CANCER101

CANCER101 We’re on a mission to simplify healthcare—one person at a time—through personalized education, navigation, and support.

CANCER101 (C101) was founded in 2002 by Monica Knoll, whose experience with being diagnosed with breast cancer in 2000 inspired her to help others. Unfortunately, Monica Knoll lost her battle to ovarian cancer in June 2011, but through her supportive staff, strategic partners, volunteers and board of directors, her legacy and vision lives on through CANCER101. A cancer diagnosis is often an overwh

elmingly frustrating experience. Patients and caregivers are immediately confronted with a deluge of new information, confusing terminology, paperwork, financial concerns and forced to make life-saving (and changing) decisions regarding treatment options. In addition, it’s a daunting process to coordinate travel logistics, navigate insurance policies or find help if faced with little or no insurance—all while managing daily work and family obligations. Having a plan of action, the means to stay organized and access to appropriate resources and information is half the battle. C101meets the cancer patient on the front line and turns a chaotic experience into a calm and organized plan of attack. Just as important, C101 is there after the treatments are over to help survivors manage important post-treatment appointments, medications and survivorship issues. C101 provides the tools and resources patients and caregivers need to partner with their healthcare team to make informed medical decisions. Participating in the medical plan, instead of being a victim, gives patients and their families a feeling of hope. C101 helps anyone affected by cancer including the newly diagnosed, those with a recurrence, metastatic disease, survivors, caregivers, and healthcare professionals. Our tools are designed to help all demographics including the under-served population. We also consider every recipient of the C101 tools to be a potential foot soldier in educating his/her friends, family & local communities about cancer prevention & early detection. C101 has distributed resources to over 600 participating National Cancer Institute and Association of Community Cancer Centers, as well as community oncologist practices, to provide free to patients in need. One of our main objectives includes tailoring our existing resources to meet the needs of various patient demographics. In an era of personalized care, accommodating the needs of patients is critical, thus we intend to evolve through partnerships and collaborations with other organizations to meet those needs.

Biomarker testing is a powerful tool that can guide and personalize cancer treatments. 77% of patients reported that the...
05/31/2026

Biomarker testing is a powerful tool that can guide and personalize cancer treatments. 77% of patients reported that the results of their biomarker testing improved their doctor’s ability to treat their cancer.

For more information and a detailed infographic about the future of biomarker testing, stop by our booth #13000 today, in the Patient Advocacy pavilion!

ASCO is more than a conference. It’s where breakthroughs in cancer care are shared, research becomes hope, and where the...
05/31/2026

ASCO is more than a conference. It’s where breakthroughs in cancer care are shared, research becomes hope, and where the future of treatment comes into focus.

But it’s also a moment to pause. Behind every study, every data set, and every promising result are the people we’ve lost to cancer—the patients, families, and stories that continue to shape why this work matters. Their absence is felt in every room where progress is discussed, and it’s why we created Letters to the Milky Way®, where we can remember those we’ve lost to cancer.

The connection becomes especially real in moments like the tribute by the Artemis II astronauts, who dedicated an unnamed moon crater to Carroll, the late wife of the mission commander, Reid Wiseman. In 2020, we lost Carroll to cancer—well before her time.

As we celebrate scientific progress, we also remember them. They are the reason this work continues with such determination and urgency, and they remain part of every step toward better treatments, earlier detection, and one day…a cure. Progress and remembrance belong in the same breath. Take a moment to honor the memories of those we’ve lost by launching a virtual Letter to the Milky Way® today (link below).

https://www.letterstothemilkyway.com/inspiration.php

NASA - National Aeronautics and Space Administration

Join us in building an AI Cancer Navigator and our AI Literacy 101 series! Stop by booth  #13000 at ASCO in the Patient ...
05/30/2026

Join us in building an AI Cancer Navigator and our AI Literacy 101 series! Stop by booth #13000 at ASCO in the Patient Advocacy pavilion of the Exhibit Hall to learn more and join our coalition!

Wondering what we've been up to? We’ve been busy co-designing several programs with our patients, care partners and clin...
05/30/2026

Wondering what we've been up to? We’ve been busy co-designing several programs with our patients, care partners and clinicians. Stop by our booth #13000 at ASCO in the patient advocacy pavilion of the Exhibit Hall to learn more!

Come see us at booth  #13000 this weekend at  ! We are on a mission to simplify healthcare one person at a time with our...
05/30/2026

Come see us at booth #13000 this weekend at ! We are on a mission to simplify healthcare one person at a time with our personalized education, navigation, and support - stop by today!

Interested in checking out our CANCER101 planner IRL? It was co-designed with patients, care partners, clinicians, infor...
05/30/2026

Interested in checking out our CANCER101 planner IRL? It was co-designed with patients, care partners, clinicians, information designers, and other experts. Stop by our booth #13000 at in the Patient Advocacy pavilion of the Exhibit Hall, and take a closer look!

Behind every breakthrough is a person waiting for more hope, more options and more time. Millions of people are impacted...
05/22/2026

Behind every breakthrough is a person waiting for more hope, more options and more time. Millions of people are impacted by cancer - whether it is on a personal level with a cancer diagnosis or by way of loving and caring for someone who is living with cancer. Thanks to innovations in cancer research, there are 18.6 million cancer thrivers in the US, and millions more across the world. They are living through and beyond the boundaries of a cancer diagnosis, giving hope to current and future generations of cancer thrivers and their families and friends.

Cancer research is more than data and clinical trials — it’s the reason thrivers get to celebrate milestones, families get more moments together, and future patients may face better outcomes than ever before. Progress happens fastest when science and lived experience work hand in hand. This month is National Cancer Research Month and we honor the patients, care partners, researchers, clinicians and advocates, who continue pushing the future of cancer care forward.

Click on our link in bio to learn more about progress that has been made thanks to cancer research, and how to advocate for those affected by cancer.

https://www.aacr.org/patients-caregivers/awareness-months/national-cancer-research-month/

Clinical trials have provided people living with cancer - and many other health conditions - hope, healing, and more tim...
05/20/2026

Clinical trials have provided people living with cancer - and many other health conditions - hope, healing, and more time with their families and friends. Without clinical trials, we would not have the innovative cancer treatments and improvements in quality of life that we have now and in the future.

Simply put, clinical trials are research studies that compare the existing standard of care with different approaches to see if those work better. For example, a clinical trial may test different combinations of medications to see how they can work together to shrink a cancerous tumor. Or, a clinical trial can help determine how to prevent cancer or the recurrence of cancer by way of medicines, vaccines, or lifestyle changes. Clinical trials take place in different phases to determine safety and efficiency of treatments and are highly regulated and monitored.

Your healthcare team can provide additional guidance on clinical trials you might be eligible for based on the specifics of your cancer and provide you with more details on:

◾The risks and benefits of participating in a clinical trial
◾How to find a clinical trial that may benefit you
◾Your rights as a participant in a clinical trial
◾Costs of a clinical trial and what might be covered

Click on our link here for a more detailed overview of clinical trials.

https://cancer101.org/where-do-i-start/what-is-a-clinical-trial.php

Many doctors suggest that we all do a skin self-exam once a month, but your doctor may have specific recommendations bas...
05/18/2026

Many doctors suggest that we all do a skin self-exam once a month, but your doctor may have specific recommendations based on your risk factors, such as personal or family skin cancer history, reduced immunity and/or if you have many moles or skin spots. In addition, don’t skip routine skin exams by your doctor!

A skin self-exam is best done after a bath or shower. Before you begin, find a well-lit room with a full-length mirror and also use a hand-held for areas that are harder to see. Take your time and be thorough in learning the pattern of freckles, moles, blemishes, or marks on your skin so you can pick up on any changes over time. Once you start examining your skin regularly, you will know what is normal on your skin. As you begin these steps below, look for any changing or new moles, growths or spots, a sore that doesn’t heal, rough or scaly red patches that crust or bleed, and any moles with odd shapes, irregular borders, or areas that have different colors.

◾Face the mirror and examine your face, ears, neck, chest, and stomach. Women should check under their breasts.
◾Check your underarms, both sides of your arms, the tops and palms of your hands, in between your fingers, and under your fingernails.
◾Sit down and examine the front of your thighs, shins, tops of your feet, in between your toes, and under your toenails.
◾If you have a hand mirror, look at the bottoms of your feet, your calves, and the backs of your thighs.
◾Check your buttocks, ge***al area, lower and upper back, and the back of your neck and ears. It might be easier to look at your back in the wall mirror while also using a hand mirror.
◾Use a comb to part your hair so you can also check your scalp.

If you find something that concerns you, check in with your doctor to see what they recommend. Take photos of the area to monitor if it changes over time, and share those photos with your doctor. You may be referred to a dermatologist for further examination. Click on our link here for more information on skin self-exams.

https://www.cancer.org/cancer/risk-prevention/sun-and-uv/skin-exams.html

The bladder is an organ in your lower pelvis and its main role is to store urine.  Bladder cancer occurs when cells in t...
05/15/2026

The bladder is an organ in your lower pelvis and its main role is to store urine. Bladder cancer occurs when cells in the bladder - the organ located the lower part of your pelvis that is responsible for storing and helping expel urine - grow out of control. The most common type of bladder cancer is called urothelial carcinoma that begins in the urothelial cells that line the inside of the bladder. Other less common types include squamous cell carcinoma, adenocarcinoma, small cell carcinoma and sarcoma.

Bladder cancer can sometimes be caught early, when it's small and hasn't spread due to symptoms you may experience, which include: blood in your urine, which is often the first sign of bladder cancer. If enough blood is present in the urine it can change the color to orange, pink, or dark red. Other symptoms may include pain or burning during urination, urgency to urinate (even if bladder isn’t full), difficulty urinating or a weak urine stream and frequent urination at night. Symptoms of advanced bladder cancer may include difficulty urinating, lower back pain (one side), appetite and weight loss, fatigue, feet swelling and bone pain.

Smoking is a major risk cancer for bladder cancer. Other risk factors include exposure to certain industrial chemicals, not drinking enough fluids, chronic bladder infections and irritations, a personal or family history of bladder cancer, and bladder birth defects. Talk to your doctor if you are concerned about any risk factors or symptoms, and click on our link here for additional resources!

https://cancer101.org/conditions/bladder-cancer.php

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450 Lexington Avenue #3151
New York, NY
10163

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Monday 9am - 5pm
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Wednesday 9am - 5pm
Thursday 9am - 5pm
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