Bioethics International

11/30/2021

looking fwd to discussing , and biomedical research for

11/21/2019

Analysts report the Continues to Boost Clinical Trial Transparency.

Calls for increased transparency in clinical trials have been growing and now many medical journals are requiring authors of submitted papers to disclose whether or not they will be sharing clinical trial results.

11/15/2019

STAT news interviews Jennifer Miller on the ethics of the Google-Ascension deal and whether patients should be informed & or consented when health systems share their medical information.

The initiative, code-named “Project Nightingale,” gave Google the ability to analyze personal health information compiled by Ascension

10/08/2019

is hiring a in / focused on ethics, governance, data sharing and transparency in and healthcare innovation.

07/25/2019

Thx EndPnts for writing about our BMJ study & rankings of big ‘s & clinical trial transparency practices.

The nonprofit Bioethics International has come out with their latest scorecard on data transparency among the big biopharmas in the industry — flagging a few standouts while spotlighting some laggards who are continuing to underperform. Now in its third year, the nonprofit created a new set of sta...

07/16/2019

Our new study on -sharing and clinical trial transparency in is out in BMJ. We found 25% of big pharma companies (w drugs approved by the fda in 2015) share patient level trial data by our measures. This went up to 33% when companies were given a 30 day window to improve.

Objectives To develop and pilot a tool to measure and improve pharmaceutical companies’ clinical trial data sharing policies and practices. Design Cross sectional descriptive analysis. Setting Large pharmaceutical companies with novel drugs approved by the US Food and Drug Administration in 2015. ...

08/15/2018

DIY Medicine: article interviews 4 ppl- 2 pro(ish) & 2con(ish) & me. The 2 bioethicists are the cautious POVs.

A biohacker, pharmahacker, and two bioethicists walk into a bar. We ordered them a metaphorical round and had a chat about the risks and rewards of DIY medicine — from unsanctioned gene therapy to medication made on the kitchen counter.

08/10/2018

1st comprehensive economic analysis of & by Yale economist Ysyvinski

In a new study, economist Aleh Tsyvinski and co-author Yukun Liu provide the first-ever comprehensive economic analysis of cryptocurrency and blockchain.

08/07/2018

Verizon and AT&T is pledging to stop sales through intermediaries of data that pinpoint the location of mobile phones to outside companies. They are the first major U.S. wireless carrier to step back from a business practice that has drawn criticism for endangering privacy.

07/31/2018

https://t.co/dtGnySt5e5

Hu-manity.org and Bioethics International Announce New Human Data Ethics Lab to Champion Data Rights

07/30/2018

Why Consumers Demand Greater Transparency Around Data Privacy

Recent research has shown that while consumers are demanding more transparency around information handling, few companies are doing enough to communicate with their customers about data privacy.