or participate.

10/05/2026

We’re excited to share a new resource with our community!

Some people with Lipedema also manage other chronic illnesses, including mast cell diseases. The Mast Cell Diseases Patient & Provider Registry is now open, giving people living with mast cell diseases and healthcare providers an opportunity to contribute information that can strengthen research and understanding.

If mast cell disease affects you or someone you know, learn more and consider participating: mcdregistry.iamrare.org/about/for-patients/

10/02/2026

We’re grateful to National Geographic for bringing Lipedema research and awareness to a broader audience.

The article features Lipedema Foundation-funded researchers Dr. Vincenza Cifarelli and Dr. Rachelle Crescenzi, alongside our colleague Dr. Thomas Wright, discussing what we know about the biology of Lipedema, challenges in diagnosis, and the research underway to improve understanding and care.

Coverage like this helps more people learn about Lipedema while drawing attention to the unanswered questions that researchers continue to investigate.

Thank you to National Geographic for highlighting this important work and the experiences of people with Lipedema.

Read the article: http://on.natgeo.com/HSeCHJ

09/30/2026

New results from the LIPLEG trial provide the strongest evidence to date that Lipedema pain is treatable and that liposuction can help many people with the condition.

LIPLEG is the first large, multi-center, randomized controlled trial to directly compare liposuction with conservative therapy. At 12 months, 68% of participants in the liposuction group achieved a meaningful reduction in leg pain, compared with 8% in the conservative therapy group. Researchers observed benefits across all three Lipedema stages.

While these results are promising, questions remain about long-term outcomes and how broadly the findings apply.

This research provides important evidence to help people with Lipedema and their healthcare providers make informed decisions about treatment.

Read our analysis of the trial at www.lipedema.org/blog/2026/9/4/lipleg-trial

09/30/2026

Understanding pain requires research.

We know pain can affect people with Lipedema, but researchers still have questions about why it occurs, why experiences vary, and how to better measure and address it.

Pain Awareness Month gives us an opportunity to recognize these experiences while also highlighting the need to keep building the evidence.

Through continued research, we can strengthen our understanding of pain and the role it plays in Lipedema.

Explore treatment options that may help reduce pain and fit your budget and lifestyle: Lipedema.org/treatments